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laineynic

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Relationship to Diabetes
Type 1
Hi I joined the site today because I feel I need some support.

My diabetes was first discovered when I had my daughter 19 years ago. After she was born it went away. Then came back when I had my son 15 years ago. It went away after he was born and returned about 10 years ago.

I had Hodgkins disease when I was 19 and had to have cheomotherapy, which involved taking steroids. I have been told that the likelehood of my diabetes is down to the chemotherapy.

I have had 8 years of managing my diabetes with no problems odd high sugars but otherwise I have been ok. 2 years ago everyhting changed and my blood sugars have been very difficult to manage. My consultant has told me that I am managing my diabetes, it is my body that isn't. He says that my body has started to reject the insulin and it is no longer working correctly. Up unitl a month ago I was on a new injection called Byetta - this was in addition to the 4 times a day I have been taking my insulin. It made me feel so ill. I woke up feeling sick, I was constantly tired, I gained weight instead of loosing it. I feel that for the last 2 years I have been used as an experiment. I was prescribded a tablet that has since been banned as it can cause heart disease.


I see him again in December and he hopes he has another drug that may help me. Which is wonderful but it does mean more injections.

Today I was at my GP'S surgery and she laid into me. My test results came back and my cholestrol has risen by 2 to 8 and overall bloods were 10.01. Previously my cholestrol has been 6 and my bloods have been 7.5. She told me that I must start to manage my diabetes better and I need to loose weight and look at my eating.

I am very upset at her comments as my consultant has told me that the reasons behind my blood suhars rising is because I have had to come of the Byetta. He also said that my problems are not down to me and more down to my body. I really don't kno what to do, she has left me feeling as if I make no effort in my management of my diabetes. I eat a balanced diet with loads of vegestables, I don't drink, I treat myself to a cake once amonth.

I have a swollen upper tummy which I have been told is significant with insulin not working properly. I am so embarrassed by the way it sticks out, it look like I am pregnant all the time.

I also have a blockage in my left artery near my heart. I was diagnosed 18 months ago and the consultant told me that he could not rule out that the damage was not caused by radiotherapy. Because of my heart condition I am not able to excercise like I used, I used to swim, cycle go to a dance class now I have nothing. Walking my dog leaves me breathless and exhausted.

I don't go to my GP unless I have to becuase when I leave her surgery I feel as if my diabetes is my fault and that I am a useless diabetic. She told me today that if I don't get it under control then my life will deteriate fast. I don't know what else I can do. I eat sensible food, I take my insulin and all my tablets. doint my blood sugar tonight it is 8.0.

Elaine
 
Hi Elaine, and welcome to the forum 🙂

I'm sorry to hear about the problems you've been having but you are in the right place! I hope you get lots of help and support from being here.

Firsty I would say get a new GP! I think it's good that she is telling you the truth, you do need to get your levels under control, like all of us... but if she makes you feel bad every time it's just not worth seeing her. It sounds as though your consultant is much better and understands things better.

Secondly do you carb count? What insulin do you take? and do you look at what affects certain carbs have on your levels? This is vital for gaining good control.
 
Hi I joined the site today because I feel I need some support.

My diabetes was first discovered when I had my daughter 19 years ago. After she was born it went away. Then came back when I had my son 15 years ago. It went away after he was born and returned about 10 years ago.

I had Hodgkins disease when I was 19 and had to have cheomotherapy, which involved taking steroids. I have been told that the likelehood of my diabetes is down to the chemotherapy.

I have had 8 years of managing my diabetes with no problems odd high sugars but otherwise I have been ok. 2 years ago everyhting changed and my blood sugars have been very difficult to manage. My consultant has told me that I am managing my diabetes, it is my body that isn't. He says that my body has started to reject the insulin and it is no longer working correctly. Up unitl a month ago I was on a new injection called Byetta - this was in addition to the 4 times a day I have been taking my insulin. It made me feel so ill. I woke up feeling sick, I was constantly tired, I gained weight instead of loosing it. I feel that for the last 2 years I have been used as an experiment. I was prescribded a tablet that has since been banned as it can cause heart disease.


I see him again in December and he hopes he has another drug that may help me. Which is wonderful but it does mean more injections.

Today I was at my GP'S surgery and she laid into me. My test results came back and my cholestrol has risen by 2 to 8 and overall bloods were 10.01. Previously my cholestrol has been 6 and my bloods have been 7.5. She told me that I must start to manage my diabetes better and I need to loose weight and look at my eating.

I am very upset at her comments as my consultant has told me that the reasons behind my blood suhars rising is because I have had to come of the Byetta. He also said that my problems are not down to me and more down to my body. I really don't kno what to do, she has left me feeling as if I make no effort in my management of my diabetes. I eat a balanced diet with loads of vegestables, I don't drink, I treat myself to a cake once amonth.

I have a swollen upper tummy which I have been told is significant with insulin not working properly. I am so embarrassed by the way it sticks out, it look like I am pregnant all the time.

I also have a blockage in my left artery near my heart. I was diagnosed 18 months ago and the consultant told me that he could not rule out that the damage was not caused by radiotherapy. Because of my heart condition I am not able to excercise like I used, I used to swim, cycle go to a dance class now I have nothing. Walking my dog leaves me breathless and exhausted.

I don't go to my GP unless I have to becuase when I leave her surgery I feel as if my diabetes is my fault and that I am a useless diabetic. She told me today that if I don't get it under control then my life will deteriate fast. I don't know what else I can do. I eat sensible food, I take my insulin and all my tablets. doint my blood sugar tonight it is 8.0.

Elaine

Bless you Elaine😱 You're really up against it. Welcome to the forum and thank you for sharing🙂 I understand completely when you feel aggrieved by the 'proffesionals' You are not a 'useless diabetic' , by virtue of the fact that you are here on this forum means that you are taking this disease seriously. Please just relax for a while, OK you have a disease, the same as the rest of us here, it's nasty and won't go away but we can and quite succesfully are, controlling it to give us the best quality of life possible. Please remember that diabetes is not your fault, you did nothing wrong!! It just happened!! Now you have to cope with it. I don't know if you know your body mass index, but basically maintain a body weight that you can look in the mirror and say "Wow!! Lookin good!! Don't dwell on this though as your mental health is really important in acheiving a good balance. Feel good about yourself!! It's your pancreas that's at fault if you want to blame anything, and it has nothing to do how you starve yourself or eat the wrong thing's or how many miles you walk per day. All these thing's are important to your control, exercise 30 mins per day is as good as 500mg metformin. Never forget to take your medication though. No sugar, no fat, no salt is a fairly good maxim to live by, but you'll have to discover for yourself with reference to carbohydrates, these turn to blood sugar very readily and can be sneaky wee buggers to keep an eye on! Avoid refined flour products if you can, imagine it's like petrol, comes out of the ground as a messy oily thing, once it is refined all the carbohydrate is concentrated to such an intense degree you can blow thing's up with it!!! Same with flour, less refined wholegrain provides a more satisfying slow release carbohydrate intake that your body can turn to sugar in a more regulated manner.......take care ..........please ask anything.....no matter how daft it may seem!!
 
hi elaine and welcome to the forum , sorry to hear you seem to have had such a tough time ,im pleased you have found this forum hun x
 
Hi Elaine, what a tough time you have had over the years, like others have said you will get lots of support and advice on here, i hope it helps that you have found us. It has certainly helped me, xx
 
Thank you for your support after yesterday it is very welcomeing. I hav spoken to my diabetic nurse and she has also offered her support and disbelief that my GP has teken this attitude to me. Spoodgel - your right "diabetes is not your fault, you did nothing wrong!! It just happened!! ".

She has told me that being taken of the extra injection is what has caused my high blood sugars. Until I see my consultant in December she said we just have to work at maintaining it as best we can. She is howevere going to speak to my GP.

Thank you all for making me feel I am not alone.xx
 
Hello and welcome to the forum.:D

My son is 11 and was diagnosed 10 months ago. He is now on an insulin pump. It sounds like you have been through such an awful lot - no wonder your feeling down. But your in the right place for support and advice. I am sure you have lots of experience to give us all aswell. I hope things start looking up very soon for you. Take care. 🙂Bev
 
hi lainey im pleased your DN at least as a better attitude to your GP maybe she should give him some pointers in to how to be sympathetic and have an understanding manner not just have such a cavalier attitude towards you. I hope she gets through to him when she has a word
 
Dear laineynic,

Welcome to this forum, there are lots of people here who can help even if all you need is someone to talk to. However, your problems seem really bad and the advice others have provided to change your GP sounds good. One thing that puzzled me is that you were on Byetta. The manufacturers say that it is only for Type 2s, did they say why they were putting a T1 on a drug not intended for you?

Warmest Regards Dodger
 
Welcome to the forum 🙂

I wonder if the new drug is Victoza, that is the newest injectable drug for diabetes. Hope the nausea you expereince is less for this than byetta

Dodger from the history elaine gives it sounds like she is a type 2 on insulin, and has just made a mistake in her profile.

I hope you mange to get control of your blood sugars soon, it really isn't any fun when things are not working out. Have you looked into your diet? Are there any changes that can be made there to improve things?

look forward to getting to know you
 
Hello Elaine, welcome to the forum, I'm sure you'll find lots of support and help, if you need it. Sorry to hear things are tough right now.

I'm still quite new to this Diabetes lark, but it sounds to me like you've got a good handle on it, and are managing everything really well. What a cr*p attitude your GP has - why not offer advice, tips and support instead of unnecessary criticism?? Your DSN is obviously more 'human' !

Good luck with everything.

xx
 
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