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Hello

S

SasquatchPie

New Member
Relationship to Diabetes
Type 3c
Pronouns
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Hello ev. I have just been rediagnosed with type 3c diabetes after previously being told it was type 2. Has anyone with this condition got any advice about type 3c which might be useful? Many thanks!
 
Hi @SasquatchPie and welcome to the forum.

We have several members with type 3c who I'm sure can answer some of your questions

Alan 😉
 
SasquatchPie said:
Hello ev. I have just been rediagnosed with type 3c diabetes after previously being told it was type 2. Has anyone with this condition got any advice about type 3c which might be useful? Many thanks!
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Hi @SasquatchPie,
Do you want to give us more info on how you were diagnosed and what medication you may have been put on and presume you are on Creon.That info will help us better understand your circumstances and history as there are a few Type 3Cs who have arrived via a different journey.
@Proud to be erratic
 
@martindt1606 and @soupdragon too

Have you had pancreatitis @SasquatchPie ? Or some sort of surgery?

There is an overview of type 3c including some of the possible causes here:

What is type 3c diabetes?

You may have heard of the more common types of diabetes like type 1, type 2 and gestational. But there are actually many other types of diabetes that aren't as well known. Type 3c diabetes develops because of the damage to the pancreas, which can happen for a few different reasons. And although...
www.diabetes.org.uk www.diabetes.org.uk
 
SasquatchPie said:
Hello ev. I have just been rediagnosed with type 3c diabetes after previously being told it was type 2. Has anyone with this condition got any advice about type 3c which might be useful? Many thanks!
Click to expand...
Whilst Type 3c isn’t as well recognised as the more traditional types of diabetes it does seem to have recently become more popular with the medical fraternity resulting in a significant increase in reclassification from type 2. However this does mean that there is a large variation in why people have been diagnosed/classified as 3c and therefore how they should be treated going forward - both for diabetes and any pancreatic issue.
It is very confusing - I had a call with my diabetic consultant last week and the discussions were 100% based on life as a T1 not as a T3c. Note I don’t have a pancreas…
 
Hello @SasquatchPie and a very warm welcome from me 🙂. I'm sure you'll get lots of useful information from our friendly members!
 
Welcome @SasquatchPie from another Type 3c.
I have diabetes due to pancreatitis and have treated with insulin from the start.
How are you managing your diabetes?
 
Wendal said:
Hi @SasquatchPie,
Do you want to give us more info on how you were diagnosed and what medication you may have been put on and presume you are on Creon.That info will help us better understand your circumstances and history as there are a few Type 3Cs who have arrived via a different journey.
@Proud to be erratic
Click to expand...
I have a history of alcohol dependency and although I've been sober for a while, my past has caught up with me. Diagnosed with chronic pancreatitis recently. I was put on insulin and taken off metformin but I wondered if taking both is considered safe? Many thanks for any advice.
 
SasquatchPie said:
I've been moved from metformin to solely insulin, although I have read taking both can be very effective.
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Hi Type 3Cs can manage their diabetes either by insulin or non insulin medications like Metaformin but it all depends on how much pancreatic function any individual may have in terms of survival of Beta cells which produce the insulin.
So if you have some pancreatic cell necrosis but some of your Beta cells survive ( they tend to be located in a specific area of the pancreas then you may be producing enough insulin to allow the Metaformin to manage your condition.
However if your Beta cells have been damaged to the extent you are producing none or very limited insulin then you will need exogenous insulin.Same logic if you have had part or all of your pancreas removed.
Personally I had extensive necrosis and was put on insulin straight away which I manage very well so am happy to stay on it even though I may be OK just on Metaformin ( have not had a C Peptide Test).
 
Hello from another type 3c; like Wendal I had a fair amount of necrosis damage to my pancreas, gallstones kicking everything off in the beginning. I lasted a few years on not having diabetes but I think all the extra work my pancreas was doing, or what was still working, it decided to go on strike and I quickly developed classic diabetes signs. I was put on insulin a year ago and have learned quite quickly what levels suit me. Every now and again my depleted pancreas decides it can make some background insulin!
My levels of insulin have been everywhere from 1 unit per 20g carbs to 1 unit per 4g carbs... Most of the time it is around 1u to 9g nowadays but also changes during the day. First thing in the morning it is around 1u to 6g carbs until I have digested (with the help of enough creon) the first meal of the day, then it levels out until the end of the day.
With my annual visit to diabetes centre today they asked if I wanted to go to a half unit pen which I said yes to, but because I had just had 5 pens done on prescription this week and lack of pens in stock, they said it would have to wait a bit...
So, it's a slow journey in the beginning as you work out what foods agreed with you, your insulin levels, the variability of insulin requirements over time... But as long as you take note of what you do and how much, you will get there
 
SasquatchPie said:
I've been moved from metformin to solely insulin, although I have read taking both can be very effective.
Click to expand...
How are you managing with the insulin? It's a lot to take on board at the start.
Just wondering if your support with the diabetes is coming from a hospital clinic or from the GP surgery?
 
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