Hello

Noggin11

Member
Relationship to Diabetes
Type 2
Pronouns
She/Her
Hello everyone, I wanted to share my recent experience and maybe get some advise and thoughts. I was diagnosed about 10 years ago with Type 2. I was originally put on Metformin but couldn't tolerate it, so it was changed to Sitagliptin 100mg once a day. My diabetes was well controlled for years on diet and the sitagliptin. Anyway I wasn't happy with the diabetic nurse at the GP's so asked to be referred to an endocrinologist out of area at a large city hospital, so it's a different trust.

I have been struggling with my back and hip for the last couple of years and the weight had crept up. I've just had a hip replacement 4 weeks ago. I saw the endocinologist in August 23, HbA1c was 54. He added Dapagliflozin 10mg OD. I saw him again in April 24 the HbA1c had gone up to 57 so he added in Oral Rybelsus. At this point he wanted me to go back under the care of my local diabetes team in my area, so back to my old trust. My doctor prescibed all the drugs so I thought everything was OK. I have to admit that because of my mobility problems and pain my diet was rubbish, I was litterally bedbound for a year.

I had a HbA1c test in October 24 and my HbA1c ws 61, no suprise there given my eating was out of control. Anyway the Diabetic nurse got wind of my result and without having a face to face review with me asked the doctor to take me off the Rybelsus. The doctor rang me and said that the consultant at the other trust had more flexability over what he could prescibe than what the nurse could prescibe in my local area. He said that he would get the nurse to ring me and explain the local area protocal for me. She has never rang me. The doctor did ask if I wanted to be rereferred back to the endocinologist because they were more flexible.

The doctor hasn't taken me off the Rybelsus probably because he is waiting to see what I want to do. I know that I have to get my diet under control and have taken steps to do this and mainly reading all the posts on here. I am really upset and worried about engaging with the diabetic nurse because what will she try and change next. Obviously my local trust are more strict over what medications they are willing to prescribe. I am just getting over the hip operation but all this has left me feeling very upset and down.

Has anyone got any ideas on how I should go forward.

Many thanks.
 
I have also started BG monitoring this week to see what is spiking my levels.
 
Hi @Noggin11 and welcome to the forum.

I'm not surprised you are feeling upset and a bit down which is quite understandable and you have my sympathy for one.
There are many knowledgeable people on this forum who I'm sure will pop along and try to help and point you in the right direction.
It's good you have started doing your own BG monitoring as this as you say will help you understand what going on.

Take care
Alan 😉
 
Sorry to hear about your medication worries @Noggin11

I much prefer the approach of “nothing about us without us”, where each decision comes out of a two way conversation and treats us as an individual, It’s a shame you haven’t had that experience :(

We have a few members on Rybelsus (especially since the shortage in Ozempic). I know that some medications are restricted, and can only be prescribed in secondary care (by a hospital consultant), but I hadn’t thought Rybelsus was one of those.

There are some threads and posts mentioning Rybelsus here which may be worth browsing through for others’ experiences?

 
Thankyou for your responding, felling a little less alone now.
 
Back
Top