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Not sure exactly but it's 15 + years, recently got diagnosed with pancreatitis and now having to inject insulin morning and night
 
Welcome to the forum @willieboy1954

Sorry to hear about your pancreatitis :(

Have you been offered Creon to help with digestion if your pancreas has been damaged by the pancreatitis?

We have a few members here whose diabetes has come about through pancreatitis, including @soupdragon and others whose Type 3c diabetes was brought about by surgery including @Proud to be erratic
 
everydayupsanddowns said:
Welcome to the forum @willieboy1954

Sorry to hear about your pancreatitis :(

Have you been offered Creon to help with digestion if your pancreas has been damaged by the pancreatitis?

We have a few members here whose diabetes has come about through pancreatitis, including @soupdragon and others whose Type 3c diabetes was brought about by surgery including @Proud to be erratic
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yes, 3 creon torpedoes with every meal and 1 or 2 with every snack, i didn't think there were capsules as big as these, turns out i've got a pocket of fluid in my pancreas and i'm waiting to hear if i need to have an op to drain it.
 
willieboy1954 said:
yes, 3 creon torpedoes with every meal and 1 or 2 with every snack, i didn't think there were capsules as big as these, turns out i've got a pocket of fluid in my pancreas and i'm waiting to hear if i need to have an op to drain it.
Click to expand...

Had bigger antibiotics tbh than creon tabs, 10k creon capsules are much smaller but obviously.you'd need to take more to make up 75k dose.

Hope you get fluid issue sorted.
 
willieboy1954 said:
yes, 3 creon torpedoes with every meal and 1 or 2 with every snack, i didn't think there were capsules as big as these, turns out i've got a pocket of fluid in my pancreas and i'm waiting to hear if i need to have an op to drain it.
Click to expand...

I wonder if it might be worth asking about reclassification asType 3c now that your diabetes is being driven by pancreatitis?

@Proud to be erratic @soupdragon @martindt1606 may have some insight to share, but my understanding is that Type 3c is treated more as a subset of T1, and therefore things like an insulin pump and CGM may be open to you if they are appropriate, whereas they (certainly insulin pumps) aren’t usually offered to people with ‘classic’ T2 in the UK, even if they use insulin.
 
Thank you for the info, I'll get in touch with my diabetes team and see if they can confirm that I have T2 or T3c.
 
Welcome @willieboy1954
everydayupsanddowns said:
I wonder if it might be worth asking about reclassification asType 3c now that your diabetes is being driven by pancreatitis?
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I think this observation is spot on. I certainly was blatantly discharged after my surgery as T1 to make sure that, even though I clearly didn't have any of the autoimmune criteria that provide the formal basis of a T1 diagnosis - I really was a T3c after a total pancreatectomy - I have been able to push my providers for support appropriate as for T1, within the NICE Guidelines.

It does seem that T3c is increasingly being recognised as "different" to T2 or T1, but needs the T1 support. The most glaring example of that is CGM on prescription; closely followed by care from Hospital based Diabetes Teams. T2, under NICE, is to be managed from GP Practices, who simply don't have the breadth of knowledge for assisting those with insulin dependency. And it does seem that many T3cs have significantly more complex needs for their D management - not least because they have this complexity of pancreatitis potentially "interfering" with their D management.

If I've not explained that sufficiently, please ask. I'm away from home and time short just now.
 
Welcome Willie,
Well worth pursuing if it is Type 3c as others have said it will help to have a more specific diagnosis for several reasons.
I really wanted to comment on the pancreatic fluid which I am presuming is a pseudocyst ( if not please disregard the next experience).
Following my acute pancreatitis episode I had a large pseudocyst develop and was 50/50 whether the Consultant was going to drain it ( the risks of infection during the procedure he was worried about).
He decided to watch,wait and monitor as it was not causing me any distress and about half of them resolve themselves. I was a little concerned about it bursting but he said the risk was low and if it got infected he would drain it.
So I just went for regular CT scans and about 6 months after my episode it had reduced then a further 6 months it had dissolved of it’s own accord.
Your circumstances may be different but wanted to let you know of my experience.
BW
 
Thank you for the info, I'll certainly use it when I approach my diabetes team to get clarification as to what type of diabetes I have, while in hospital I recall asking a nurse if it was still T2 I had, now that I was having to take insulin on a daily basis and she was quite vague about it, until I joined this forum I wasn't even aware that T3c even existed, my eyes have well and truly been opened.
 
PS I am on the same Creon regime as you with the 25k capsules and find them fine.As none the wiser says the 10k ones are much smaller but you need to take many more.I only tried them when there was a shortage of 25k which I find much easier to take
 
Wendal said:
Welcome Willie,
Well worth pursuing if it is Type 3c as others have said it will help to have a more specific diagnosis for several reasons.
I really wanted to comment on the pancreatic fluid which I am presuming is a pseudocyst ( if not please disregard the next experience).
Following my acute pancreatitis episode I had a large pseudocyst develop and was 50/50 whether the Consultant was going to drain it ( the risks of infection during the procedure he was worried about).
He decided to watch,wait and monitor as it was not causing me any distress and about half of them resolve themselves. I was a little concerned about it bursting but he said the risk was low and if it got infected he would drain it.
So I just went for regular CT scans and about 6 months after my episode it had reduced then a further 6 months it had dissolved of it’s own accord.
Your circumstances may be different but wanted to let you know of my experience.
BW
Click to expand...
Thank you wendal, I am in exactly the same situation as you were with the will we won't we operate scenario, I was discharged from the hospital on 27th February and I still await they're decision.
 
willieboy1954 said:
Thank you wendal, I am in exactly the same situation as you were with the will we won't we operate scenario, I was discharged from the hospital on 27th February and I still await they're decision.
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Yes I know it was a worrying time.
After my initial discharge in April 22 it developed about 3 - 4 weeks later ( few back pains) and I was readmitted ( not due to pseudocyst) and the Consultant was reluctant to send me to a Specialist Centre to have it drained and preferred to wait to see how it developed.
Must admit I wanted them to make a decision but he wanted to wait and said the risk of infection ( during the procedure) had to be balanced against the very low risk of it bursting but if my pancreas did get infected separately then they would get it drained.
The signs of infection are things like fever,night sweats etc but as I was feeling generally pretty yuk then it was easy to be be too sensitive to any symptoms.
It was a large pseudocyst which I did not think would resolve itself naturally but over the months it reduced gradually then at a 12 month follow up scan in Aug 23 I was told it had gone.
As it was about the same time as my diabetes diagnosis at least I had some good news and one less thing to worry about.
Once I got used to its presence and felt normal again ( Sept 22) I just forgot about it and in the end was very pleased with Consultants decision to wait and watch.
 
@willieboy1954 there might be one difference in what you experience from now onwards, in relation to @Wendal's progression (and either of you please correct me if I have this wrong).

Since you @willieboy1954 are now insulin dependent, any future illnesses are likely to first show themselves to you as elevated BG, even before you necessarily have other symptoms and so are unaware that there is something wrong. This can be a day or even 2 ahead while your body attempts to fight against and suppress the incoming illness. It's initially a nuisance since you temporarily simply don't know why your BG is misbehaving and in the newness of everything you instinctively don't want to just get into increasing your bolus to keep ahead of a rising BG. It's one of those trial and learning experiences that need to be encountered and are not really foreseeable or recognisable from text book learning.

Just a passing observation.
 
As usual Willie Roland highlights other issues and that is one of the values of the forum as we come from different perspectives and experiences.
When I had my pseudocyst etc and in fact my whole acute pancreatitis episode I was not diabetic hence I could judge everything in isolation as I was not concerned about BG levels.
I developed the diabetes as a consequence of my pancreatic damage rather than as a causative factor.
 
Welcome @willieboy1954
I have Type 3c due to pancreatitis. I've been treated as if Type 1 from the beginning, although I was told that I might not need insulin for ever. Turned out that, for me, the damage was too severe manage without insulin.
Hope you get some clarification on your diabetes type and also that the situation with the fluid collection is resolved. I remember finding the watching and waiting before any interventions frustrating so I do sympathise.
 
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