Hello

Status
Not open for further replies.

bufc07

Active Member
Relationship to Diabetes
Type 1
Hi, I was only diagnosed about 2 months ago now, I'm 14 years old and I'm fairly active so still in the "honeymoon" period. It was a bit of a shock at first to be honest and still is, but I'm getting more and more comfortable by the day. I'm still new to this and my experiences so far will of course be quite different to everyone else's in here. Any advice anyone would give to me? Particularly for sport? I know the term "advice" is quite broad but at the moment I would find a lot useful.

Thanks
 
Last edited:
Welcome to the forum, we certainly have parents of children here on the forum and also @Lily123 who is also a teenager, she has just been writing about diabetes education in her school.
I'm sure others will be along soon but it would help them make suggestions if you say what insulins you are on and if you have a Libre or similar.
 
Welcome to the forum, we certainly have parents of children here on the forum and also @Lily123 who is also a teenager, she has just been writing about diabetes education in her school.
I'm sure others will be along soon but it would help them make suggestions if you say what insulins you are on and if you have a Libre or similar.
That would probably have helped haha, I am on NovoRapid and Lantus and yes I do have a FreeStyle Libre
 
Hi @chazthompson and welcome. 🙂 Sorry to hear about your diagnosis. I was 41 when I was diagnosed, so you’re right - a very different experience to your own! 🙂
 
Any advice anyone would give to me? Particularly for sport?
Here's a playlist of a few short videos on exercise:

Abbott has a FreeStyle Academy, and used to run webinars including one on exercise (involving an athlete) but that seems to have mostly stopped. Here's an old video:

(There's also the basic stuff on how to interpret the arrows and so on, but I'm assuming you'll have seen those on the FreeStyle website anyway.)

(I was diagnosed at a similar age to you, unlike @Bloden, but my experience is just as irrelevant since it's a long time since I was 15.)
 
Hi @chazthompson and welcome to the forum 🙂

I’m 15 by the way

What do you currently do for sports? Like during PE?
 
Here's a playlist of a few short videos on exercise:

Abbott has a FreeStyle Academy, and used to run webinars including one on exercise (involving an athlete) but that seems to have mostly stopped. Here's an old video:

(There's also the basic stuff on how to interpret the arrows and so on, but I'm assuming you'll have seen those on the FreeStyle website anyway.)

(I was diagnosed at a similar age to you, unlike @Bloden, but my experience is just as irrelevant since it's a long time since I was 15.)
Thank you very much. I'll definitely be sure to give that a watch when I have the time, looks useful
 
Hi @chazthompson and welcome to the forum 🙂

I’m 15 by the way

What do you currently do for sports? Like during PE?
Hi there!!

Obviously the core PE curriculum changes every half term but it's mostly athletics, rugby, football, tennis, cricket just to name a few.

I'm also studying GCSE PE as well so on top of that more sessions on athletics, HRF, etc etc
 
Hi there!!

Obviously the core PE curriculum changes every half term but it's mostly athletics, rugby, football, tennis, cricket just to name a few.

I'm also studying GCSE PE as well so on top of that more sessions on athletics, HRF, etc etc
I have friends who do GCSE PE and they love it, you’ll find that a fair bit ties in with biology

Is Libre accurate for you?
 
I have friends who do GCSE PE and they love it, you’ll find that a fair bit ties in with biology

Is Libre accurate for you?
Libre is sometimes a bit temperamental, like sometimes I won't feel hypo at all, yet it shows I am, and vice versa, I'll feel hypo but won't be in that range
On the weekend I went to scan only to be told my sensor had ended despite it having 4 days left which was strange - my nurse even said she hadn't seen that before

GCSE PE is brilliant - as someone who is heavily obsessed with football and also partakes in sport for the school I've found it amazing
 
Libre is sometimes a bit temperamental, like sometimes I won't feel hypo at all, yet it shows I am, and vice versa, I'll feel hypo but won't be in that range
On the weekend I went to scan only to be told my sensor had ended despite it having 4 days left which was strange - my nurse even said she hadn't seen that before

GCSE PE is brilliant - as someone who is heavily obsessed with football and also partakes in sport for the school I've found it amazing
People frequently have problems with sensors finishing early and it should be reported to Abbot and they should send a replacement, the NHS shouldn't have to be paying for faulty sensors.
 
Yeah luckily I was given 5 with my last prescription so that wasn't really an issue - I just replaced it - but I can imagine it would've been had it been my last one
 
Yeah luckily I was given 5 with my last prescription so that wasn't really an issue - I just replaced it - but I can imagine it would've been had it been my last one
Abbot should send you a replacement for the faulty one otherwise in the long run it costs the NHS. People should expect the full 14 days from the sensor.
As you say just as well you had plenty as back up.
 
Absolutely - was just annoying because I wasn't home at the time
 
Libre is sometimes a bit temperamental, like sometimes I won't feel hypo at all, yet it shows I am, and vice versa, I'll feel hypo but won't be in that range
Always test with a fingerprick when that happens, quite often Libre gets it wrong (especially if you have been lying on it! - but sometimes apparently at random too).

And welcome to the forum 🙂
 
Libre is sometimes a bit temperamental, like sometimes I won't feel hypo at all, yet it shows I am, and vice versa, I'll feel hypo but won't be in that range
Hello @chazthompson,

There is quite a lot scattered around this forum about Libre and its limitations (hence = tempermental); much of that is collated below. Because this tech is now our permanent "friend" for the foreseeable future I have found it helpful to be aware of the limitations of libre. I realise there is a lot below and you are just starting out with managing your D - so I hope this doesn't overload you. NONE of this was offered by my DSN or any medical professional, most of us found these things out the hard way (ie by trial and learning)!


- Libre may be less accurate for the first couple of days. Many of us insert it up to 48 hours before activating.
- Libre is calibrated to be reasonably accurate for “normal“ readings (between 4 and 10mmol/l). Therefore, always check with a finger prick test before treating a hypo or correcting a high. Abbott also recommend this.
- Libre does not read true blood sugars, which finger pricking does. It reads interstitial fluid just under the skin which lags behind blood sugars: claimed by Abbott as 2.1 mins lag for children and 2.4 mins for adults, more usually c.5mins lag and up to 15 mins. Libre 2 extrapolates the current trend to predict the last 15 minutes. This is fine most of the time. However, if the trend changes, Libre can over-shoot. This is especially important when treating a hypo - always check with a finger prick that your hypo has finished and treat again if still low; Libre will lag and could undershoot, saying you are still low even when recovery is happening - so trust your finger prick result.
- Sometimes a rapid change confuses the sensor algorithm and it stalls, giving a Sensor Error message code 373; try again in 10 mins. That 10 mins can be longer.
- Some Libre sensors are faulty. If you have a sensor which is always off by a couple of mmol/l or more, or reports a fault, report it to Abbott by phone (or e-mail). Invariably they will replace it and may ask you to return the faulty sensor so don’t throw that away.
- If your sensor falls off, Abbott have been known to replace the sensor if the adhesive is poor for your skin. There are several suggestions in this forum for improving adhesion or protecting the sensor.

@chazthompson, in due course there is a lot you will learn about managing your D just from the data that Libre 2 can create. But right now your hospital team will do all of that for you and they will be using that data to periodically tweak your insulin dosing etc - so don't get too bogged down in the reports you can currently see about past trends etc. As a daily "aid" Libre hugely reduces the amount of finger pricking you might otherwise need to do and with alarms (I prefer to call these alerts) set at a useful 'alerting level', eg the low alert at 5 or even 5.6, providing sufficient warning time of going low before that hypo occurs - then daily activity is just easier. Good luck.
 
Hello @chazthompson,

There is quite a lot scattered around this forum about Libre and its limitations (hence = tempermental); much of that is collated below. Because this tech is now our permanent "friend" for the foreseeable future I have found it helpful to be aware of the limitations of libre. I realise there is a lot below and you are just starting out with managing your D - so I hope this doesn't overload you. NONE of this was offered by my DSN or any medical professional, most of us found these things out the hard way (ie by trial and learning)!


- Libre may be less accurate for the first couple of days. Many of us insert it up to 48 hours before activating.
- Libre is calibrated to be reasonably accurate for “normal“ readings (between 4 and 10mmol/l). Therefore, always check with a finger prick test before treating a hypo or correcting a high. Abbott also recommend this.
- Libre does not read true blood sugars, which finger pricking does. It reads interstitial fluid just under the skin which lags behind blood sugars: claimed by Abbott as 2.1 mins lag for children and 2.4 mins for adults, more usually c.5mins lag and up to 15 mins. Libre 2 extrapolates the current trend to predict the last 15 minutes. This is fine most of the time. However, if the trend changes, Libre can over-shoot. This is especially important when treating a hypo - always check with a finger prick that your hypo has finished and treat again if still low; Libre will lag and could undershoot, saying you are still low even when recovery is happening - so trust your finger prick result.
- Sometimes a rapid change confuses the sensor algorithm and it stalls, giving a Sensor Error message code 373; try again in 10 mins. That 10 mins can be longer.
- Some Libre sensors are faulty. If you have a sensor which is always off by a couple of mmol/l or more, or reports a fault, report it to Abbott by phone (or e-mail). Invariably they will replace it and may ask you to return the faulty sensor so don’t throw that away.
- If your sensor falls off, Abbott have been known to replace the sensor if the adhesive is poor for your skin. There are several suggestions in this forum for improving adhesion or protecting the sensor.

@chazthompson, in due course there is a lot you will learn about managing your D just from the data that Libre 2 can create. But right now your hospital team will do all of that for you and they will be using that data to periodically tweak your insulin dosing etc - so don't get too bogged down in the reports you can currently see about past trends etc. As a daily "aid" Libre hugely reduces the amount of finger pricking you might otherwise need to do and with alarms (I prefer to call these alerts) set at a useful 'alerting level', eg the low alert at 5 or even 5.6, providing sufficient warning time of going low before that hypo occurs - then daily activity is just easier. Good luck.
I understand why you feel like that might be a lot of info to take in but to be completely honest that's very helpful. I've been getting used to doing things via trial and error and have probably done things that way nearly more in the past few months than in the rest of my life!
I appreciate the reply, definitely will take note of a lot of what you've said for future reference.
 
Welcome to the forum @chazthompson

Sport and exercise can be different for different people, but generally aerobic exercise (most of the sports you list) tends to increase glucose uptake and reduce BG levels, while anaerobic exercise (heavy weights, sprinting - the kind of high-intensity thing where you don’t breathe during it) can trigger a release of stored glucose in the muscles/liver so can raise BG levels.

If exercise involves raised levels of stress / excitement / anxiety that can also trigger releases of stress hormones like adrenaline and cortisol which may have varying impacts on BG but often raise glucose levels.

Generally I found it helpful to ensure I had access to fast-acting carbs to help stave-off low glucose.

I also found it useful to reduce circulating insulin by setting a temporary basal rate on my insulin pump. Trickier to do on MDI, especially with Lantus that isn’t very responsive to dose change, but long-term you might consider Levemir which is usually taken 2x a day, and reacts quickly to dose changes - meaning you could take a lower daytime basal dose on ‘sports days’.

The former admin on the forum @Northerner always recommended the Diabetic Athlete's Handbook which he said was very useful for explaining how to deal with various types of exercise and explained the physical processes very well.

Good luck! And let us know how you get on 🙂
 
I wasn't easily able to reduce my insulin when I was at school (and at uni) and playing sport (rugby and cricket mainly) as I took two(+) injections a day (DIY Soluble + Isophane). I would do overall reductions, but the morning one was troublesome to get right. I always ran fairly low end, so it worked out, I just had to stuff loads of short acting carbs before matches and then keep some dextrose tabs on the side line (or in your pocket, though these hurt when tackled!). I would hope that life should be easier for you now with newer insulins.

I reduce morning basal if I'm going to be doing lots of exercise during the day, I also skip bolus for smallish meals immediately before exercise, or halve it if it's a proper meal. I'd never want more than 2U of Novorapid on board before I start doing anything more than say an hour's worth of exercise, unless I start high. It's a learning experience.

If you have specific questions, there's a section in the forum on Exercise, it would probably be easiest to start a new thread there (which helps keep things together for other people who might be interested).

I'd suggest finding an app that lets you see your CGM data alongside your insulin and carb intake, no idea if Libre does this, but certainly XDrip+ does - there are others, probably worth a thread on its own with some screenshots. It is so much easier to understand the links between the different factors being able to see the data on a graph (I am an engineer though, but I assume it probably works for everyone else too 😉).

I calibrate the libre(2) because I've had cases where it's been giving figures that are much lower than my actual blood glucose (and I noticed because I felt low, but from a finger prick demonstrably wasn't - bit of a wake up call having thought I'd had a really good week). Using an app with calibration I can therefore sometimes get away with keeping a sensor on that I would otherwise need to send back for replacement (to save the faff and another hole in your arm). There does come a point when no matter what app you use for calibration, the offset is too large for the calibration to account for, at which point do 3 spaced out comparison tests with the libre reader + finger prick (as required by Abbott) and get in touch with them for a replacement.
 
Status
Not open for further replies.
Back
Top