hello peeps!!

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shelleyboo

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Type 1
hey guys..new to site although been diabetic since 1986.you would think id have got to grips with it by now but my control is terrible..its not that im delibratly not trying to look after myself,i try my hardest but just cant control it which has resulted in me now having quite bad diabetic retinopathy and have frequent bleeds behind the eyes...very scary indeed.will be great to have other people to chat to on here.all the best to you all!!!🙂
 
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Welcome Shelly.................

Even after many years diabetes can still cause problems..........

What insulin's are you on?

Can you identify what your problem areas may be?
 
Hi shellyboo. Welcome 🙂

Hopefully you'll pick up enough info from here to get better control. Lots of us have improved since joining, so it can be done.🙂

Rob
 
Welcome to the forums Shellyboo 🙂

Another Chelmsford area resident on the forums 😛
 
Hi Shelleyboo, welcome to the forum 🙂 Sorry to hear about the retinopathy :( We have quite a few long-term diagnosed people here who can empathise with your situation. Hopefully, also you can pick up some good information by sharing your experiences with others here - everyone is really friendly, so don't be afraid to ask anything! Even though you have been diagnosed a long time you're not expected to know everything, and often getting a fresh perspective on things can really help!

What sort of insulin regime are you on?
 
Hi Shelleyboo and a warm welcome to the forum
 
thanks for the replys...its so nice to chat with other with the same problems...iv not known any other diabetics before...even though i know theres lots of us out there!!!!im on humilin m3...but i seem to have to take hidious amounts of it to take care of any food i eat which then results in a having a huge amount of slow acting insulin working through the night and then i end up hypoing...i asked my gp about taking smaller amounts of faster acting insulin whenever i eat but it seems to fall on deaf ears...they were suposed to send me an apointment to see a diabetic specialist but never heard from then either :(
 
You MUST ask for a referral to a diabetes consultant-led clinic Shelleyboo - your GP is probably much more used to dealing with Type 2 diabetics and Type 1 can need a whole lot of different knowledge. If you were a Type 1 without problems then maybe you wouldn't need to see a consultant quite so much, but given that you have bad retinopathy and great difficulty controlling your levels then you need the advice of a diabetes team. Do it tomorrow - book an appointment with your GP and get the ball rolling so you can make 2012 a GOOD year for your diabetes control! 🙂

Have you ever done a carb-counting course or ever been on any different insulins?
 
no,neither.been on the same insulin since i was 7....im 32 now!i know its not working for me,just need the pro's to listen to me!what is the carb counting course...?would be very willing to go 🙂
 
Mark T said:
Welcome to the forums Shellyboo 🙂

Another Chelmsford area resident on the forums 😛
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theres a few of us then????😛 iv never met another diabetic in the 25 years iv been one!
 
shelleyboo said:
no,neither.been on the same insulin since i was 7....im 32 now!i know its not working for me,just need the pro's to listen to me!what is the carb counting course...?would be very willing to go 🙂
Click to expand...

Ooh! You definitely need to see a specialist! It sounds like you have been kept on an old regime that hasn't/doesn't work for you, has left you suffering the effects of poor control and been left to get on with it. Every person with diabetes should get access to an education course so that they can learn how to manage their diabetes well. The main ones are DAFNE and BERTIE, but there may be something different in your area. Your knowledge certainly needs updating. Do you know what your last HbA1c blood test was, and do you test your blood regularly with fingerprick tests? If so, how often a day and what are the numbers like?

I would highly recommend getting a copy of Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. It will explain everything you need to know about living with Type 1. Well, maybe not everything, but for those things it doesn't, you have us! 🙂
 
Hi Shelley

To be absolutely honest, love - I'm appalled both that you are on such an 'old fashioned' insulin in this day and age and that your GP is ignoring your attempts to help yourself!

What Northie has said is correct - an awful lot of GP's know just about diddly about Type 1 because they don't see all that many in comparison to T2's. (and some of em know about the same about T2 but that's another subject in your case LOL) - you really HAVE got to get to see someone who knows what they are doing very soon.

There seems no reason whatever - especially as you seem willing to take more injections - why you are not on a far more modern pair of insulins - a slow one and a fast one separately which would enable you to match your insulin dosages to a) your background 'basal' requirements(slow acting one) and b) fast acting 'bolus' insulin that can be tailored to exactly what you eat.

This is known as 'basal/bolus' or 'MDI' (multiple daily injections).

All administered by pen - either prefilled ones or a sturdier re-usable pen used with 3ml cartridges.

I'm flipping fuming on your behalf! {{{Hugs}}}
 
shelleyboo said:
theres a few of us then????😛 iv never met another diabetic in the 25 years iv been one!
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Well there is enough in the town that there is a local Diabetes UK group - not that I've actually been to a meeting yet.

There is also another in these forums that I know to be in the town.
 
I'd agree that you absolutely must get a change of insulin regimen. I would suggest that leaving you on a regimen which is not working for this amount of time constitutes negligence, And the premixed insulin I fear it not fit for purpose for most people- far too much insulin overnight and not enough at breakfast and evening meal. If you didn't want basal bolus another option would be twice daily intermediate and fast acting insulin but mixed by yourself in a syringe so you could alter to proportions of each
 
It is unforgiveable for a GP to keep you on humulin when he can see you're having problems. They should have their bums kicked for it.😡

Agree with all that's been said. You're not alone in being alone, as they say. I spent 32 years without seeking out fellow diabetics and have never looked back since joining the forum. I now know pretty much all there is to know for me to tell the doctors what I want rather than just accept what they tell me.

Be empowered !! :D

Rob
 
Welcome to the forums Shelleyboo! Sounds like you're getting some great advice 🙂
 
trophywench said:
Hi Shelley

To be absolutely honest, love - I'm appalled both that you are on such an 'old fashioned' insulin in this day and age and that your GP is ignoring your attempts to help yourself!

What Northie has said is correct - an awful lot of GP's know just about diddly about Type 1 because they don't see all that many in comparison to T2's. (and some of em know about the same about T2 but that's another subject in your case LOL) - you really HAVE got to get to see someone who knows what they are doing very soon.

There seems no reason whatever - especially as you seem willing to take more injections - why you are not on a far more modern pair of insulins - a slow one and a fast one separately which would enable you to match your insulin dosages to a) your background 'basal' requirements(slow acting one) and b) fast acting 'bolus' insulin that can be tailored to exactly what you eat.

This is known as 'basal/bolus' or 'MDI' (multiple daily injections).

All administered by pen - either prefilled ones or a sturdier re-usable pen used with 3ml cartridges.

I'm flipping fuming on your behalf! {{{Hugs}}}
Click to expand...

thankyou for your reply!yes thats the kind of insulin i think i should be on,when i teold the doc im running too high all the time he just said up my m3 dose by a couple of units!which just dosnt work as it then drags my sugar levels down in the night.i will have to get a bit more firm with those doctors!!!i dont want to loose my eyesight!!:( thanks again.
 
Northerner said:
Ooh! You definitely need to see a specialist! It sounds like you have been kept on an old regime that hasn't/doesn't work for you, has left you suffering the effects of poor control and been left to get on with it. Every person with diabetes should get access to an education course so that they can learn how to manage their diabetes well. The main ones are DAFNE and BERTIE, but there may be something different in your area. Your knowledge certainly needs updating. Do you know what your last HbA1c blood test was, and do you test your blood regularly with fingerprick tests? If so, how often a day and what are the numbers like?

I would highly recommend getting a copy of Type 1 Diabetes in Children, Adolescents and Young Adults by Ragnar Hanas. It will explain everything you need to know about living with Type 1. Well, maybe not everything, but for those things it doesn't, you have us! 🙂
Click to expand...

yes i had my hba1c about a month ago,was 9.something.i do test 3-4 times and they are genrally between 8-17,dont seem to matter how much m3 i take it just dosnt seem to touch me.
 
Robster65 said:
It is unforgiveable for a GP to keep you on humulin when he can see you're having problems. They should have their bums kicked for it.😡

Agree with all that's been said. You're not alone in being alone, as they say. I spent 32 years without seeking out fellow diabetics and have never looked back since joining the forum. I now know pretty much all there is to know for me to tell the doctors what I want rather than just accept what they tell me.

Be empowered !! :D

Rob
Click to expand...

thanks rob,i shall have to start being a bit more forcefull!!!(or change my doctor!lol!)🙂
 
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