Hello! - Newbie

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Muddybird_26

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Type 1
Hi folks

I have had T1 for 12 years, on insulin pump with the lovely transmitter / Sensor thingy.
I also have Addisons Disease (22years), Hypothyroidism, Pernicious Anaemia and to top it off Menopause has hit along with a ton of migraines. My T1 is just loving the hormonal fluctuations
I have just had a massive review with a DSN after being missed for 2 years - (backlog due to pandemic, does this sound familiar?).
There is a possibility of going onto Fiasp insulin and I can see that @Pumper_Sue has a lot of experience with using Fiasp on a pump.

Thanks for reading my blurb
 
Welcome @Muddybird_26 🙂 What a lot you’re coping with! Which sensor have you got? Are the hormonal fluctuations causing hypos?
 
Welcome to the forum @Muddybird_26

Glad you have found us!

@Pumper_Sue also has experience of Addisons, and is adept at juggling multiple health conditions at once, with all the complexity that can involve.

We have a few folks on Fiasp who find it works really well for them, and some others who tried it, and decided it wasn’t for them.

Great to hear you are on a hybrid closed loop - how are you finding it?
 
Inka said:
Welcome @Muddybird_26 🙂 What a lot you’re coping with! Which sensor have you got? Are the hormonal fluctuations causing hypos?
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I have the Medtronic 780g closed loop system. The sensor I'm using is Medtronic's Guardian 4.

No, the hormonal fluctuations are the other way - High as a kite!!! Drives me daft as I have found myself tweaking the carb ratios, sometimes as much as every week.

Thank you for the welcome @Inka
 
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Ah, what a pain for you! My blood sugar went both high and low before I went on HRT for the perimenopause. It’s smoothed things out, I think.

I think @SB2015 uses the Medtronic loop so she might have some useful comments. I have a pump (Dana i) and a Dexcom G7 but don’t loop so I know nothing about how loops cope with hormonally driven erratic blood sugar.
 
everydayupsanddowns said:
Welcome to the forum @Muddybird_26

Glad you have found us!

@Pumper_Sue also has experience of Addisons, and is adept at juggling multiple health conditions at once, with all the complexity that can involve.

We have a few folks on Fiasp who find it works really well for them, and some others who tried it, and decided it wasn’t for them.

Great to hear you are on a hybrid closed loop - how are you finding it?
Click to expand...
Thank you for the welcome @everydayupsanddowns, glad to be here

I saw that @Pumper_Sue has Addison's experience along with T1.
Yes, Juggling is the word for it.

From reading the comments (I had a quick look and will be spending more time next week to read posts) that there were a few that found Fiasp initially good but then blood sugars started to rise but @Pumper_Sue seems to have worked through it. I just would like feedback so that I know what I am going into before jumping in. I've been on Novorapid from the start and while slow it is stable.

Closed loop system is fantastic when working well and awful when not. On occasion I suffer from pump overwhelm. It is hard work and there have been times where I've considered going back to good old fashioned pen injection, there are pluses and minuses. What keeps me on it is being told by the DSN that my results are great. January my time in range for the month was 95%. I have some tweaks to do, due to the menopause I've developed a not so good habit of not trusting the pump. I tend to step in when I see high's and ghost carb, I'm not giving the pump a chance to do the auto corrections.

Sometimes the pump / app gives too much information.
 
Inka said:
Ah, what a pain for you! My blood sugar went both high and low before I went on HRT for the perimenopause. It’s smoothed things out, I think.

I think @SB2015 uses the Medtronic loop so she might have some useful comments. I have a pump (Dana i) and a Dexcom G7 but don’t loop so I know nothing about how loops cope with hormonally driven erratic blood sugar.
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Yes, I was wondering about HRT. Whether it would calm the blood sugars down and make life easier, hope so.

Great, thanks I'll check @SB2015 posts about closed loop systems. Even though I've been on it for around 18 months I have trust issues in letting it do its own thing.
 
Muddybird_26 said:
Yes, I was wondering about HRT. Whether it would calm the blood sugars down and make life easier, hope so.

Great, thanks I'll check @SB2015 posts about closed loop systems. Even though I've been on it for around 18 months I have trust issues in letting it do its own thing.
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Hi @Muddybird_26 . Like you I am using the 780 in closed loop and have used it for over three years now. The switch to Guardian 4 has been great, with greater reliability, and only one finger prick in a week for callibration.

When it works it is brilliant. It took me a long while to trust it at the start, as I was very much micro managing my diabetes. Now I enjoy sleeping at night, and have plenty of time when I just forget about it until the next meal.

When the sensors are not happy they will play it safe and shuck me back into manual until it settles, or I replace the sensor. At those times I realise just how much better it is for me using the looping. My TIR is so much better, and when I am away it helps with unknown carbs or the inability to pre-bolus.

There is a pinned thread in the pumping section for 780 users. That has lots of tips and wrinkles in it which may well help. Feel free to add in any questions as these help others too.

Let us know how you get on.
 
SB2015 said:
Hi @Muddybird_26 . Like you I am using the 780 in closed loop and have used it for over three years now. The switch to Guardian 4 has been great, with greater reliability, and only one finger prick in a week for callibration.

When it works it is brilliant. It took me a long while to trust it at the start, as I was very much micro managing my diabetes. Now I enjoy sleeping at night, and have plenty of time when I just forget about it until the next meal.

When the sensors are not happy they will play it safe and shuck me back into manual until it settles, or I replace the sensor. At those times I realise just how much better it is for me using the looping. My TIR is so much better, and when I am away it helps with unknown carbs or the inability to pre-bolus.

There is a pinned thread in the pumping section for 780 users. That has lots of tips and wrinkles in it which may well help. Feel free to add in any questions as these help others too.

Let us know how you get on.
Click to expand...
Hello, great to meet a fellow 780g Medtronic pumper!
I'm currently having trust issues with mine, I'm not letting do it's job so I'm having to stand back and not interfere!

I have had issues with the transmitter as the sensor regularly tries to update itself and runs out after 4 or 6 days usually. Just recently realised that I had not had a replacement transmitter and mine is out of warranty by nearly a year. A new one is winging its way to me as I type.

Thank you for the pointer to the pumping section for 780g users, I will go and check that out.
 
Keep any questions that arise coming.
 
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