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Hello: new to this forum although I've been Type 1 since 1970!

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ellietj

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Hello 🙂 I thought it was time to make some time for myself, having led a "busy-busy" life and lived with Type 1 for over 50 years now. So I have finally subscribed to this forum. I'm new to a pump, and have an Omnipod, used with Fiasp. The pod is great. Perhaps less so the Fiasp. I'll make a separate post to get peoples' views under that category.
 
Welcome @ellietj 🙂 More than 50 years is very impressive! I’ve had Type 1 for a couple of decades less than you, and a pump for approx 17 of those years. Fiasp seems to work for some but not others. What were you on before?
 
Welcome @ellietj 🙂 More than 50 years is very impressive! I’ve had Type 1 for a couple of decades less than you, and a pump for approx 17 of those years. Fiasp seems to work for some but not others. What were you on before?
Hi. Thanks for asking. I was using Humalog, with Levemir as my long-acting. I've used more insulins than I can remember over the years, mostly with reasonable control, but finally moved on to a pump because I had become a lot more flaky, both during the day and overnight, sometimes but not in a predictable way. Now, with the Fiasp, things seem to be under much better control, but I just generally don't feel on top form: tired and/or a bit sad (!), which is not like me at all. I felt much the same way when I was first prescribed statins, which I took for a couple of weeks before rejecting them as I was exhausted the whole time.
 
Could you have a trial of Humalog in your pump and see if there’s any improvement?
 
Welcome to the forum Ellietj.
 
Hello 🙂 I thought it was time to make some time for myself, having led a "busy-busy" life and lived with Type 1 for over 50 years now. So I have finally subscribed to this forum. I'm new to a pump, and have an Omnipod, used with Fiasp. The pod is great. Perhaps less so the Fiasp. I'll make a separate post to get peoples' views under that category.
Hello and welcome to the forum.
Have a look in the pump forum as someone has stated that Fiasp should not be used in a pod, so worth a read.

I use Fiasp with my pump and have no issues with it.
 
Could you have a trial of Humalog in your pump and see if there’s any improvement?
Well, I will see what my diabetes clinic thinks I could try next, to see what difference it makes. Thanks 🙂
 
Hello and welcome to the forum.
Have a look in the pump forum as someone has stated that Fiasp should not be used in a pod, so worth a read.

I use Fiasp with my pump and have no issues with it.
Thanks. I saw this and will follow it up. I did search and couldn't see any reason given as to why, though.
 
Two years longer than me! Never used Fiasp myself so can't comment, but there again I'm a bit welded to Novorapid having used it since ?1998 and not having had any reason to swap it either when still on MDI or in the succession of pumps I've used since 2011.
 
Thanks. I saw this and will follow it up. I did search and couldn't see any reason given as to why, though.

Welcome to the forum @ellietj

Well done on your 50 years! We have a member @AJLang who recently reached that milestone, plus some others like @Pumper_Sue who are a few years ahead of you! Did you get your DUK medal?

Fiasp is NovoRapid with something added to speed it up, so I guess you could try plain ole NR if Fiasp isn’t suiting you? My DSN was wary of Humalog which seemed to have a reputation for crystallising in pump tubing (not that you have tubing to worry about with a pod!) so I was switched back to NR from humalog when I started on a pump.
 
There are other insulins to consider. I have been successfully using Apidra in my pump for nearly 8 years. It’s a little bit faster than Novorapid and lasts about 3 and a half hours rather than the four and a half that Novorapid often lasts. When I was on MDI I had a period on Humalog. It seemed to last more than 5 hours for me and had a kick in the tail that gave me a hypo quite often. We are all different, what suits one may not suit another.
 
Welcome to the forum @ellietj

Well done on your 50 years! We have a member @AJLang who recently reached that milestone, plus some others like @Pumper_Sue who are a few years ahead of you! Did you get your DUK medal?

Fiasp is NovoRapid with something added to speed it up, so I guess you could try plain ole NR if Fiasp isn’t suiting you? My DSN was wary of Humalog which seemed to have a reputation for crystallising in pump tubing (not that you have tubing to worry about with a pod!) so I was switched back to NR from humalog when I started on a pump.
I see I've learned something already! I used to use Novorapid, and before that Actrapid (possibly in the other order, I don't remember now), and I do know that whenever I have been told to change to a different insulin it was because it was beginning not to suit me for one reason or another. The liberating thing about Actrapid, then Humalog, was its fast-acting nature, because it seems rarely to be convenient to have to inject and wait for ages. The wonderful thing about having the pod is that I can now feel free to have a snack if I want to and "just" have a bolus to take care of it. I've already noticed in the forum that several people call Novorapid "sluggish" and "not-so-fast", which is less encouraging, although if these insulins all work better for some than others, I guess it may be down to trial and error.
Did I get my 50-year medal? No, but I really should. Thanks for the reminder 🙂
 
Two years longer than me! Never used Fiasp myself so can't comment, but there again I'm a bit welded to Novorapid having used it since ?1998 and not having had any reason to swap it either when still on MDI or in the succession of pumps I've used since 2011.
Good to know that there's a "club"! Also very interesting to see how many insulins are being mentioned here that I have never had any reason to have heard of. I suppose that once you get into looking at forum discussions, these names will crop up and if you don't, they won't!
 
Could you have a trial of Humalog in your pump and see if there’s any improvement?
I expect so. My next job is to tie down my diabetes nurse, which is easier said than done. Thank you.
 
There are other insulins to consider. I have been successfully using Apidra in my pump for nearly 8 years. It’s a little bit faster than Novorapid and lasts about 3 and a half hours rather than the four and a half that Novorapid often lasts. When I was on MDI I had a period on Humalog. It seemed to last more than 5 hours for me and had a kick in the tail that gave me a hypo quite often. We are all different, what suits one may not suit another.
Thanks. We really are all different by the sound of it. This must be a challenge in itself for the diabetes teams to manage. I've moved house three times in the last 20 years and have noticed that each clinic seems to have products that "they" use. I'm very pleased to have been offered the pod, which is only a minor inconvenience when it comes to wearing it. I was given a combo pump about 4 years ago and found it worse than useless (for me) as the applicator for the cannula failed as often as it worked and then I seemed not to be getting the insulin even though the boluses were shown as being given. I had too many readings of HI or 2.6 to feel I dared ever go out anywhere. And then there was "what to do with the tube?". Now with the pod I feel freeeee!
 
Hello and welcome @ellietj 🙂

Congratulations on 50+ years with Type 1 🙂 Good news the Omnipod has given you pump freedom. I've only used Humalog with my pump which seems to do the trick if my cannulas are working!
 
I have to say - my first Combo cannula applicator did fail after about 4 years constant use. Just swore, rang em up, sent me a replacement, meanwhile inserted them by hand. Pump always worked fine. Bit of a design and function dinosaur these days of course, but just plods along regardless ...... When funded by a CCG who does NOT believe in the necessity of funding CGM unless consultant can make a VERY special case for the patient (who knows what would make a person a special case - not me certainly) but they did, last year some time, agree to fund Libre. Then Libre 2, in January 2021. The CCG controlling @Pattidevans purse strings, are yet to approve Libre 2. Fascinating in some ways as they are faster than a speeding bullet approving expenditure on a lot of new treatments for prostate cancer - very very quick off the mark with those. There again - you and I aren't going to drop dead quickly from T1, are we!
 
The CCG controlling @Pattidevans purse strings, are yet to approve Libre 2. Fascinating in some ways as they are faster than a speeding bullet approving expenditure on a lot of new treatments for prostate cancer - very very quick off the mark with those. There again - you and I aren't going to drop dead quickly from T1, are we!
I've a clinic appointment in July so am hoping to get Libre2. I can't see why they haven't funded it as it's the same price as Libre 1. Yes, we are grateful for the fast attention hubby got for his prostate.

FWIW I've had the Combo appicator now for close on 8 years and it's never failed me yet. Fingers crossed.
 
I've a clinic appointment in July so am hoping to get Libre2. I can't see why they haven't funded it as it's the same price as Libre 1. Yes, we are grateful for the fast attention hubby got for his prostate.

FWIW I've had the Combo appicator now for close on 8 years and it's never failed me yet. Fingers crossed.
I can't see the logic of their not wanting people to swop from Libre 1 to Libre 2. Libre 2 is hardly any different from Libre 1 except that it has an alarm (it's optional) so if your blood glucose level falls below a pre-programmed level, it gives a loud warning. This has been really helpful for me over the past few months as i tend not to notice if I am going low. In the middle of the night the alarm is even more of a bonus as you are awoken at the point it has dropped (well, ten minutes' leeway), which means you are less likely to wake up with a really thick head the next morning.
 
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