Hello need help please

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Pam123

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Relationship to Diabetes
Type 2
I am at my wits end, I was in hospital for 3 weeks with several infections from Sepsis, E coli and a kidney infection, they also diagnosed me with T2 diabetes,I was more or less out of it for the first week, and wasn’t eating much at all but began slowly eating more, they put me on insulin 10units a day to begin with then 12 units when i left I’m on Lantis

Ive been home now for 3 weeks and due to mobility problems I’m having to learn to walk again which is slowly improving, 1 don’t have a follow up appointment with the hospital until the 9 of October,ive phoned several times for help but had no help whatsoever, the only help I’ve had by phone is my GP surgery who also has no appointments I’ve been told its normal to be on a low dose to begin with and advised to up it by 2 units every 2 days which I have done. I am now on 18 units a day and my readings are not changing mostly always over 10 fasting, 4 to 5 hours before a meal around 13 to 15. don’t know what to do next.
 
Sorry to hear you’ve been so ill. I hope you’re on the road to recovery now.

Lantus is a slow/background insulin @Pam123 It might be that you need an additional fast/mealtime insulin. Have your readings not come down at all? 12 units isn’t a massive dose so it might just be you need a little more.

Edited to add - are you on any medications that could be affecting your blood sugar?
 
Last edited:
thanks i am stating to feel better now, the levels dropped a little to begin with, but then increased, i am now on 18 units which i have increased over the last week every 2 days on the advice of the pharmacist at our GP.

The only other medication i take is Thyroxine
 
Perhaps the increase was because you were able to eat more? I know your blood sugar is a little high at the moment but even so, always keep hypo treatments on you now you’re on insulin - things like Dextro glucose tablets or jelly babies - just in case you drop low.

I completely understand your frustration and concern. It’s worrying when you seem to have been left to your own devices. All I can say is that what you were told is correct. It is normal to start on less insulin than they think you’ll need and then gradually increase the dose. This is for safety reasons.

There are a number of Type 2s here on insulin so you’re not alone. Ask anything you want. Nothing is too trivial or ‘silly’.
 
Gosh sorry to hear about the difficult time you’ve been having @Pam123

Glucose levels can be raised when recovering from illness or injury, so it may be that some of the stubbornness in raised glucose you are seeing is related to the hormone response to recovery from infection and trauma?

It will be frustrating gradually titrating your doses upwards until they become effective - but as @Inka says, it’s wise and much less risky to proceed cautiously.

Perhaps give it a week to see f things start moving in the right direction? And then perhaps go back to your pharmacist / nurse / GP to ask about mealtime insulin or their advice on why it isn't working yet?
 
Hi quick update and a few question please,8 days on I am now on 24 units, fasting reading around 9 and before meals 10.1, i saw the to the nurse last friday who asked me to only record reading before meals, which ive done for the last 5 days, my HB1c was 84 when i was in hospitall and was re tested last week and its now 57, not really sure what it means but I am assuming that good in 6 weeks?. I don't see the nurse until the 10th October but she did say they might see about mealtime insulin but se didn't seam concerned that the levels are more of less the same before each meal or slightly more. I thought they were supposed to drop, despite questioning them i dont seam to be getting anywhere. Yesterday i felt weird dizzy and blurred vision and a bad headache this was about 2 hours after my lunch so i checked my bloods which was 15.9 i pancaked, because my machine had a K at the side of the reading and i wasn't given a machine to check, so called at the doctors for advice only to be told they were to busy and the on call doc would phone back later, but he didnt , i drank loads of water and it came down to 9.5 within 2 hours, I feel stupid bothering the doctors but i have no idea apart from how to deal with high blood sugars sorry in advance for rambling
 
Hi quick update and a few question please,8 days on I am now on 24 units, fasting reading around 9 and before meals 10.1, i saw the to the nurse last friday who asked me to only record reading before meals, which ive done for the last 5 days, my HB1c was 84 when i was in hospitall and was re tested last week and its now 57, not really sure what it means but I am assuming that good in 6 weeks?. I don't see the nurse until the 10th October but she did say they might see about mealtime insulin but se didn't seam concerned that the levels are more of less the same before each meal or slightly more. I thought they were supposed to drop, despite questioning them i dont seam to be getting anywhere. Yesterday i felt weird dizzy and blurred vision and a bad headache this was about 2 hours after my lunch so i checked my bloods which was 15.9 i pancaked, because my machine had a K at the side of the reading and i wasn't given a machine to check, so called at the doctors for advice only to be told they were to busy and the on call doc would phone back later, but he didnt , i drank loads of water and it came down to 9.5 within 2 hours, I feel stupid bothering the doctors but i have no idea apart from how to deal with high blood sugars sorry in advance for rambling
 
Thanks for the update @Pam123

That’s a good reduction in your HbA1c, and suggests the insulin is helping. It is better to reduce A1c gradually in steps, as too rapid a drop can sometimes cause temporary damage to the fine blood vessels in the eyes and to nerve endings. Has your GP or nurse suggested an HbA1c that they would like you to be aiming for? This should be individualised, taking your personal circumstances into consideration, but may be around 48mmol/mol, so just a little lower than your current one.

The Lantus you are on is designed to release gradually over 24 hours, so will be providing background help to the insulin you are producing yourself. It‘s not really designed to work directly on meals, but just support your own insulin production.

It might be helpful to start keeping a food diary for a week or two? Note down everything you eat and drink along with an estimate of the total carbohydrate content (not just ‘of which sugars’) in your meals and snacks. This might help you spot if it is specific meals / sources of carbs, or just the overall ‘carb load’ of a meal which may be leading to any higher readings.

The K warning will have been for ketones (drinking plenty of water was a good idea). This will just have been triggered by a level above 13. Ketone are mostly problematic in the absence of insulin I think. If you’d like a basic, but affordable way to check if you have any ketones you can pick up urine ketostix at a pharmacy for about £5 a pot. Alternatively, your surgery may provide them if you discuss your concerns with your GP?
 
Hi @Pam123 ,

Thank you for sharing your update and concerns. It's great that you're actively monitoring your blood sugar levels, and the improvement in your HbA1c is indeed a positive sign.

However, experiencing symptoms like dizziness, blurred vision, and a headache can be concerning, especially with a spike in blood sugar levels. While it's essential to manage your condition, your well-being is the top priority.

Considering your recent symptoms and the challenges you've faced, it would be strongly advisable to contact our Helpline at 0345 123 2399. The helpline is here to provide support and guidance, particularly in situations where you might be feeling unsure or experiencing difficulties in managing your diabetes.

Don't hesitate to reach out, as your health is crucial. The helpline team is experienced in assisting individuals with diabetes and can provide valuable advice tailored to your situation. They can also address any questions you may have regarding your blood sugar readings and the potential need for mealtime insulin.

Remember, seeking assistance is never a bother when it comes to your health. It's always better to reach out for guidance and ensure that you receive the support you need. Take care, and we hope you feel better soon.
 
Hello @Pam123.

In a different thread you remarked:
4.4 for me alarm went of while eating my dinner 3.9 so ended up drinking a small glass of Coke didn't fancy jelly babies half way through a salmon salad havn't had Coke for 6 months didn't Seam to work but not sure how long I should take about 30 mins rose to 5 so silly me had a small slice of chocolate cake and it shot up slowerly to 11.6 at 10pm now its 7.6 no idea why this has happened

I'm assuming the following and hope they are about right:
You are still on Lantus now taking 32 units having steadily increased from your original 12 units;​
You have Libre 2 CGM and I've seen that you check Libre readings with a finger prick test when your CGM readings are low or high. [Well done by the way in getting to grips with this D hassle!]​
You are still taking thyroxine for your very longstanding thyroid problem.​
You still have some mobility problems, so the idea of a 15+ minute walk after a meal is inappropriate for you.​
I have some observations that I think might help you in the future. I have no medical qualifications so my comments have absolutely no medical standing, they are just things that flashed through my mind as I read your recent comment above, (in my italics).

Firstly full Coke is rated at 10.6 gms of carbs per 100ml, so that 200ml was an extra 21 gms of carbs, which seems to me quite a lot for someone who is T2. That T2 diagnosis almost by definition means your body has a high level of natural resistance to insulin, which makes it difficult for you to process glucose in your blood anyway; so adding another large gulp of 21 gms won't be helping your D management.

If while eating your dinner and you get an alarm for 3.9, there would normally be no need for you to react at all. While you do have Lantus in place as your background insulin (which could possibly make you vulnerable to a future hypo) with your dinner already started a future possible better decision is to just keep eating and get a few mouthfuls of higher carb foods eaten, such as potatoes. If the whole salmon salad meal was very low carb anyway - then the Coke would be a possible choice, but I think better to be a smaller amount, say 100ml.

However once some food is already in your digestive system the efficiency of a high GI food (such as coke) is inevitably diluted by what is already being digested. Yet the extra carbs and thus extra glucose will still need to be managed out of your BG; the high GI coke won't seem like being a high GI food to your metabolism because it is now diluted. The strong advice for those of us on both basal and bolus is to NOT start a meal if already very close to the hypo zone, but to take our normal hypo treatment [15gms high GI carb, wait 15 mins, test for signs of response and treat again if not yet responding]. Only start that meal once response is clearly happening - which these days (thanks to CGM) the trend arrows quickly show response is happening (or not yet). So once already eating keep eating and help by choosing higher GI carbs from off your plate. A couple of savioury crackers would also work instead of Coke.

Strictly hypo is actually 3.5mmol/L and the figure of 4 is
routinely used to provide a small safety margin. Even at 3.5 most people might only feel mildish hypo symptoms. My Dexcom G7 CGM has an unchangeable fixed Urgent Low alarm of 3.1, unchangeable to stop me from trying to go lower (!) and to make me really take note and do something about my low (which is fair enough I suppose).

However 3.1, 3.5, or 4.4 is, I suggest, a digression here in my thoughts because I think your alarm should be at 5.0 or even 5.6 (the maximum for Libre 2) and that you should not even consider it as an Alarm but an "Alert" because in practice at 4.4 that is already too low to guarantee any response will always keep you above 4 anyway. And why live by alarms when Alerts are a gentler and less stressful way of life?

Given your limited mobility as well, unless you always have snacks at your finger tips at all times of the day and night to allow you to respond to a low alert, ie in the lower 4s, then you just need that alert a distinct bit earlier. Then your response won't always need to be search for the dextrose, Coke or Jelly Babies - but first a timely look at the trend on your CGM. Then assess and if the change is very gentle with a horizontal arrow you have choices. If the next meal is imminent - do nothing; just eat that next meal. Or perhaps a single boiled sweet or a toffee will be enough to just stop that gentle change for 30+ mins (great excuse for the toffee!). If there is a more obvious fall going on then one plain biscuit (or 1/2 a fancy Cookie) at c.6-7 gms carbs might well be enough; continue to monitor and have a second small biscuit (or the other half cookie). The bottom line here is stay well away from the 4s, better in the 5-6s and make optimum use of your CGM to monitor and learn about what is great for you to get small steady responses to. Certainly not a 21 carb gm glass of Coke, I suggest.

The International Conference that looked at Time in Range [from 4-10 mmol/L] for people using CGM recommended less than 4% time below 4, whereas up to 25% above 10 was acceptable. The harsh reality for our age group is that time below 4 worsens anyone's vulnerability to dementia and alzheimers and we already have that threat ahead of us just because of our age. So I think (again I'm not medically qualified) we should do our best to stay in a safer zone away from the 4s completely.

My last thought was that because you have now successfully made inroads into your D management (again really well done) and increased from your original 12 units to 32 units of Lantus .... perhaps you have gone 1 or 2 units too far. Consider this: is it possible that not only have you done well with steadily yet safely increasing your Lantus but have you also steadily made changes in your eating habits and been quietly reducing your carb intake? This wouldn't be surprising. You were diagnosed as T2 after a dreadful period of illness last year, you now have T2 ingrained into your mind and reminded daily with the Lantus injections, so are you just routinely choosing lower carb options?

I think you could consider a small Lantus reduction or a more relaxed menu selection - but if I may suggest DO NOT change both things at the same time. If your meal choices are now in some sort of harmony with your husband's needs, then leave those alone and slightly scale down your Lantus. That way the odd biscuit or sweet remains as a perfectly good way (and treat) for nudging your BG up when necessary - provided your alarms are now Alerts at up to 5.6.

Anyway some things to at least consider as a follow on from when you first joined this forum. Best wishes.
 
Hello @Pam123.

In a different thread you remarked:
4.4 for me alarm went of while eating my dinner 3.9 so ended up drinking a small glass of Coke didn't fancy jelly babies half way through a salmon salad havn't had Coke for 6 months didn't Seam to work but not sure how long I should take about 30 mins rose to 5 so silly me had a small slice of chocolate cake and it shot up slowerly to 11.6 at 10pm now its 7.6 no idea why this has happened

I'm assuming the following and hope they are about right:
You are still on Lantus now taking 32 units having steadily increased from your original 12 units;​
You have Libre 2 CGM and I've seen that you check Libre readings with a finger prick test when your CGM readings are low or high. [Well done by the way in getting to grips with this D hassle!]​
You are still taking thyroxine for your very longstanding thyroid problem.​
You still have some mobility problems, so the idea of a 15+ minute walk after a meal is inappropriate for you.​
I have some observations that I think might help you in the future. I have no medical qualifications so my comments have absolutely no medical standing, they are just things that flashed through my mind as I read your recent comment above, (in my italics).

Firstly full Coke is rated at 10.6 gms of carbs per 100ml, so that 200ml was an extra 21 gms of carbs, which seems to me quite a lot for someone who is T2. That T2 diagnosis almost by definition means your body has a high level of natural resistance to insulin, which makes it difficult for you to process glucose in your blood anyway; so adding another large gulp of 21 gms won't be helping your D management.

If while eating your dinner and you get an alarm for 3.9, there would normally be no need for you to react at all. While you do have Lantus in place as your background insulin (which could possibly make you vulnerable to a future hypo) with your dinner already started a future possible better decision is to just keep eating and get a few mouthfuls of higher carb foods eaten, such as potatoes. If the whole salmon salad meal was very low carb anyway - then the Coke would be a possible choice, but I think better to be a smaller amount, say 100ml.

However once some food is already in your digestive system the efficiency of a high GI food (such as coke) is inevitably diluted by what is already being digested. Yet the extra carbs and thus extra glucose will still need to be managed out of your BG; the high GI coke won't seem like being a high GI food to your metabolism because it is now diluted. The strong advice for those of us on both basal and bolus is to NOT start a meal if already very close to the hypo zone, but to take our normal hypo treatment [15gms high GI carb, wait 15 mins, test for signs of response and treat again if not yet responding]. Only start that meal once response is clearly happening - which these days (thanks to CGM) the trend arrows quickly show response is happening (or not yet). So once already eating keep eating and help by choosing higher GI carbs from off your plate. A couple of savioury crackers would also work instead of Coke.

Strictly hypo is actually 3.5mmol/L and the figure of 4 is
routinely used to provide a small safety margin. Even at 3.5 most people might only feel mildish hypo symptoms. My Dexcom G7 CGM has an unchangeable fixed Urgent Low alarm of 3.1, unchangeable to stop me from trying to go lower (!) and to make me really take note and do something about my low (which is fair enough I suppose).

However 3.1, 3.5, or 4.4 is, I suggest, a digression here in my thoughts because I think your alarm should be at 5.0 or even 5.6 (the maximum for Libre 2) and that you should not even consider it as an Alarm but an "Alert" because in practice at 4.4 that is already too low to guarantee any response will always keep you above 4 anyway. And why live by alarms when Alerts are a gentler and less stressful way of life?

Given your limited mobility as well, unless you always have snacks at your finger tips at all times of the day and night to allow you to respond to a low alert, ie in the lower 4s, then you just need that alert a distinct bit earlier. Then your response won't always need to be search for the dextrose, Coke or Jelly Babies - but first a timely look at the trend on your CGM. Then assess and if the change is very gentle with a horizontal arrow you have choices. If the next meal is imminent - do nothing; just eat that next meal. Or perhaps a single boiled sweet or a toffee will be enough to just stop that gentle change for 30+ mins (great excuse for the toffee!). If there is a more obvious fall going on then one plain biscuit (or 1/2 a fancy Cookie) at c.6-7 gms carbs might well be enough; continue to monitor and have a second small biscuit (or the other half cookie). The bottom line here is stay well away from the 4s, better in the 5-6s and make optimum use of your CGM to monitor and learn about what is great for you to get small steady responses to. Certainly not a 21 carb gm glass of Coke, I suggest.

The International Conference that looked at Time in Range [from 4-10 mmol/L] for people using CGM recommended less than 4% time below 4, whereas up to 25% above 10 was acceptable. The harsh reality for our age group is that time below 4 worsens anyone's vulnerability to dementia and alzheimers and we already have that threat ahead of us just because of our age. So I think (again I'm not medically qualified) we should do our best to stay in a safer zone away from the 4s completely.

My last thought was that because you have now successfully made inroads into your D management (again really well done) and increased from your original 12 units to 32 units of Lantus .... perhaps you have gone 1 or 2 units too far. Consider this: is it possible that not only have you done well with steadily yet safely increasing your Lantus but have you also steadily made changes in your eating habits and been quietly reducing your carb intake? This wouldn't be surprising. You were diagnosed as T2 after a dreadful period of illness last year, you now have T2 ingrained into your mind and reminded daily with the Lantus injections, so are you just routinely choosing lower carb options?

I think you could consider a small Lantus reduction or a more relaxed menu selection - but if I may suggest DO NOT change both things at the same time. If your meal choices are now in some sort of harmony with your husband's needs, then leave those alone and slightly scale down your Lantus. That way the odd biscuit or sweet remains as a perfectly good way (and treat) for nudging your BG up when necessary - provided your alarms are now Alerts at up to 5.6.

Anyway some things to at least consider as a follow on from when you first joined this forum. Best wishes.
Thank you so much for your reply its is very helpful and i will certainly take on board your advice, even though its been 6 months since i was diagnosed i am still making mistakes and learning all the time, the last few days have thrown me to be honest, I have to admit i do tend to avoid any food with carbs if i can help it.
 
Hi Pam

From what you have said in the "Waking average" thread, i.e. that you had ketoacidosis whilst in hospital, it may very well be that you have been misdiagnosed and are actually T1. In which case you should be on a fast acting insulin with your meals. We've talked about this on that thread. As I said there, you need to request to be referred to the diabetic clinic at your local hospital and ask them for proper tests to diagnose you definitively.
 
Hi Pam

From what you have said in the "Waking average" thread, i.e. that you had ketoacidosis whilst in hospital, it may very well be that you have been misdiagnosed and are actually T1. In which case you should be on a fast acting insulin with your meals. We've talked about this on that thread. As I said there, you need to request to be referred to the diabetic clinic at your local hospital and ask them for proper tests to diagnose you definitively.
Hi Patti yes i did have ketos in hospital they only gave me the one injection of Lantus in the morning, but they gave me another injection when my BG was high i dont know what it was but i believe it was fast acting insulin to bring it down ? it wasn't that often, I am beginning to think i am type 1 from everything you and other who have helped me, I will be making an appointment to see the Lead diabetic doctor tomorrow and start making some noise until they listen to me, once again thank you
 
Thank you so much for your reply its is very helpful and i will certainly take on board your advice, even though its been 6 months since i was diagnosed i am still making mistakes and learning all the time, the last few days have thrown me to be honest, I have to admit i do tend to avoid any food with carbs if i can help it.
Well @Pam123 I'm relieved that my comments were appropriate and at least helpful in that you have something to try immediately next. The T1 possibility hadn't really occurred to me, but that will take a while to get a future Consult and then a decision.

I have just seen your response earlier today in the 7 day waking average thread and that adds reinforcement to my thought that you should, in the interim, reduce your Lantus slightly and set your Alert at 5.6 with an intention to get yourself just a bit safer than low 4s as your target. You will also, I think, find that less stressful - just knowing you are well away from low.
 
Well @Pam123 I'm relieved that my comments were appropriate and at least helpful in that you have something to try immediately next. The T1 possibility hadn't really occurred to me, but that will take a while to get a future Consult and then a decision.

I have just seen your response earlier today in the 7 day waking average thread and that adds reinforcement to my thought that you should, in the interim, reduce your Lantus slightly and set your Alert at 5.6 with an intention to get yourself just a bit safer than low 4s as your target. You will also, I think, find that less stressful - just knowing you are well away from low.
thank you I've set my Alert to 5.6 now, and reduced my Lantus to 30 units, phoned our GP this morning I have an appointment but not until the 21st March but its a start.
 
Just a quick update I went to see the doctor and he more or less refused do anything regarding checking if i am a type one, he said my BS levels were very good and just advised me to keep doing what I am.
 
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