• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hello Mitochondrial Disease diabetic

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Honeybee73

New Member
Relationship to Diabetes
Type 1.5 LADA
ive been a Mitochondrial Disease diabetic for around 10 years diagnosis.
Age 45

Diagnosis of deafness etc since around 1998, and some hearing tests before but to young to remember.

Deafness goes with my diabetes and passed down the female genetic line.

I was diagnosed by gp (eventually) and ended up with ketoacidosis i emergency admissions.

I take glargene x3 times a day
And x4 novorapid

My mother died of kidney failure and was diagnosed insulin diabetic very young.
Her mother and mother’s sister had it also.
 
Hiya - that's a LOT of jabs daily. Wouldn't you be better off on a pump?
 
My consultant professor walker agrees but they won’t fund - what a surprise.
Keep asking. God loves a tryer, shy bearns get nowt as they say ...

I was self funding flash but not just got funding.

He wants to chang glargene to 1 a day degludec but I think its just messing about ( again ).

What amounts are your pump using - they are concerned about having to keep changing needles on pump and new vials to much.

Am loosing hope quite honestly - I offered to buy pump but they said they wouldn’t be able to use it as they didn’t fund. Ridiculous.
 
Hi Honeybee73, welcome to the forum.

Whatever the cause of your diabetes, why on Earth are you taking Glargine insulin three times a day? It lasts just slightly over 24 hours in the body, so it’s usually once a day. In other words, if you took the total doses all at once, it would have the same effect.
 
I have tried this with glargene doesn’t work its mitochondrial Disease causing resistance
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top