Hello - just joined

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LesleyJ

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Type 1
Hi

I have just joined here although I have read the forums from time to time.

I have been on IP-UK for yonks but it seems to have been very quiet for a few months.

I am a pump user and very happy with it. I wouldn't go back to injections. My expectations of my control have adjusted and I would like to get even tighter control but my consultant assures me mine is good given the length of time I have been diabetic. I never knew there was a time limit!

Nice to be here, and I hope to join in some great conversations.

LesleyJ
 
Hi LesleyJ, welcome to the forum 🙂 We have lots of pumpers here so I'm sure you'll enjoy sharing experiences with them, and hopefully with the rest of us too as we all try our best to confound this disease that works day and night trying to confound us! 🙂
 
Welcome to the forum LesleyJ 🙂
 
hi Lesley..... welcome to the forum 🙂
 
Hi Lesley. Welcome 🙂

What aspects of your control are you wanting to improve on and what was your last HbA1c ?

I've come across the 'near enough is good enough' approach before, but at the time, I was of the same mind. I have since improved a lot so it can be done, within reason.🙂

Rob
 
Robster65 said:
What aspects of your control are you wanting to improve on and what was your last HbA1c ?

I've come across the 'near enough is good enough' approach before, but at the time, I was of the same mind. I have since improved a lot so it can be done, within reason.🙂

Rob
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In the past I would have agreed, but this was from David Kerr at BDEC, and he's not a "good enough" guy, so I'm taking his word for it.

My last HbA1c was 7.4% and I would rather have it under 7. I *know* I can get it under 7 if I am consistent with low carbing, but its hard to stick to when carb is so nice. Beyond that, or pehaps within that, my peaks and troughs are usually caused by unpredictable digestive function and unpredictable insulin absorption. That's where the story gets even more complicated!

I have a DiaPort (intraperitoneal infusion port) so I'm on CIPII rather than CSII. However, as fantastic as the DiaPort is (and it is) my omentum keeps trying to overgrow the cannula to protect me from it. At those times I have to revert to CSII and my infusion sites are still rubbish, even after a long break (I have had a DiaPort since 2004). Even with the DiaPort, there are unexplainable times, such as I'm more insulin sensitive when I'm laying down 🙂confused🙂 - and my tests would support that its not just quicker absorption.

It was quite a relief to hear Prof Kerr give me a pat on the back.

LesleyJ
 
Hi Lesley and a warm welcome to the forum
 
LesleyJ said:
In the past I would have agreed, but this was from David Kerr at BDEC, and he's not a "good enough" guy, so I'm taking his word for it.

My last HbA1c was 7.4% and I would rather have it under 7. I *know* I can get it under 7 if I am consistent with low carbing, but its hard to stick to when carb is so nice. Beyond that, or pehaps within that, my peaks and troughs are usually caused by unpredictable digestive function and unpredictable insulin absorption. That's where the story gets even more complicated!

I have a DiaPort (intraperitoneal infusion port) so I'm on CIPII rather than CSII. However, as fantastic as the DiaPort is (and it is) my omentum keeps trying to overgrow the cannula to protect me from it. At those times I have to revert to CSII and my infusion sites are still rubbish, even after a long break (I have had a DiaPort since 2004). Even with the DiaPort, there are unexplainable times, such as I'm more insulin sensitive when I'm laying down 🙂confused🙂 - and my tests would support that its not just quicker absorption.

It was quite a relief to hear Prof Kerr give me a pat on the back.

LesleyJ
Click to expand...

With those added problems, that's not a bad Hb.🙂

I've never low carbed either but we slogged hard at the ratios and basal and seem to have got a fairly good grip on it with latest Hb being about 6.2% but my digestoin is pretty predictable, so I know when the peaks and troughs are going to come.🙂

Rob
 
hi and welcome... i am new too.... interesting for me as a non pump user to read about the experiences of pump users as that side is new to me completely.
 
Hi Medusa

Welcome to you too!

Don't take my experiences as typical of pump users - hence the DiaPort...

LesleyJ
 
Hi Lesley

I believe I've seen you posting on IP UK where of course we all usually 'trade' under our real names LOL - I have to say I have difficulty keeping patience with mailing lists; I find Forums a lot simpler to follow! - and whereas on here or my other diabetes forum I'll whip off a reply frequently, I often don't on IP UK cos I'm not that comfortable with the format. Whatever ......

What you describe certainly doesn't sound like the most fun a person has ever had and I think you are doing well to keep your A1c as good as it is, frankly. Sounds like David Kerr agrees - and I have long regarded BDEC as a centre of excellence myself, let alone anyone in the medical profession who knows anything at all useful about D thinking that too!

God bless BIDAC !

I don't think most diabetics have even heard about DiaPort these days although I well remember it being vaunted in Balance as briliant - way back when I'd never even heard of an insulin pump. So I'm pleased you are here and talking about it to a wider audience!
 
Hello!

I do feel a bit disloyal coming here. INPUT and IP-UK are often confused, and although they shared the same biological mother they are different, and I'm now running INPUT, so I feel I should remain loyal to IP-UK. Like you, I prefer a forum though.

I wonder if this link will work: DiaPort user blog (by me) http://diaportuser.blogspot.com/
 
Hi Lesley,
welcome to the forum it's great having you on board.
Pleased you have the thumbs up from your consultant even if you were a little disapointed with your A1c. Funny enough I had the same experience due to problems with pump, cannulas, house moving and poorly parents. Consultant also mentioned things do get harder the longer you have diabetes and he would raher see long term diabetics with a slightly higher than they would call acceptable A1c's than have them admitted for hypos. He also said the longer the durration of the diabetes the hrder the work involved in keeping things under control. Oh happy days 🙄
 
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