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Hello, I'm new!
- Thread starter Nix
- Start date
- Status
Nix
New Member
- Relationship to Diabetes
- Type 1
Thanks for the warm welcome!
I say suspected because the doctors and nurses haven't come up with anything more specific than that!
I was diagnosed because I was losing weight without trying. My GP referred me to a diabetic nurse and when I saw her she checked my blood glucose and it was 27. I didn't have any ketones so she said I was Type 2 but put me straight on insulin to bring my levels down. Then I saw another nurse who said that I didn't fit the profile for Type 2 so I must be Type 1.
I requested the blood test to find out which type I am and was told I'd get the result in two weeks. That passed and they kept fobbing me off until I found out that actually the doctor who sent me for the test is Spanish and had requested the test (is it GAD antibodies or something?) with a Spanish name. The lab didn't know what she meant and forgot about it.
Then a specialist at the hospital chased the test up for me and it came back negative ie no antibodies therefore Type2. However the next specialist I saw said that the lab probably just used the latest blood sample they had rather than the one taken at diagnosis so actually the result was inconclusive and he suspects I'm actually Type 1.
So there you go! I've resigned myself to not knowing officially and all the doctors and nurses tell me it makes no difference, I need insulin and that's that.
I say suspected because the doctors and nurses haven't come up with anything more specific than that!
I was diagnosed because I was losing weight without trying. My GP referred me to a diabetic nurse and when I saw her she checked my blood glucose and it was 27. I didn't have any ketones so she said I was Type 2 but put me straight on insulin to bring my levels down. Then I saw another nurse who said that I didn't fit the profile for Type 2 so I must be Type 1.
I requested the blood test to find out which type I am and was told I'd get the result in two weeks. That passed and they kept fobbing me off until I found out that actually the doctor who sent me for the test is Spanish and had requested the test (is it GAD antibodies or something?) with a Spanish name. The lab didn't know what she meant and forgot about it.
Then a specialist at the hospital chased the test up for me and it came back negative ie no antibodies therefore Type2. However the next specialist I saw said that the lab probably just used the latest blood sample they had rather than the one taken at diagnosis so actually the result was inconclusive and he suspects I'm actually Type 1.
So there you go! I've resigned myself to not knowing officially and all the doctors and nurses tell me it makes no difference, I need insulin and that's that.
bigpurpleduck
Well-Known Member
- Relationship to Diabetes
- Type 1
Thanks for the warm welcome!
I say suspected because the doctors and nurses haven't come up with anything more specific than that!
I was diagnosed because I was losing weight without trying. My GP referred me to a diabetic nurse and when I saw her she checked my blood glucose and it was 27. I didn't have any ketones so she said I was Type 2 but put me straight on insulin to bring my levels down. Then I saw another nurse who said that I didn't fit the profile for Type 2 so I must be Type 1.
I requested the blood test to find out which type I am and was told I'd get the result in two weeks. That passed and they kept fobbing me off until I found out that actually the doctor who sent me for the test is Spanish and had requested the test (is it GAD antibodies or something?) with a Spanish name. The lab didn't know what she meant and forgot about it.
Then a specialist at the hospital chased the test up for me and it came back negative ie no antibodies therefore Type2. However the next specialist I saw said that the lab probably just used the latest blood sample they had rather than the one taken at diagnosis so actually the result was inconclusive and he suspects I'm actually Type 1.
So there you go! I've resigned myself to not knowing officially and all the doctors and nurses tell me it makes no difference, I need insulin and that's that.
What a nightmare for you!
I suppose if they're in agreement that you need insulin that's something.
Anyhow, welcome 🙂 Feel free to ask questions or rant!
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Hi Nix, welcome to the forum 🙂 I would have thought they could do a C-peptide test which would confirm whether you were producing your own insulin or not. The GAD antibody would show whether you had an auto immune reaction which is an indicator of Type 1, but C-peptide is produced in equal amounts to your own natural insulin production (injected insulin doesn't contain C-peptide) so it shows how much, if any, you are producing.
Anyway, as long as you are on the appropriate treatment to manage your diabetes, that is the main thing! 🙂 Have a look at the 'Useful Links' thread at the top of this section for books and links that may help, or for anything else - please ask!
Anyway, as long as you are on the appropriate treatment to manage your diabetes, that is the main thing! 🙂 Have a look at the 'Useful Links' thread at the top of this section for books and links that may help, or for anything else - please ask!
Nix
New Member
- Relationship to Diabetes
- Type 1
Thanks everyone
It's interesting what you say about the C-peptide test Northerner. I hadn't heard of it and I'll certainly check out the thread about it.
I've had my eyes, kidney function and nerves in my feet checked. A little background retinopathy but that might be from bringing down my Hba1c levels down quickly when I was first diagnosed.
I'm the kinda person who likes to know what's going on so I've done a fair bit of research on diabetes already but there's always more to learn. Everyone here seems friendly and between you you must know everything there is to know right? 😉
It's interesting what you say about the C-peptide test Northerner. I hadn't heard of it and I'll certainly check out the thread about it.
I've had my eyes, kidney function and nerves in my feet checked. A little background retinopathy but that might be from bringing down my Hba1c levels down quickly when I was first diagnosed.
I'm the kinda person who likes to know what's going on so I've done a fair bit of research on diabetes already but there's always more to learn. Everyone here seems friendly and between you you must know everything there is to know right? 😉
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Haha! That's right, we do! 😉 If you don't already have a copy, I'd recommend Ragnar Hanas' Type 1 Diabetes in Children, Adolescents and Young Adults - it's an excellent, comprehensive book that explains Type 1 diabetes in a very readable and accessible way.
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