• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Hello from JR

JRFlatbush

JRFlatbush

New Member
Relationship to Diabetes
Type 2
Pronouns
He/Him
Hello from JR!
I'm a 67yr old gentleman of traditional build and following a DKA stay in hospital have been diagnosed with Ketosis Prone Diabetes, (KPD or 'Flatbush Diabetes').
Any fellow Flatbushers on here? Apparently it's mainly an Afro-American, Asian and Hispanic thing so as a white english bloke I guess that makes me unusual.
I've been getting crashes between meals so have to snack on glucose shots/tablets and something 'floury' according to the diabetes treatment nurses. That seems to go against common sense as I thought the idea was to keep off the sweet stuff and lose weight?
My pancreas is now producing insulin again and I'm down to six units of M3 insulin per day from over 20 when in hospital.
The Libre alarm has gone off a few times at night but lowest before I treated it was 3.8 mml.
I'm a little scared to go back to work as that involves driving and 5 or below that is verboten as far as I understand the DVLA guidelines?
 
Someone in this thread was suspected of having it:

T

Thread 'hiya anyone here with flatbush diabetes?'

hi everyone.
I'm 39 and was diagnosed with type 2 aged 31.
my doctors diabetes nurse couldn't keep my blood sugars stable. said I wasn't following protocol so was referred to the diabetes team at the hospital.

the specialist there was a little baffled as well and wondered if I was really type 1. results were negative .

after my last consultant visit his report said he thought I had something called Flatbush diabetes or ketosis prone diabetes and no other information.

ive never heard of this and don't see him again for a year as my blood sugar is behaving at the moment and my hb1c or...

.
 
Thanks Inka. The consultant did say it was much more common amongst African Americans and Hispanics but is still quite rare. Trust me to develop something different!
 
Welcome to the forum @JRFlatbush

Good to have another flatbusher here to replace the ones who pottered off :D

Good to hear that your insulin doses are reducing. Does your consultant think you may reach insulin independence in time and be able to go onto oral meds?

I know very little about ketosis-prone T2, so don’t know whether insulin independence is generally long-lived if it happens? But it does seem fairly common after initial intensive insulin therapy

An Insight Into Flatbush Diabetes: A Rare Form of Diabetes - PMC

Ketone-prone diabetes or Flatbush diabetes is being increasingly recognized worldwide. It is typically seen in obese middle-aged men with a family history of Type 2 DM. Atypicality in the onset of age and gender variation is increasingly observed ...
pmc.ncbi.nlm.nih.gov pmc.ncbi.nlm.nih.gov

As I understand it, the DVLA still count ‘4 as the floor’ for the agonising 45 minute wait, but ‘five to drive’ is intended to get us reaching for the jelly babies before setting off if in the high 4s?
 
everydayupsanddowns said:
Welcome to the forum @JRFlatbush

Good to have another flatbusher here to replace the ones who pottered off :D

Good to hear that your insulin doses are reducing. Does your consultant think you may reach insulin independence in time and be able to go onto oral meds?

I know very little about ketosis-prone T2, so don’t know whether insulin independence is generally long-lived if it happens? But it does seem fairly common after initial intensive insulin therapy

An Insight Into Flatbush Diabetes: A Rare Form of Diabetes - PMC

Ketone-prone diabetes or Flatbush diabetes is being increasingly recognized worldwide. It is typically seen in obese middle-aged men with a family history of Type 2 DM. Atypicality in the onset of age and gender variation is increasingly observed ...
pmc.ncbi.nlm.nih.gov pmc.ncbi.nlm.nih.gov

As I understand it, the DVLA still count ‘4 as the floor’ for the agonising 45 minute wait, but ‘five to drive’ is intended to get us reaching for the jelly babies before setting off if in the high 4s?
Click to expand...
Thanks Mike, that's useful to know about the DVLA. My wife has secured the jelly babies in a locked cabinet ;-)
The consultant does think it may be possible to stop my insulin within 6 months or so.
 
You must log in or register to reply here.
Back
Top