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Hello everyone

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WheelyRachel

Member
Relationship to Diabetes
Type 2
im new to this forum . I've been diagnosed now for 2yrs my type is hard to explain as it's a don't fit either type 1or2. As due to another immune disorder which has damaged both my liver and pancreas. Is there anyone else out there like myself ?
 
Hi WheelyRachel, welcome to the forum 🙂 We do have other members here who don't fit the 'standard' categories for a variety of reasons. Are you on any medication for your diabetes? How have things been for you? Please let us know if you have any questions and we will do our best to help 🙂
 
Hi WheelyRachel, welcome to the forum 🙂 We do have other members here who don't fit the 'standard' categories for a variety of reasons. Are you on any medication for your diabetes? How have things been for you? Please let us know if you have any questions and we will do our best to help 🙂
Thank you for the reply. That's great to hear I'm not the only weirdo . My meds I'm on metformin and insulin. However still finding it very hard to keep my blood sugars under control. This is not helped by the fact that I'm on a very restricted diet due to being a celiac and dairy intolerant and not being able to exercise because of disability issues.
 
Thank you for the reply. That's great to hear I'm not the only weirdo . My meds I'm on metformin and insulin. However still finding it very hard to keep my blood sugars under control. This is not helped by the fact that I'm on a very restricted diet due to being a celiac and dairy intolerant and not being able to exercise because of disability issues.
Hehe! Don't worry, you're certainly not the only 'weirdo' 🙂 I'm a bit of a weirdo myself - Type 1 but although I was on slow and a fast-acting insulins for the first four years after diagnosis, I stopped needing the slow and haven't needed it since, so I am still producing some insulin of my own after 8 years. There are a couple of members similar to me, so it's good to know I'm not a total freak 🙂 We have members who have damaged pancreases due to cancers and inflammation also who don't follow the standard treatments, but are often regarded as Type 1 by the medical profession, and some people who have what is sometimes called 'double diabetes' where they need to inject/pump insulin but also have a high degree of insulin resistance, which is a characteristic of Type 2. There are also quite a few Coeliacs, as it often occurs alongside other autoimmune conditions.

However, we often share similar problems, so are able to offer suggestions and strategies for most things. Do you have particular times of day when your levels cause problems? What sort of things you you eat, and what insulin do you use?
 
Hehe! Don't worry, you're certainly not the only 'weirdo' 🙂 I'm a bit of a weirdo myself - Type 1 but although I was on slow and a fast-acting insulins for the first four years after diagnosis, I stopped needing the slow and haven't needed it since, so I am still producing some insulin of my own after 8 years. There are a couple of members similar to me, so it's good to know I'm not a total freak 🙂 We have members who have damaged pancreases due to cancers and inflammation also who don't follow the standard treatments, but are often regarded as Type 1 by the medical profession, and some people who have what is sometimes called 'double diabetes' where they need to inject/pump insulin but also have a high degree of insulin resistance, which is a characteristic of Type 2. There are also quite a few Coeliacs, as it often occurs alongside other autoimmune conditions.

However, we often share similar problems, so are able to offer suggestions and strategies for most things. Do you have particular times of day when your levels cause problems? What sort of things you you eat, and what insulin do you use?
Strange world ain't it! Glad your doing so well managing yours. Good to know I'm not alone as a coeliac. I'm on the max dose of metformin twice daily and use humulinM3 currently two doses of 38ml daily (lunch & evening meal time)
My levels can be way high at any time of day average readings would 12-17 .
I'm not a sweet tooth so my sugar intake is minimal and due to diet I cook from scratch so no hidden sugars. I do however love my fruit but do avoid
the high sugar types like grapes these days.
My average daily food diary looks like this
Breakfast: gf porridge with a hand full of mixed fruit using unsweetened soya milk , small glass of pure fruit juice.
Mid day snack : banana or apple and cup of tea or coffee.
Lunch: with Gf sandwiches or bowl of soup.
T time snack: would be fruit cup of tea or coffee.
Dinner : 3 times of veg or more, 1chicken breast, potatoes or brown rice and gravy. May have some fruit and soya cream as pud.
 
Strange world ain't it! Glad your doing so well managing yours. Good to know I'm not alone as a coeliac. I'm on the max dose of metformin twice daily and use humulinM3 currently two doses of 38ml daily (lunch & evening meal time)
My levels can be way high at any time of day average readings would 12-17 .
I'm not a sweet tooth so my sugar intake is minimal and due to diet I cook from scratch so no hidden sugars. I do however love my fruit but do avoid
the high sugar types like grapes these days.
My average daily food diary looks like this
Breakfast: gf porridge with a hand full of mixed fruit using unsweetened soya milk , small glass of pure fruit juice.
Mid day snack : banana or apple and cup of tea or coffee.
Lunch: with Gf sandwiches or bowl of soup.
T time snack: would be fruit cup of tea or coffee.
Dinner : 3 times of veg or more, 1chicken breast, potatoes or brown rice and gravy. May have some fruit and soya cream as pud.
Has it ever been suggested that you try using a different insulin regime? Humulin M3, as you are probably aware, is a mixed insulin combining both fast-acting and slow-acting insulins. This combination works well for some people, but for a lot of people it is a very inflexible regime. It is very difficult to adjust doses as an adjustment will affect both fast and slow elements. A much better regime is MDI (Multiple Daily Injections), also called 'basal/bolus'. Basal insulin is a long-acting insulin intended to manage the constant trickle of background glucose released throughout the day and night by your liver to keep your brain and other functions (heart, breathing, digestive system) supplied with energy when you are not eating. The fast-acting (bolus) insulin is used to 'match' any carbohydrate in the food you wish to eat. So, if you are using a separate fast-acting insulin you can choose what and when you eat, plus if your levels are higher than desirable you can 'correct' this with a small amount of extra bolus insulin.

In your case this would mean that you could hopefully expect steady blood glucose levels throughout the day and night when you are not eating, and then give you much more flexibility in your food choices and timing of meals (or even skipping meals if you wish - just don't inject bolus for it!). With mixed insulin you are pretty much a slave to the insulin, having to eat the right amount of carbs at times when the insulin 'peaks'.

So, if you've not tried this already, I would speak to your doctor or nurse about it - it should give you much more control over your levels and hopefully give you an opportunity to improve them. 🙂
 
Has it ever been suggested that you try using a different insulin regime? Humulin M3, as you are probably aware, is a mixed insulin combining both fast-acting and slow-acting insulins. This combination works well for some people, but for a lot of people it is a very inflexible regime. It is very difficult to adjust doses as an adjustment will affect both fast and slow elements. A much better regime is MDI (Multiple Daily Injections), also called 'basal/bolus'. Basal insulin is a long-acting insulin intended to manage the constant trickle of background glucose released throughout the day and night by your liver to keep your brain and other functions (heart, breathing, digestive system) supplied with energy when you are not eating. The fast-acting (bolus) insulin is used to 'match' any carbohydrate in the food you wish to eat. So, if you are using a separate fast-acting insulin you can choose what and when you eat, plus if your levels are higher than desirable you can 'correct' this with a small amount of extra bolus insulin.

In your case this would mean that you could hopefully expect steady blood glucose levels throughout the day and night when you are not eating, and then give you much more flexibility in your food choices and timing of meals (or even skipping meals if you wish - just don't inject bolus for it!). With mixed insulin you are pretty much a slave to the insulin, having to eat the right amount of carbs at times when the insulin 'peaks'.

So, if you've not tried this already, I would speak to your doctor or nurse about it - it should give you much more control over your levels and hopefully give you an opportunity to improve them. 🙂


No I've not tried MDI or had it suggested to me at all.
I have had the weekly injection mentioned to me that they maybe putting me on.
But what your talking about does sound like it would help much more.
As I'm seeing my nurse specialist in a weeks time I shall bring this up and see what he thinks .
Thank you, you've been most helpful.

The coeliac substitutes are not very helpful for carb and sugar controls being that they are much higher in starch levels. I've cut them down as much as I can anymore and I would be lacking in other nutriance.
 
Hi and welcome to the forum from an oddball MODY!
 
MODY is maturity onset diabetes of the young, a genetic form of diabetes. And it's quite rare. My gp has finally referred me to the hospital to the the diabetes team there.
 
im new to this forum . I've been diagnosed now for 2yrs my type is hard to explain as it's a don't fit either type 1or2. As due to another immune disorder which has damaged both my liver and pancreas. Is there anyone else out there like myself ?
Hi WheelyRachel
Warm welcome to the forum .
 
Hello Rachel, welcome, the people here are good eggs. :D
 
99% of the time we are Ditto lol .
PS hope your having a pleasant weekend.
 
Thank you for the reply. That's great to hear I'm not the only weirdo.
Hello I'm a weirdo too, in fact..... :confused: eek that's the other forum.

Welcome Rachel from a Type 2
 
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