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RobMachin

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Hi Everyone

I've just joined the forum, and I guess it's a case of new year, want to do more to manage my diabetes!

I was diagnosed with Type II quite a while ago - I think 2009-ish - but my diabetes has definitely gotten worse recently, so I'm going to get more serious about doing something about it!

Does anyone here have any recommendations for a Continuous Glucose Monitor or point me at a good thread on it?

Anyway, just posting to say "hello" to everyone here!

All the best
Rob
 
Hi, Rob - welcome to the forum. What's been your strategy for managing your diabetes over such a long period, and in what way is it getting worse?

I don't use a CGM, just finger prick tests, but there are members who do and they'll be able to help with your question.
 
Hi Martin

Thanks for the welcome 🙂

I take Metformin and Gliclazide, and I also try to be sensible about my diet and I only drink alcohol very infrequently.

But... I don't measure my blood sugar often enough, and on a few occasions, I have noticed my glucose levels being higher over the last year than they were a few years ago, so I feel it is time for me to get a bit more sensible about testing and tracking.
 
Hi Martin

Thanks for the welcome 🙂

I take Metformin and Gliclazide, and I also try to be sensible about my diet and I only drink alcohol very infrequently.

But... I don't measure my blood sugar often enough, and on a few occasions, I have noticed my glucose levels being higher over the last year than they were a few years ago, so I feel it is time for me to get a bit more sensible about testing and tracking.
It is likely that certain meals are too carb heavy for even the combination of the 2 medications your body is struggling to cope with. But if you have a monitor which it sounds like you have then you could do some strategic testing of your meals by testing before you eat and after 2 hours. If the increase is more than 2-3mmol/l or more than 8-8.5mmol/l then the meal is too carb heavy.
Many find that their carb intake needs to be less than 130g per day in order to keep glucose levels where they need to be.
You could keep a food diary of everything you eat and drink with an estimate of the carbs to see where you are in relation to that.
Have a look at this link to give you some ideas for a way for modifying your diet to be 'more sensible' https://lowcarbfreshwell.com/
 
Hi Rob,

Welcome to the forum. Using CGM rather than finger pricking can become an expensive commitment and has sometimes displayed results that caused unnecessary alarm and consternation as T2 users of CGM find out their BG does all sorts of perfectly normal variations - that they weren't expecting! But CGM can be a useful and friendly way of getting a better understanding of how one's body responds to different foods and varying levels of activity and exercise.

@ColinUK did this and posted regular updates about his findings. I can't remember what his thread was called: I need to do a search (or hope he'll tell us).

My non-medically qualified recommendation is that Abbott's Freestyle Libre 2 is the best of the lower cost CGMs for your circumstances. Libre provides a 14 day single component sensor that reads and transmits; at the end of the 14 days the sensor is thrown away. Whereas it's competitor in the same price range, the Dexcom One, is a 10 day sensor but needs a 90 day transmitter. Once that transmitter is activated it can't be paused, so Dex One is most cost effective when used continuously for 90 days. For your purposes, if expense is a factor, you don't need to wear a CGM sensor 365 days a year.

For example you might wear a sensor for 14 days and find out certain BG behaviour patterns; then take a break and use some structured finger pricking to confirm that changes you are making or have made are remaining good for you; then resume with another sensor for a further 14 days - scrutinising a different aspect of food and activity. And so on. Also the 14 day periods with CGM can be timed to fit in with your needs; for example you might choose to wear a sensor while on holiday and likely to "indulge", so would like to monitor that period. Or the reverse, deliberately not wear a sensor when you know your lifestyle behaviour is going to be very different and pointless monitoring.

TRENDS not SPOT READINGS. In my opinion it is essential that you focus on trends, rather any "one-off" reading. With a CGM graph appearing as the sensor does its stuff, that is easy enough to do; you just have to resist over-reacting to a single reading and wait for the next sensor reading. But with finger prick readings there is a vulnerability to getting a rogue reading and it isn't necessarily apparent that the reading is rogue. Those of us who are insulin dependent tend to have a sense when a reading might be rogue and we will then wash our hands (or at least a finger!) and fp again; maybe even a 3rd time (we want to be sure that an abnormal reading is being correctly displayed since we may be making bolus insulin decisions on the basis of that abnormal reading).

But for identifying foods or activities that affect your BG you should be fairly systematic about the whole process. Typically take a reading shortly after waking and just as you go to bed, just to establish not only how much change in BG is happening overnight and while fasting - but also to get a longer term sense of where your BG is from day to day and week to week. Then for each meal take a spot reading just before the 1st bite then a 2nd reading 2 hrs later (the strategic readings that @Leadinglights has referred to above). This is to see how your body has coped with that meal after 2 hrs. If doing that with fps 3 times daily is too intrusive then do it just for breakfasts, establish what breakfast foods work best for you and then do the same thing for your typical lunch meals. Then finally turn to your evening meals and thus systematically sort out what is right for you. From CGM graphs most of this food and activity scrutiny is effectively non-intrusive, whereas for fps it does involve some structure and needs commitment by you.

I suspect that after 6 or so seperate sensor periods you will know so much more about your BG behaviour that you'll find you will only want to wear a sensor most infrequently thereafter. This again lends itself to Libre 2; no contractual business involved - just buy sensors, from Abbott or a Pharmacy, when you need them. All CGMs need either a compatible mobile phone and an app or a Reader/Receiver which costs from £50 upwards. Libre seems to be more compatible with many phones than Dex One. The Libre app is better suited to recording meal carb values along with notes about what the meal was or changes made. The Dex One app I thought was poor for recording details you want to document, the BG readings provided by Dex One were fine.

If you come under the DVLA constraints of needing to finger prick before driving and then needing to carry a lancing device, meter and test strips in the car - those carrying constraints won't change. The DVLA will recognise and allow CGM readings both immediately before you drive and while driving, but you still have to carry the fp capability in the car. Also CGM is often not sufficiently accurate when you are out of the normal range of 4-10 mmol/L. CGM doesn't totally replace conventional fp testing.

Hope this is of some help.
 
Hi Martin

Thanks for the welcome 🙂

I take Metformin and Gliclazide, and I also try to be sensible about my diet and I only drink alcohol very infrequently.

But... I don't measure my blood sugar often enough, and on a few occasions, I have noticed my glucose levels being higher over the last year than they were a few years ago, so I feel it is time for me to get a bit more sensible about testing and tracking.

What sort of levels are you seeing? And what were you seeing?
What is your diet?
Do you exercise?
 
Hi Rob,

Welcome to the forum. Using CGM rather than finger pricking can become an expensive commitment and has sometimes displayed results that caused unnecessary alarm and consternation as T2 users of CGM find out their BG does all sorts of perfectly normal variations - that they weren't expecting! But CGM can be a useful and friendly way of getting a better understanding of how one's body responds to different foods and varying levels of activity and exercise.

@ColinUK did this and posted regular updates about his findings. I can't remember what his thread was called: I need to do a search (or hope he'll tell us).

My non-medically qualified recommendation is that Abbott's Freestyle Libre 2 is the best of the lower cost CGMs for your circumstances. Libre provides a 14 day single component sensor that reads and transmits; at the end of the 14 days the sensor is thrown away. Whereas it's competitor in the same price range, the Dexcom One, is a 10 day sensor but needs a 90 day transmitter. Once that transmitter is activated it can't be paused, so Dex One is most cost effective when used continuously for 90 days. For your purposes, if expense is a factor, you don't need to wear a CGM sensor 365 days a year.

For example you might wear a sensor for 14 days and find out certain BG behaviour patterns; then take a break and use some structured finger pricking to confirm that changes you are making or have made are remaining good for you; then resume with another sensor for a further 14 days - scrutinising a different aspect of food and activity. And so on. Also the 14 day periods with CGM can be timed to fit in with your needs; for example you might choose to wear a sensor while on holiday and likely to "indulge", so would like to monitor that period. Or the reverse, deliberately not wear a sensor when you know your lifestyle behaviour is going to be very different and pointless monitoring.

TRENDS not SPOT READINGS. In my opinion it is essential that you focus on trends, rather any "one-off" reading. With a CGM graph appearing as the sensor does its stuff, that is easy enough to do; you just have to resist over-reacting to a single reading and wait for the next sensor reading. But with finger prick readings there is a vulnerability to getting a rogue reading and it isn't necessarily apparent that the reading is rogue. Those of us who are insulin dependent tend to have a sense when a reading might be rogue and we will then wash our hands (or at least a finger!) and fp again; maybe even a 3rd time (we want to be sure that an abnormal reading is being correctly displayed since we may be making bolus insulin decisions on the basis of that abnormal reading).

But for identifying foods or activities that affect your BG you should be fairly systematic about the whole process. Typically take a reading shortly after waking and just as you go to bed, just to establish not only how much change in BG is happening overnight and while fasting - but also to get a longer term sense of where your BG is from day to day and week to week. Then for each meal take a spot reading just before the 1st bite then a 2nd reading 2 hrs later (the strategic readings that @Leadinglights has referred to above). This is to see how your body has coped with that meal after 2 hrs. If doing that with fps 3 times daily is too intrusive then do it just for breakfasts, establish what breakfast foods work best for you and then do the same thing for your typical lunch meals. Then finally turn to your evening meals and thus systematically sort out what is right for you. From CGM graphs most of this food and activity scrutiny is effectively non-intrusive, whereas for fps it does involve some structure and needs commitment by you.

I suspect that after 6 or so seperate sensor periods you will know so much more about your BG behaviour that you'll find you will only want to wear a sensor most infrequently thereafter. This again lends itself to Libre 2; no contractual business involved - just buy sensors, from Abbott or a Pharmacy, when you need them. All CGMs need either a compatible mobile phone and an app or a Reader/Receiver which costs from £50 upwards. Libre seems to be more compatible with many phones than Dex One. The Libre app is better suited to recording meal carb values along with notes about what the meal was or changes made. The Dex One app I thought was poor for recording details you want to document, the BG readings provided by Dex One were fine.

If you come under the DVLA constraints of needing to finger prick before driving and then needing to carry a lancing device, meter and test strips in the car - those carrying constraints won't change. The DVLA will recognise and allow CGM readings both immediately before you drive and while driving, but you still have to carry the fp capability in the car. Also CGM is often not sufficiently accurate when you are out of the normal range of 4-10 mmol/L. CGM doesn't totally replace conventional fp testing.

Hope this is of some help.
Thanks! That is very very helpful and I really appreciate you giving me such a thoughtful response!
 
What sort of levels are you seeing? And what were you seeing?
What is your diet?
Do you exercise?
Regularly above 9-13 level readings, so higher than I would like, (they are very occasionally higher than this). I have had Covid a couple of times in the last 2 years, and after that each time the readings were quite a bit higher - in 20s.

I would say diet is good, in that I rarely eat highly processed foods, and do incorporate a lot of good quality protein and vegetables into my diet, but I do eat too much carbs - rice, potatoes - and probably eat too much in terms of calories, so my weight has not been coming down over the last few years, but has been fairly consistent.
I do some exercise, gym once/twice a week, and some cardio, walking dog, but again this could be better!

I'm fairly determined to do better on this over the next 12 months!!
 
It is likely that certain meals are too carb heavy for even the combination of the 2 medications your body is struggling to cope with. But if you have a monitor which it sounds like you have then you could do some strategic testing of your meals by testing before you eat and after 2 hours. If the increase is more than 2-3mmol/l or more than 8-8.5mmol/l then the meal is too carb heavy.
Many find that their carb intake needs to be less than 130g per day in order to keep glucose levels where they need to be.
You could keep a food diary of everything you eat and drink with an estimate of the carbs to see where you are in relation to that.
Have a look at this link to give you some ideas for a way for modifying your diet to be 'more sensible' https://lowcarbfreshwell.com/
Thanks! I'll take a look at that website; and I think you are right I need to focus on the carb part of my diet to get that into a better place!
 
Regularly above 9-13 level readings, so higher than I would like, (they are very occasionally higher than this). I have had Covid a couple of times in the last 2 years, and after that each time the readings were quite a bit higher - in 20s.

I would say diet is good, in that I rarely eat highly processed foods, and do incorporate a lot of good quality protein and vegetables into my diet, but I do eat too much carbs - rice, potatoes - and probably eat too much in terms of calories, so my weight has not been coming down over the last few years, but has been fairly consistent.
I do some exercise, gym once/twice a week, and some cardio, walking dog, but again this could be better!

I'm fairly determined to do better on this over the next 12 months!!

Well I cut out rice, pasta and potatoes (Along with the usual suspects like sweets and crisps!) and got levels down to fairly normal (With just a low dose of Metformin.) So you have scope there to make changes. I eat a lot of fish and vegetables, but also make sure I have fruit (Apples & Berries). If I want something like rice, I use cauliflower rice, and for noodles I use Konjac Noodles which are zero carb.

I used recipe books a chef with T2 diabetes called Caldesi. A lot of easy to make, low carb recipes.
 
Well I cut out rice, pasta and potatoes (Along with the usual suspects like sweets and crisps!) and got levels down to fairly normal (With just a low dose of Metformin.) So you have scope there to make changes. I eat a lot of fish and vegetables, but also make sure I have fruit (Apples & Berries). If I want something like rice, I use cauliflower rice, and for noodles I use Konjac Noodles which are zero carb.

I used recipe books a chef with T2 diabetes called Caldesi. A lot of easy to make, low carb recipes.
Thanks! I'll check those recipe books out!
 
Thanks Colin. I've just read again all 7 pages and your postings provide so much detail about how your experience was - with your own special touch.
 
Thanks Colin. I've just read again all 7 pages and your postings provide so much detail about how your experience was - with your own special touch.
Everything I write has my own special touch :rofl:
 
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