Has anyone had the same problems

[Berylbluecat]

Hi Everyone
This is my 1st ever post. I have turned to here in desperation. Brief history: Dad diagnosed aged 28 type 1, rip at 83 years, half sister diagnosed aged 17, rip from complications aged 57, daughter, diagnosed type 1 aged 3, currently 31 years old and has been registered blind due to diabetic retinopathy, daughter, diagnosed aged 17, currently 36 years old, frequent DKA, very busy mother of 4 children, and myself, diagnosed type 2 aged 39 years, took just 1 Metformin a day until July this year, had previously been active, attending gym etc, had a short course of steroids in June for an inflamed rash on both legs, 5 days into course, Bam!, Confusion, thirst, blurred vision, excess peeing etc, blood sugars of 32.8, they've been high ever since. Glucophage dose doubled (can't tolerate any more than 1000mg daily), lots of other oral meds tried, now on Tresiba 40u daily plus glucophage, still hyperglycaemic (weekly averages of 20 plus), can't get a referral to secondary care, I live in a village, GP surgery in next village and DSN only works on a Monday, no support from one week to the next. Has anyone else experienced problems accessing support for type 2?

 

[Pumper_Sue]

@Berylbluecat blue, I would suggest you are a slow onset type1.
Get yourself to A&E now not tomorrow before you end up in a coma.

 

[mikeyB]

Hi @Berylbluecat, welcome to the forum. You will receive the best advice from the folks on here, so stick around.

You say you live in a village, but how far from a hospital? I ask that because I suspect your diabetes has turned into LADA ( that’s a late onset Type 1) triggered by your steroid course. BGs over 25 are dangerous, over 30 more so, and indicative of Type 1 rather than T2, especially given your family history. You need to be seen by a Diabetes Consultant for tests and an opinion on that, not by your GP or DSN. I suggest the next time you get a high blood sugar, present yourself at A&E at the hospital, which will bring you under attention of a diabetes specialist.

Addendum: I’m a slower typer than @Pumper_Sue, but the advice is the same.