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Given up ?

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Alissa_h

New Member
Relationship to Diabetes
Type 1
I have had diabetes for about three and a half years now four in June but it has always been hard but since last year when I went into dka twice in one month I have been struggling with it soo much. I just want too know if anyone has felt like this and how they coped with it because I feel very hard that I haven’t ever spoken to someone my age or older with diabetes
 
Can you let us know what the main problems are and what insulins you are using and whether you carb-count
 
DaveB said:
Can you let us know what the main problems are and what insulins you are using and whether you carb-count
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I have trouble actually doing my injections and mainly checking my bloods I use novo rapid through out the day and trisiba at night
 
Hi and welcome to the forum,glad you found us. I think many of us on the forum can relate to how you are feeling. This is a great place to talk to people who get it. Having two episodes of dka must have been scary. Keep posting on here - we are listening.
 
stephknits said:
Hi and welcome to the forum,glad you found us. I think many of us on the forum can relate to how you are feeling. This is a great place to talk to people who get it. Having two episodes of dka must have been scary. Keep posting on here - we are listening.
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thank you I didn’t know that this existed till I got told at hospital but I was just looking for people who might understand because I’ve never spoken to people with diabetes properly before
 
It can definitely be very isolating, especially if you don't know anyone else with diabetes.
 
Hi and welcome from me too. This is a great place to learn about diabetes from people who understand the challenges of living with it.

Can you explain why you have problems doing your injections? Are you frightened of it hurting or do you have a phobia of needles or perhaps something else, like a fear of going hypo? Have you discussed the problem with your parents and DSN. Are you more comfortable with someone else giving you your injections or is that also an issue? Knowing what the difficulty is might help someone to suggest ways around it until you get over this phase... and you will get over it, even if it seems impossible at the moment. We are all capable of great things when we need to be.
Ending up in hospital with DKA twice must have been awful and something that you want to avoid again if you possibly can, so it is really important to let people around you know if you haven't given yourself injections, so that they can help you.
 
rebrascora said:
Hi and welcome from me too. This is a great place to learn about diabetes from people who understand the challenges of living with it.

Can you explain why you have problems doing your injections? Are you frightened of it hurting or do you have a phobia of needles or perhaps something else, like a fear of going hypo? Have you discussed the problem with your parents and DSN. Are you more comfortable with someone else giving you your injections or is that also an issue? Knowing what the difficulty is might help someone to suggest ways around it until you get over this phase... and you will get over it, even if it seems impossible at the moment. We are all capable of great things when we need to be.
Ending up in hospital with DKA twice must have been awful and something that you want to avoid again if you possibly can, so it is really important to let people around you know if you haven't given yourself injections, so that they can help you.
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I have mostly over the injections I just thought about it to much and then it hurt more so I don’t want to do it but I’m over that now mostly and now I just have trouble remembering my blood sugars and when I do them having dka was really bad but at the time it wasn’t as bad until after and now it has just taken me down hill because when I first got it I had it perfect under control but now I just don’t know what to do as much
 
Well Alissa - you haven't yet got lots and lots of 'life experience' - nobody of your age has so it isn't your fault !

Thing is though, because DKA is (basically) caused by not having enough insulin to cover the food eaten, avoiding having your jabs just makes too high blood glucose even more likely - so I'm afraid you sound like you might be your own worst enemy in that respect.

What is it about the jabs that you find difficult - actually doing them - or all the carb counting and mathematics that comes with it? Cos yeah - that's a drag when you're 70 like me so I'm sure it is at 13! However - I actually like life - I love my husband, two daughters, 7 grandchildren and I think (last count) it was 4 great grandkids. I love my holidays abroad or in the UK, I like clothes, food and my friends - not one of which has diabetes - so I've always had to cope with it pretty much solo. But that being the case - I just had to grit my teeth and get on with sorting myself out, by myself. Occasionally I used to get terribly upset in floods of tears … then when I thought about that, all that did was give me a headache! Didn't solve anything.

You know your nurse and doctor at the diabetes clinic - do you feel you could talk to them like you just have to us? Cos they should definitely be able to suggest ways of helping! Honestly - you really can tell them things like this and they absolutely won't think you are strange at all - cos truthfully a lot of younger people struggle coping with it all, and so do a lot of adults too!

Good luck !
 
Just read your latest reply and do you know there are blood sugar meters which do the 'how much insulin' calculations for you, as long as you tell it the carbohydrate amount?

Ask your clinic about getting one, if it appeals.
 
trophywench said:
Just read your latest reply and do you know there are blood sugar meters which do the 'how much insulin' calculations for you, as long as you tell it the carbohydrate amount?

Ask your clinic about getting one, if it appeals.
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I have a meter that tells me the amount of insulin and everything that I need, it is just actually remembering to do the blood test it just completely slips my mind I’ll eat and then remember after that I need or hadn’t checked my blood it just completely slips my mind
 
Also, if finger pricking is a problem, you can get a sensor which goes on your arm and you can just scan it for readings. It is called a Freestyle Libre. Maybe that might make at least part of the process less difficult for you. In some areas there are active local groups where you might be able to meet up with other young people and swap ideas and perhaps see how some of the new technology can make diabetes a lot easier to manage.
 
rebrascora said:
Also, if finger pricking is a problem, you can get a sensor which goes on your arm and you can just scan it for readings. It is called a Freestyle Libre. Maybe that might make at least part of the process less difficult for you. In some areas there are active local groups where you might be able to meet up with other young people and swap ideas and perhaps see how some of the new technology can make diabetes a lot easier to manage.
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Never heard of that but sounds good will have to look into it thank you
 
So you need some sort of prompt to test and inject before you eat because you forget to do it. Perhaps you could set an alarm on your phone so that it goes off just before meal times or maybe ask a friend/relative/teacher to remind you. I am sure they will be happy to help in any way they can if you explain how important it is and what you need to do. Once you get into a routine of testing it will become habit. It sounds like you just need help getting back into that routine again.
 
rebrascora said:
So you need some sort of prompt to test and inject before you eat because you forget to do it. Perhaps you could set an alarm on your phone so that it goes off just before meal times or maybe ask a friend/relative/teacher to remind you. I am sure they will be happy to help in any way they can if you explain how important it is and what you need to do. Once you get into a routine of testing it will become habit. It sounds like you just need help getting back into that routine again.
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Thats a really good ideas thank you
 
Diabetes UK have a helpline Alissa - if you or a parent (cos I expect you'll be at school during the day - hope you are anyway!) could ring up and ask them what's available round where you live, they should be able to tell you!
 
trophywench said:
Diabetes UK have a helpline Alissa - if you or a parent (cos I expect you'll be at school during the day - hope you are anyway!) could ring up and ask them what's available round where you live, they should be able to tell you!
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Thank you and yes I’m at school it has effected it but I try not to let it distract me to much but I’ll speak to my mum about calling the help line
 
Sorry to hear you’ve been finding it tough @Alissa_h

It’s certainly something that happens to most of us from time to time, when life and other ’stuff’ gets in the way. But it really helps if you can try to get into a bit of a routine with it, and just slot it in without having to think that much about it. You are still in the early years, and you’ve lots of life ahead. There’s no reason why your T1 needs to stop you doing anything you really want to - it just needs a little bit of attention every now and then. Because there’s no doubt that it is a LOT more bother and far more serious if you ignore it. Plus it‘ll make you feel much worse too.

There are lots of experienced T1s here with 20, 30, 50, or more years of diabetes under their belts - so it CAN be done. And all those nasties that may have been mentioned to you don’t necessarily have to come your way, if you can just try your best to keep your diabetes looked after, while living a normal, healthy, happy life 🙂
 
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