Give your views on Type 2 diabetes research

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Northerner

Northerner

Admin (Retired)
Relationship to Diabetes
Type 1
Diabetes UK are searching for the research priorities of people with Type 2 diabetes, their carers and healthcare professionals. They’re looking for ideas on what research people think should be happening, so that the views of people with Type 2 diabetes and people that care for them are represented.

They want to hear about your experiences of Type 2 diabetes: what questions about Type 2 diabetes do you most want answered by research? Over 1,800 people have already taken part, but they need to make sure that people from all communities are represented. It’s so important that people of different ethnicities and ages get involved – this is a rare chance to influence what Type 2 diabetes research happens. You can find out more here www.diabetes.org.uk/t2-top-10.

And if you want to know about the Type 1 research priorities and how they were developed then find out more herehttps://www.diabetes.org.uk/Researc...Type-1-diabetes-Priority-Setting-Partnership/

Please help if you can! 🙂
 
Thanks for that link, @Northerner . I note the advisory panel includes a number of "Patient Representatives", but there is no indication of the their type of diabetes "experience". I'm not talking about needing their full diabetic CV, but merely an indication whether the specific representatives involved were/are T2, and on a broader note what level of knowledge the DUK representatives actually have in T2?

I know I'm a nightmare. 🙂
 
AndBreathe said:
Thanks for that link, @Northerner . I note the advisory panel includes a number of "Patient Representatives", but there is no indication of the their type of diabetes "experience". I'm not talking about needing their full diabetic CV, but merely an indication whether the specific representatives involved were/are T2, and on a broader note what level of knowledge the DUK representatives actually have in T2?

I know I'm a nightmare. 🙂
Click to expand...
I will enquire...🙂
 
Northerner said:
I will enquire...🙂
Click to expand...

I gave my views a few weeks ago, but it would be good to understand who may be aiding with any filtering mechanism.
 
AndBreathe said:
Thanks for that link, @Northerner . I note the advisory panel includes a number of "Patient Representatives", but there is no indication of the their type of diabetes "experience". I'm not talking about needing their full diabetic CV, but merely an indication whether the specific representatives involved were/are T2, and on a broader note what level of knowledge the DUK representatives actually have in T2?

I know I'm a nightmare. 🙂
Click to expand...
Here's the response from the Research team:


All of the patient representatives that are on the advisory panel have Type 2 diabetes, and we ask them to bring their personal experiences of living with the condition to the table. While they all have some knowledge of diabetes research, it’s not a requirement of the role. They provide insight into their condition and represent the views of people living with Type 2 diabetes, working with the healthcare professionals that also sit on the panel.

While the patient representatives have been recruited, there are other ways that you can get involved in the decisions Diabetes UK makes around research: https://www.diabetes.org.uk/Research/Our-approach-to-research/Tell-us-your-views/
 
Northerner said:
Here's the response from the Research team:


All of the patient representatives that are on the advisory panel have Type 2 diabetes, and we ask them to bring their personal experiences of living with the condition to the table. While they all have some knowledge of diabetes research, it’s not a requirement of the role. They provide insight into their condition and represent the views of people living with Type 2 diabetes, working with the healthcare professionals that also sit on the panel.

While the patient representatives have been recruited, there are other ways that you can get involved in the decisions Diabetes UK makes around research: https://www.diabetes.org.uk/Research/Our-approach-to-research/Tell-us-your-views/
Click to expand...

Great thanks.

As I mentioned before, I had responded to the questionnaire a few weeks ago, but it's just good to know that those reviewing the responses will have relevant experience of living with the thing; one way or another.
 
I did this back in July.
 
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