Err opps! I have not said much on here recently at all!!! Apologies. I am still alive 🙂
Well, a little while ago my GP up here (at uni) referred me to a new consultant. This was following my dissapointment at the care or understanding I was getting at my old hospital. They were not happy with an HbA1c of 6.9% BUT this was from the January I had just started insulin to that appointment in March so I was still getting the hang of things and had been ill. That was sort of the icing on the cake for me to quit going there.
Consequently I also realised it affected me in other ways as I hadn't been taking much care of myself from around then, my blood sugar log was very empty! I did have exams on top of that but I managed to last year so it makes me think that it was because of the way I felt?! A lot of the time I think I struggle with 'no one seems to be caring about me so who am I doing any of this for?' same goes for no one listening to me!
But..... this is going to change! I saw a new consultant on wednesday. Very experienced, I was seen practically as soon as I got there! No hour long waiting like I usually would get and I got to see 'the main man' rather than one of his students (old hosp is a teaching one). He didn't have many of my notes but I told him what I could. I had a few blood sugars recorded from the last week or so and showed him them. I said that it was likely I had relatively intact basal insulin as novorapid with meals would fix that and once the insulin was out of my system and I don't eat for a while my sugars drop and I go hypo. Also told him I have negative antibodies. Guess what he concluded without me mentioning a word of it... that I could be a MODY. He reckoned that it can be spontaneous sometimes, which I am not sure about but he said that there was a lady in Oxford who might be willing to test me for it a little later on.
So he wants to try me on sulfonyureas, 1/2 a tablet a day with my biggest meal (dinner). I did tell him I was concerned that, if it wasn't sure I was a MODY, i'd researched that it can cause the pancreas to 'wear out' quicker. He said with a small dose and the fact i'm sensitive to insulin it will be unlikely. This makes me think to my previous endo appointment they wanted to put me on sulfonyureas AND metformin which probably would have consequented in a lot of hypos!! So I am due to start these sometime soon even though i'll be back home but he's given me their centre number to contact nurses if I need to.
I guess this is the result I wanted! I know I refused tablets to begin with, although it seemed wise as the combo could have been dangerous really. It will be so much easier to take a tablet daily than trying to dose correctly for food. I said that I found this hard, somedays my panc' kicks in others it doesn't so generally it's not so easy. I think I will completely transfer over to this clinic even though i'm only here another year! At least I will be on a hopefully established route to take all this on at another clinic when i'm done 🙂
Well, a little while ago my GP up here (at uni) referred me to a new consultant. This was following my dissapointment at the care or understanding I was getting at my old hospital. They were not happy with an HbA1c of 6.9% BUT this was from the January I had just started insulin to that appointment in March so I was still getting the hang of things and had been ill. That was sort of the icing on the cake for me to quit going there.
Consequently I also realised it affected me in other ways as I hadn't been taking much care of myself from around then, my blood sugar log was very empty! I did have exams on top of that but I managed to last year so it makes me think that it was because of the way I felt?! A lot of the time I think I struggle with 'no one seems to be caring about me so who am I doing any of this for?' same goes for no one listening to me!
But..... this is going to change! I saw a new consultant on wednesday. Very experienced, I was seen practically as soon as I got there! No hour long waiting like I usually would get and I got to see 'the main man' rather than one of his students (old hosp is a teaching one). He didn't have many of my notes but I told him what I could. I had a few blood sugars recorded from the last week or so and showed him them. I said that it was likely I had relatively intact basal insulin as novorapid with meals would fix that and once the insulin was out of my system and I don't eat for a while my sugars drop and I go hypo. Also told him I have negative antibodies. Guess what he concluded without me mentioning a word of it... that I could be a MODY. He reckoned that it can be spontaneous sometimes, which I am not sure about but he said that there was a lady in Oxford who might be willing to test me for it a little later on.
So he wants to try me on sulfonyureas, 1/2 a tablet a day with my biggest meal (dinner). I did tell him I was concerned that, if it wasn't sure I was a MODY, i'd researched that it can cause the pancreas to 'wear out' quicker. He said with a small dose and the fact i'm sensitive to insulin it will be unlikely. This makes me think to my previous endo appointment they wanted to put me on sulfonyureas AND metformin which probably would have consequented in a lot of hypos!! So I am due to start these sometime soon even though i'll be back home but he's given me their centre number to contact nurses if I need to.
I guess this is the result I wanted! I know I refused tablets to begin with, although it seemed wise as the combo could have been dangerous really. It will be so much easier to take a tablet daily than trying to dose correctly for food. I said that I found this hard, somedays my panc' kicks in others it doesn't so generally it's not so easy. I think I will completely transfer over to this clinic even though i'm only here another year! At least I will be on a hopefully established route to take all this on at another clinic when i'm done 🙂
