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Getting fed up - back to testing again

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mikeydt1

mikeydt1

Well-Known Member
Relationship to Diabetes
Other Type
after been discharged from diabetic clinic without them doing anything, while i had paramedics here for my partner suffering a TIA they were concerned about my health and wanted me to test BG levels, also had a NHS nurse here yesterday and she was shocked at the diabetic clinic discharging me.

so an update, after speaking to my own doctors diabetic nurse it is now back to testing, main reason is that i keep getting very shaky, i did another post about this.

the idea is to see if the diabetes is the culprit or if i need tests to see what is going on.

at the same time although i am a carer for my partner, i have decided to take time out and have just bought a guitar, i learnt to play when i was younger and regretted later on not following playing music so will be good to just do some strumming to ease my tensions.

no i won't be like a rock star and bash the thing to bits 😎 guitar is coming this Saturday so can't wait to see and feel one again.
 
Good for you ! I admire everyone who can get a tune out of anything since same as sport, not encouraged in my upbringing as parents stated Don't be silly - you'd never make any money doing that, so no point whatever you getting any interest in it.

What sort of style would you say - Hank Marvin, Elvis or Segovia?
 
think it would be the Hank Marvin type going wrong 🙂

on a more serious note though as a home carer now been doing it for 5 years it is just never ending from getting up early to bed time then on occasions been woken early hours. it gets to a point where everyone needs that 5 minutes. sad fact that care is very expensive so can only get help a few times a day but sods law every thing seems to happen after they have gone.
 
Hope the guitar goes well... there are lots of free resources on YouTube these days, and some very good online guitar courses too.

Have they given you your own meter for testing when you feel shaky? Or are these less-frequent ‘blood from the arm’ tests?
 
Good to test regularly I think invest in a finger prick test kit if you haven't already got one.

Sounds perfect the guitar playing 🙂 I bashed out a tune of sorts on my metal tongued drum last evening along with the clapping for all NHS.

Hope things settle down for you soon.
 
from the readings done so far looks like a pattern is forming from reasonable levels on getting up to over 14 during the evening and it def looks like the medications i am on are then causing a sudden nose dive during the night which i think is then resulting in shakiness on getting up. looks like my local hospital have just basically discharged me too eagerly as per usual. the person at the diabetic hospital clinic had checked my doctors file and knew that my HBA1C had shot up so really another one at the very least should of been requested and as i am under district nurses this could of easily been done.

last night my levels had gone to nearly 17 and when i went to bed talk about feeling like i was riding on a roller coaster.
 
should of added guitar is coming sometime later on this morning.
 
mikeydt1 said:
from the readings done so far looks like a pattern is forming from reasonable levels on getting up to over 14 during the evening and it def looks like the medications i am on are then causing a sudden nose dive during the night which i think is then resulting in shakiness on getting up. looks like my local hospital have just basically discharged me too eagerly as per usual. the person at the diabetic hospital clinic had checked my doctors file and knew that my HBA1C had shot up so really another one at the very least should of been requested and as i am under district nurses this could of easily been done.

last night my levels had gone to nearly 17 and when i went to bed talk about feeling like i was riding on a roller coaster.
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It definitely sounds like some adjustments are needed to the meds @Mikey.
I hope that you get it sorted soon.
 
received a NHS letter this morning in respect of both diabetes and fibrosis. basically with the diabetes not been controlled well this is having a knock effect with fibrosis so they are wanting better control somehow.

the worse part of this is that the hospital diabetic clinic discharged me without bothering to do anything and my readings so far show a yo yo effect going on. as per normal my doctors diabetic nurse is having to pick up the pieces.

personally i think this is going to be a battle, i am at stage f1 and def don't want the knock on to send me up the scale of fibrosis as there are only 4 levels.

diabetic nurse is calling me this Thursday so will give her the grim hospital report.

for now t.c everyone and take care in this extraordinary world
 
the guitar turned up on Saturday it is a Martin Smith full size acoustic. all ways regretted getting rid of one when i was younger and with the lock down and stresses which go with it, it is something to take my mind off things.

did my first scale in 40+ years very rusty though.
 
mikeydt1 said:
the guitar turned up on Saturday it is a Martin Smith full size acoustic. all ways regretted getting rid of one when i was younger and with the lock down and stresses which go with it, it is something to take my mind off things.

did my first scale in 40+ years very rusty though.
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Hope you get on well with it. It can be a real help to have something to submerge yourself into in this weird time. Might benefit from a bit of a setup perhaps? Lots of pointers on YouTube for checking it over and making any adjustments to help it play nicely.
 
I was exceedingly impressed seeing on the News earlier, a chap playing Somewhere Over the Rainbow on his elec piano outside the front of his house presumably on a Thursday evening at 8-ish, when they said he'd self taught himself to play.

A good many years ago OK, when someone patient showed you how to play 'Chopsticks' you could do so - but that was never going to migrate into you being a pianist unless you had one at home and your parents would pay for lessons. However having been in the company of various people who said they'd learned to play the uke, and indeed some of them could alright, but any number of others should have taken up knitting preferably as far as both our earholes were concerned!

So - sometimes it works and sometimes it doesn't and I hope you find yourself in the first lot!
 
on my last day of BG recordings then some time Thursday morning it is down to the nitty gritty with doctors diabetic nurse, got to get this under better control so it doesn't have a knock on effect with fibrosis.

the readings are better than what they have been but still getting the very high and low yo yo which needs to be looked at. doing my part with what i eat along with more exercise so it is getting a fine balance of medications.

really need another HBA1C doing to see if it has improved.
 
This is a time when you do need an HbA1c doing, but since the last 4 weeks account for the majority of the result (60ish percent from memory) and you haven't adopted the new approach for that long, unless it gets delayed a bit from now, which it most likely will anyway - nobody would see much difference probably mikey.
 
update got my phone call from the diabetic nurse and have to juggle medication around a little to help drop down the evening levels. once we get there then fresh blood tests but at the same time i am awaiting to hear from the hospital as more special tests are needed and they are working out how best to do this.

normally i would attend outpatients where i am examined first then some scans are done but with outpatients shut this has made a situation worse.
 
mikeydt1 said:
the guitar turned up on Saturday it is a Martin Smith full size acoustic. all ways regretted getting rid of one when i was younger and with the lock down and stresses which go with it, it is something to take my mind off things.

did my first scale in 40+ years very rusty though.
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Just saw your post - I'm a very new member but it's nice to see a few guitar mentions anywhere - I love mine (I've got 6 and wouldn't part with any of them) and it is one of the few things that takes me "somewhere else" when things are a bit tough - especially in these times when we can't easily get about. Hope your still sticking with it - keep playing.
All the best
 
I have a Framus Texan, 6 string acoustic. I used to play in folk clubs back in the 1970s and get money for it.
At the moment I can't remember how to play but I hope it will come back. I have learned to play melodeon for morris dancing since diagnosis, so I am sure I will get back to guitar again.
 
JimG92 said:
Just saw your post - I'm a very new member but it's nice to see a few guitar mentions anywhere - I love mine (I've got 6 and wouldn't part with any of them) and it is one of the few things that takes me "somewhere else" when things are a bit tough - especially in these times when we can't easily get about. Hope your still sticking with it - keep playing.
All the best
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First thing I noticed in your signature Jim 😎

Additionally playing can act as a cgm (as long as you don't get too absorbed in what you were doing) - hypos play havoc with my coordination!
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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