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frustrated with school

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W

Willowz

Member
Relationship to Diabetes
Parent of person with diabetes
I seem to be talking to a brick wall! N started doing her own injections on Monday, either her teacher or teaching assistant (TA) dial up the amount and then she does the actual injection. I told them the base doses, what the correction is (written in the top of her diary, if and when they change I cross out the previous ones) I also asked them to add 1/2 a unit for pudding. N then told me today she wasn't being given the extra 1/2 "because it's too risky" according to her TA. I'm furious because this seems to be why I've been fighting high blood sugar readings in the evening for three days. Today isn't so bad because she had fruit salad and picked out the orange and pineapple (bless her!) N is tired and feeling horrible, and then getting into trouble because she isn't concentrating - not surprising when they aren't looking after her properly. It was afight to get them to give her, the two biscuits she's supposed to have before PE "well we'll just give you one, you shouldn't really eat biscuits" what the hell would they know, just because the other diabetic child in the school doesn't do what we do and she's been diagnosed since reception class.

I don't even know what she means by too risky, except she might go hypo! which is unlikely if she's having a sweet pudding. it's far more risky to have a blood sugar that isn't under control because of the risk of further complications. Poor N I yelled at her this evening because I was so frustrated. I'm going into school tomorrow because they aren't always recording the amount of insulin in the diary either.

😡

I'm at boiling point.
 
Take a deep breath and count to ten.🙂

Tomorrow - ring your DSN and tell her that school have decided to make medical decisions about N's diabetes and that you will not allow it. Then ring the school nurse or SENCO and say that school (or more specifically the TA) does not have your permission to make medical decisions on your behalf about insulin doses. If any harm comes to N as a direct result of this TA 'deciding' how much insulin to give N - you will take it further. Nobody other than you has the right to make such a decision - you are the expert - they are not.

Make it very clear that you are logging down all doses that are given at school and the consequences of a 'decision' made by a non-medical TA could be dire. Explain what a hyper is and what the consequences of a hyper are. Also make it clear that letting levels deliberately run high to avoid hypo's will cause complications in future and is not something you advocate under any circumstances.

Not 'allowing' N to have two biscuits is actually putting her at risk of having a hypo and saying that 'your not really allowed biscuits' is beyond me. Point out to them that N eating a biscuit is actually a medical requirement to keep her alive and should not be confused with a 'normal' child eating a biscuit.

Have you got a 'care plan' for N at school - if so - check what it says in there about rules for P.E. and rules for following your instructions about insulin doses. If they are not following the care plan - then they are in breach of the Equal Opportunities Act and you have every right to take this further.

I feel angry for you and do not let school get away with this sort of behaviour. It doesnt make a jot of difference what the other diabetic child does - you are only concerned with N and her requirements - so dont let them try to tell you that they are 'used' to dealing with a diabetic or any nonsense like that - every diabetic is different and an individual and what is acceptable for one may not be for another and the sooner school understand this the better.🙂Bev
 
i can only say i feel really sorry for you, luckily i was only on two injections a day then when i got put on four a day i could do it all myself.
i hope they sort themselves out or i would go in there and complain!
good luck!
 
Bev I love you :D. You always make me feel better 🙂

Tomorrow is another day. And I will try again (as it's PE) I'm not sure if there is a care plan. I know the DSN has been in to school. I'll ask.
 
Bev - that was a FANTASTIC reply! I have actually cut and paste it into a doc in case I ever need it in the future (hopefully I won't).

I also sympathise with you as we had problems at my son's school (he is just 9). They made him go out of class to take blood tests on this own if he felt hypo - as they were 'disturbing' class. And this was all in the 1st month that he was diagnosed! He was being 'punished' for having diabetes. Lots of other problems too but I arranged a meeting with the school and our diabetic nurse and got everything sorted very quickly. Now they do a great job with him. So, I hope you manage to get things sorted too as it's so worrying when they are at school and you are not there to oversee everything. I know how you feel and sending you positive thoughts. xx
 
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