Food intolerance increasing BGs?

[Inka]

A very definite improvement @Lucyr Fingers crossed that it continues Carrying on for a few weeks, at least will prove it’s the diet change.

I went back to eating gluten/wheat to see if it had any effect (ie that re-introduction suggested an intolerance) but so much was going on in my life that I then just left it in my diet and have never removed it for so long again. One other thing I found was that I had more energy gluten-free. I wasn’t expecting that but I did. Because I cut out both gluten and wheat, I’d have to think how to approach a change of diet again, but it is something I hope to do now the children are older.

Some people think that Type 1s shouldn’t eat gluten anyway as they believe it’s implicated or connected to the auto-immune attack.( I know you’re not officially Type 1 but I kind of think of you as Type 1-ish 🙂 )

 

[AndBreathe]

Have attached bgs, but bear in mind only 5 of the last 7 days I’ve been gluten free so time in range is higher than shown. I’ve changed nothing else, I’m not trying any harder than usual, and obviously diabetes does what it wants when it wants but usually no matter how much I try insulin just doesn’t behave as it should. The last 5 days it’s been like it used to be, where I take insulin and my bgs responds to it. Real test will be whether it carries on.

Your blood glucose may be moderating a bit due to a slight reduction in inflamation. That imflamation could be caused by anything, but in this case, it points to something in food.

My blood glucose didn't moderate when I went gluten free, like it did when I went low carb, so conclude foor me the moderation was linked to the reduction in carbs.

In reality, my CRP is always low when tested, even when the hs-CRP is used, so I don't have much inflammation in my body the majority of the time.

If you happen to have had a recent blood panel with a CRP test on it, it would be interesting to rerun it after a few months GF.

 

[gillrogers]

@lucy I was undiagnosed with a gluten intolerance since I was a kid until about 50 ! Got told it was all in my head! Finally managed to self diagnose it the same year as I was diagnosed type 1. I’m sure it didn’t help my blood sugars. Crazy thing is I now feel so much better from eliminating gluten but now stuck with the type 1. But my guess is that any thing that causes inflammation and feeling ill will cause a rise in blood sugars so it seems to make sense to me that if you’ve cut out the gluten your blood sugars will be lower.

 

[Lucyr]

@lucy I was undiagnosed with a gluten intolerance since I was a kid until about 50 ! Got told it was all in my head! Finally managed to self diagnose it the same year as I was diagnosed type 1. I’m sure it didn’t help my blood sugars. Crazy thing is I now feel so much better from eliminating gluten but now stuck with the type 1. But my guess is that any thing that causes inflammation and feeling ill will cause a rise in blood sugars so it seems to make sense to me that if you’ve cut out the gluten your blood sugars will be lower.

I’ve now reduced my basal from 65u per night to 35u per night. I know that’s much more than the reccomended 10% then wait 3 days before adjusting again but I just went back to my pre-ill dose as all the low alarms were annoying. I’ve done 35u two nights in a row now and still at 83% in range today so dose is not too far off at least, I’ll leave it a few more days before basal testing. Time in range after the first full week GF now at 82%, with average glucose at 7.9.

It’s the first week in a month that I’ve made it to Wednesday without having to take a whole day off work sick, with better energy levels and generally feeling less unwell. For downsides, not being as tired means I’m sleeping less, and headaches are worse than usual this week. Severity isn’t too bad they’re just being daily which I’ve not had for a while, I had tried reducing the amitryptaline so I’ve gone back up to my normal dose of that as I don’t think a reduction is working out.

Updated before and after bgs attached

 

[Inka]

That’s incredible @Lucyr - especially that basal reduction.

 

[rebrascora]

Yes, that basal reduction is mind blowing isn't it and so pleased you feel you have more energy, but really disappointing about the headaches. Fingers crossed that is a transient issue which will also resolve, although I appreciate that headaches have been a problem for a long time now for you.
Really fascinating to see such a dramatic change in insulin needs just from avoiding gluten. Thanks for posting it because I am sure it will help others.

 

[Lucyr]

I’m just hoping it’s not a coincidence!! Time will tell… got the dietician next week so might have a chat about it.

 

[gillrogers]

Wow! Sorry Lucy, been upto my eyes with the charitys year end and a property thst is over 100 years old that we manage that weve had to suddenly close due to its elderly age and safety. Just read your update and thats fantastic! Is it still going well?

 

[Lucyr]

Wow! Sorry Lucy, been upto my eyes with the charitys year end and a property thst is over 100 years old that we manage that weve had to suddenly close due to its elderly age and safety. Just read your update and thats fantastic! Is it still going well?

Still feeling good other than a few times after I’ve mistakenly eaten gluten. I’m now able to swim half a mile a few times a week (was struggling to get to 16 lengths before which is a quarter of a mile), and feel I could do more but don’t want to push it. BGs a bit worse but I’ve run out of libre and know I’m letting things slip a bit.

Gluten free is proving a bit of a pain for social occasions though. I’ve no idea what to take to bring and share lunches, or when to explain to people if I’m invited to eat at their house, what to do when eating out on unplanned occasions or what.

 

[AndBreathe]

Still feeling good other than a few times after I’ve mistakenly eaten gluten. I’m now able to swim half a mile a few times a week (was struggling to get to 16 lengths before which is a quarter of a mile), and feel I could do more but don’t want to push it. BGs a bit worse but I’ve run out of libre and know I’m letting things slip a bit.

Gluten free is proving a bit of a pain for social occasions though. I’ve no idea what to take to bring and share lunches, or when to explain to people if I’m invited to eat at their house, what to do when eating out on unplanned occasions or what.

Gluten-free takes a bit of work at the beginning for sure. I found it harder than going low carb, by quite a stretch. I'm so glad you are finding it helpful though. Do stick with it.

In terms of what to take for sharing meals, I would tend to take something like chicken drummers, cold meats, devilled eggs or such like. That way I know I have something I know is absolutely safe for me to eat - makes the old "looks nice, I'll try one" easier to swerve.

In terms of going to others to eat, I explain I'm gluten free, and explain that strikes out bread, pastry, and baked goods in general. From there, I reckon it's up to me to make the best choices. If the host/ess wants more context, I'll usually suggest some really simple things, like salads or similar cooked meats/eggs.

Next weekend, I have 2 functions to attend - both involving food. One is at an eaterie, with an Italian bent, but I can work around that. For the other, it is a catered event where allergies/intollerances have been requested. As things stand at the moment I don't intend to declare GF. Oftentimes, GF goods turn out to be either rice based, or GF bread, the former is OK in moderation (for me), but the latter, I'm not interested in bread. I'll work out something, or just not eat. Bearing in mind this will be a finger buffet, there won't be any drama, if I mingle with a sausage roll on a side plate.

It's early days for you.

 

[gillrogers]

Still feeling good other than a few times after I’ve mistakenly eaten gluten. I’m now able to swim half a mile a few times a week (was struggling to get to 16 lengths before which is a quarter of a mile), and feel I could do more but don’t want to push it. BGs a bit worse but I’ve run out of libre and know I’m letting things slip a bit.

Gluten free is proving a bit of a pain for social occasions though. I’ve no idea what to take to bring and share lunches, or when to explain to people if I’m invited to eat at their house, what to do when eating out on unplanned occasions or what.

Oh its a right pain for social occasions. I find it easier not to bother. Some people just dont understand. I end up taking my own meal if over at family cos they cant cope with me having to carb count either. Ive not been doing this long enough to judge my carb intake. So i feel your pain for want of a better word over that.

 

[Lucyr]

On Sunday I’m going to someone’s house for lunch, bring something to share thing so I need to think of something I’ll eat and just take extra I think.

Next week going to work somewhere that’s a few hours away. I’ll be out of the house from 6:30am to 9:30pm. Normally I’d just pick up a sandwich or salad or whatevers available in the station for tea whilst I’m out, and take something for lunch with me. Guessing now I need to be more organised and take something with me but honestly a salad that’s been in your bag since 6am isn’t that appealing 12 hours later.

I’m sure I’ll figure things out, it just feels like everywhere outside of eating at home is a bit confusing and daunting at the moment.

 

[OhJoy]

As some of you know, i've had an undiagnosed illness for 16 months now, causing mainly fatigue, severe headaches, muscle aches and generally feeling flu like ill (but without the runny nose, sneezing etc) that come and go in varying strengths. I've

A colleague of mine had symptoms very like this for many months. His has just been diagnosed as a severe wheat (rather than gluten) allergy

 

[Lucyr]

A colleague of mine had symptoms very like this for many months. His has just been diagnosed as a severe wheat (rather than gluten) allergy

Interesting. I’m going to see what my white blood cells are like next time they’re checked and go back to the GP if they’ve improved.

 

[gillrogers]

On Sunday I’m going to someone’s house for lunch, bring something to share thing so I need to think of something I’ll eat and just take extra I think.

Next week going to work somewhere that’s a few hours away. I’ll be out of the house from 6:30am to 9:30pm. Normally I’d just pick up a sandwich or salad or whatevers available in the station for tea whilst I’m out, and take something for lunch with me. Guessing now I need to be more organised and take something with me but honestly a salad that’s been in your bag since 6am isn’t that appealing 12 hours later.

I’m sure I’ll figure things out, it just feels like everywhere outside of eating at home is a bit confusing and daunting at the moment.

I take a john west mexican tuna bean salad . Its in a tin foil pot and keeps out of the fridge. And a peanut and chocolate protien bar. I think they are from Nature Valley. But i make my own now.

 

[Lucyr]

Thankyou, I hadn’t seen those before I’ll try them. Looks like asda also do some Indian and Asian versions with rice in that are GF and £2.