Flash Glucose Monitoring for children?

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kimptoc

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Hi All

Apologies if this has been raised before - could not find it.

Have any children got access to Flash for monitoring or maybe there are reasons it’s not appropriate ?

just thinking it would be very handy for children.
Thanks in advance for advice.
Chris
 
We have a mother who posts regularly her daughter has been using one since they came on the market . I am not sure if they now get on prescription or still self fund.
 
Yes my daughter has had the Libre since February 2016 and we have been using it constantly since then. We were self funding at the beginning but have been getting them on prescription for the last year I think. My daughter is 13 now, so not a “young” child any more but I would say the system is a real game changer, it doesn't completely remove the need for finger pricks but cuts it down a lot, and makes it so easy to do a quick check if necessary! I think it would also have been very useful when she was younger if it had been available then. I can't imagine any reasons why it might be inappropriate for children, it's licenced for use from age 4 and my daughter was actually part of the official trial to test it on children (because their arms are skinnier than adults' so there was a question whether the sensors would work so well, but obviously they do!). I think my daughter was about 9 when she did the trial. Do you have any particular questions?
 
Wow - thanks for the great answer.
My niece is 9, diagnosed with type 1 this year. Was wondering if this was worth exploring with her parents. Given your feedback, we will discuss it with them.
Many, many thanks!
 
We got one on prescription for a 6 month trial for my 9 year old. It’s well worth her parents talking to her diabetes team as there are criteria for NHS funding but even if she doesn’t meet that sometimes they can swing it for a few months to trial it.
We found that it increased anxiety in my husband and my daughter hated applying and removing the sensors so we didn’t continue with it.
 
That's a good point, I don't think my daughter particularly enjoys the application and removal procedure, but it’s only once every two weeks and I think she has decided that the ease of being able to do a quick scan whenever required far outstrips the discomfort, once they are in they are comfortable enough. She is on a pump so used to having cannulas applied every couple of days, but she says the Libre sensors are a lot less pleasant to insert and remove, well they are bigger! It is also worth noting that any CGM system is not as accurate as a finger prick because it isn't reading actual blood and therefore lags behind a little when things are moving fast, so coming out of a hypo is always a good time to do a finger prick because sensors often are still reading low when blood sugar has already returned to normal. Not all systems work for every person either, there have been many people on this website complaining bitterly about Libre sensors falling off or not being very accurate or failing completely after a couple of days use. We personally haven't had any of those problems: sensor accuracy varies but is usually close enough, as long as it’s reading high when she's high and low when she's low and in the middle when she's in the middle then that's good enough for me, it's usually within 1-2 mmol/l of a finger prick, if you are expecting it to be more accurate than that then you will probably be disappointed. (Although I think it has improved over time and there is a software update available which supposedly makes it better, I still haven’t got round to doing that because I find it close enough already!) My daughter knocked one sensor off her arm once, then we had two failures, one died within 12 hours of being inserted and one didn't insert properly so never really got going. Both of those were replaced free of charge. In nearly 4 years of continual use I reckon that's pretty good going. By far the best bit is the arrows and trends, they are far more useful than just the reading alone, if you get a 4.5 at bedtime with a down arrow then you know you need to get the jelly babies out but if you get 4.5 going up then you don't need to worry.

Our experience is only positive and I would always recommend the system, definitely discuss with your niece's parents, see if they can get one on trial to see what they think of it 🙂
 
SALLY 71
HI as one person on the other end of the scale ,i think you have summed the FREE STYLE LIBRE the best i have seen on this forum or any others all points are ok
as i have experience off including one batch of sensors that was way off course .
with my acc -chelk combo sprint no 5 machine i also agreed with the arrows going up or going down are a very very good interaction what is in the next 15/20 mins
they also replaced my sensor , but it may have been to close to old injection sites,
as i have had the type one diabetes for 62 years first started in 1957 very few control of blood sugars so i wish your daughter .a super future ahead as the may well be more super controls ie tablets for insulin or android system s to make control more simple ..
regards and wish you all the best vic hill
 
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