• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

Finally - Libre 2 on NHS

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Jon-Manchester

Jon-Manchester

Well-Known Member
Relationship to Diabetes
Type 1
Sorry to share this but I am so happy that I have to share it with someone :D
After 2 years of selffunding the Libre and trying to get my Diabetes consultant to agree to give me the Libre on prescription, with numerous emails and calls. This morning I finally had the call from one of the diabetes nurses saying that they have agreed to put me on the Libre prescription.. Yaay!! So happy! 🙂
 
Last edited:
Delighted for you but shocking that you had to wait so long. Hope it doesn't take as long as it did for me to actually get it on prescription after getting the nod from the clinic. The NHs administrative cogs turn ever so slowly sometimes. 🙄
 
Oh and well done for keeping fighting your corner for it until you were successful!
 
rebrascora said:
Delighted for you but shocking that you had to wait so long. Hope it doesn't take as long as it did for me to actually get it on prescription after getting the nod from the clinic. The NHs administrative cogs turn ever so slowly sometimes. 🙄
Click to expand...
They promised it would be sent out on Friday but you never know I guess.
 
rebrascora said:
Delighted for you but shocking that you had to wait so long. Hope it doesn't take as long as it did for me to actually get it on prescription after getting the nod from the clinic. The NHs administrative cogs turn ever so slowly sometimes. 🙄
Click to expand...
First they tried to argue that because I was selffunding i wasnt eligible (so I had to show them the NICE guidelines..doh), then they blamed covid, saying that they werent issuing Libre prescription during covid..... Anyway, all of that is forgotten now 🙂
 
Jon-Manchester said:
They promised it would be sent out on Friday but you never know I guess.
Click to expand...
I found there were a couple of admin hold ups.
First my diabetes team had to send the approval to my Gp surgery.
Then my GP surgery had to get around to adding it to my prescription.

The first step was relatively fast (for the NHS) and was done in about a week.
The second step was placed in a queue for the prescribing pharmacist to action on her 2 days per week.This took nearly a month.
 
Took 8 months for me from getting the "Yes" from the consultant to getting it prescribed but that was during the initial Covid lockdowns so I can understand that they had more important things to contend with and I did have to keep chasing it up which I felt quite bad about in the circumstances, but got there in the end.
 
rebrascora said:
Took 8 months for me from getting the "Yes" from the consultant to getting it prescribed but that was during the initial Covid lockdowns so I can understand that they had more important things to contend with and I did have to keep chasing it up which I felt quite bad about in the circumstances, but got there in the end.
Click to expand...

8 months!!!?! That is just ridiculous amount of time, covid or no covid. I really hope it wont take that long for me...
 
Last edited:
The problem was that you were supposed to go on a course with a DSN and the Abbott rep. to learn how to use Libre effectively, but the courses were on hold and until you had completed the course, it couldn't be prescribed. Then eventually they said to do the Libre Academy modules/webinars etc online and that would be an acceptable alternative. By then, I had already been using the Libre for 3months and getting hugely improved results thanks to all the info from people here on the forum. The important thing is that I got there in the end and you will too, but hopefully sooner rather than later.
 
Jon-Manchester said:
Sorry to share this but I am so happy that I have to share it with someone :D
After 2 years of selffunding the Libre and trying to get my Diabetes consultant to agree to give me the Libre on prescription, with numerous emails and calls. This morning I finally had the call from one of the diabetes nurses saying that they have agreed to put me on the Libre prescription.. Yaay!! So happy! 🙂
Click to expand...
these may help.

Edit. Link removed by moderator.
 
Last edited by a moderator:
Wow, these are nearly a pound a patch.
If I needed something to hold my Libre on, I think I would go for the 3D printed straps. At least there is a one off cost and not adding more plastic to the landfill every 2 weeks.

My advice for a new user would be try without a patch or strap for the first patch and then decide if you need them. I appreciate some people have stickier skin than others.
 
Last edited by a moderator:
During the last 2 years I havent had a single libre sensor falling off, apart from walking in to a door frame in the early days.
 
Last edited by a moderator:
helli said:
Wow, these are nearly a pound a patch.
If I needed something to hold my Libre on, I think I would go for the 3D printed straps. At least there is a one off cost and not adding more plastic to the landfill every 2 weeks.

My advice for a new user would be try without a patch or strap for the first patch and then decide if you need them. I appreciate some people have stickier skin than others.
Click to expand...
yeah I've used both .... i like both options too... the patches work out to about 1 quid for 7 to 14 days ...for me that is heaps better than losing my libre. before using a patch i would pretty much lose my libre every time...by day 10 its always gets loose without a patch
 
Robin said:
Are they intended to be worn all the time? Only they seem to cover the ventilation hole in the centre of the Libre, which is there to allow moisture to evaporate from the skin under the sensor, reducing risk of fungal infections etc.
Click to expand...
never had any problems .... think they're made of cotton. Plus some versions have a hole for the libre too
 
Robin said:
Are they intended to be worn all the time? Only they seem to cover the ventilation hole in the centre of the Libre, which is there to allow moisture to evaporate from the skin under the sensor, reducing risk of fungal infections etc.
Click to expand...
i wear one most of the time...at least when i start a new sensor.. i sometimes take it off for the last few days once i know its secure ... i used to always be stressing in last few days constantly conscious that the edges of the libre were lifting ... dont get that anymore
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top