it is a very unafair service some do get help others do i got no Libra sensors no help for over 20 years 2003 i was diagnosed as a type 1 hardly seen any Diabetes Nurses now i have mental and phyical problems and self harm,
I appreciate what you're saying. I was seeing a consultant every 3 months and had the same 5 questions, 15 minutes and you're done. And that was typical.I speak to a diabetes Nurse once evey 2 Months and a specialtist Dr every 2 years i have the Libra 2 but nothing after that i have depression anixety and thats no lie im on tablets they think i may have Bipolar but no my luck they wont bother to diagnose me thank you for your messge. X
I have seen the few weeks back thinks i have something simlair to Bipolar called emotionally unstable personality disorder (EUPD) but i think i am a Manic depressive another Psychiatrist said i had borderline personality disorder (BPD) ive only seen the first Psychiatrist twice over the phone and the second Psychiatrist i seen face to face at the Caludon Centre my self harm has gotton worst i have been on Quetiapine and mirtazapine for years with no diagnoses, this is why i type some things that could have been said better its because half of my life i have been fighting the health service, i talk to profesonal workers about my Type 1 diabetes and they say oh my friends Mums sisters boyfriend has Diabetes or they something else like my dogs got Diabetes, some things people say plus i feel ignored not that i want attention just treatment, i do have Libra sensors but took me long time to get them.So sorry to hear how diabetes is making you feel, even to the point of considering suicide, and about the frustrations you‘ve had getting the right care, and in some interactions with healthcare professionals.
Some people ave suggested in the past that it might be helpful if different types of diabetes were called completely different things. I’m not sure how much that would help though.
All types of diabetes are serious, and carry big risks to long term mental and physical health. The proportions of people living with different types partly explain why coverage in the media can seem a bit skewed at times (because for every 10 people affected by diabetes, 9 of them would have T2. But you are not alone in feeling this frustration. Just as some people with T2 are frustrated at the lack of availability of BG monitors, CGM or insulin pumps for people with T2.
As a person living with T1, you should definitely be eligible for Libre or another form of CGM under current guidance. Are you seen on a hospital clinic? Or at your GP? Either way, you should ask about getting access. Members here can help provide links to the relevant NICE guidance if that helps.
Please look after yourself, and don’t lose hope. You are important. You matter. You deserve to be happy.
If you are experiencing suicidal thoughts, please call the Diabetes UK helpline 0345 123 2399 (Mon-Fri 9-6), or call The Samaritans at any time on 116 123 - they can help you.