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Fed up diabetic

D

Dogfish

New Member
Relationship to Diabetes
Type 2
Hello I have type 2 diabetes for 30 yrs now and i am on tablets and insulin and have metal illnesses through it and how the nhs look after us my levels can be 17. before bed and 3.5 in morning I wake up and have to eat quickly or I will go into a hypo these levels are the old scale and why did they change to the new scale anyway so they can worry more pre diabetic a people and people like me with serious diabetes are the forgotten patients this pre diabetes is a life style change your diet exercise lose weight and stop eating high sugar foods and you will sort it out the nhs love these people it’s so easy to look good on their score cards when they get cured I have loads of mistakes made by my doctors with my diabetes I’ll keep it for another day and please if you can change your lifestyle do so this condition is lifetime hell hole take care
 
Dogfish said:
these levels are the old scale and why did they change to the new scale anyway
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The scale for fingerprick checks has not changed. Only the hba1c scale has changed.
 
I suppose 30 years ago it was not recognised how powerful dietary changes could be in managing blood glucose level and people just were prescribed more and more medication leading to the situation you are in.
Had the work of those promoting the new ways of managing Type 2 been around then it would be a different story for many people.
I think the reason they changed the units for the HbA1C test from % to mmol/mol was because people got confused between that and finger prick readings in mmol/l as they could be similar numbers so caused confusion if people didn't specify the units.
 
If you’re 17 before bed then 3.5 in the morning, your insulin needs adjusting. What insulin do you take @Dogfish ?
 
Hi I never got confused until this change in readings and I have never been overweight how many times have people said to me about my size there is so much miss information about this horrible condition anyone reading this with pre diabetes please change your life if you don't your have a life of tablets and worry I know I’m living with it everyday I wish I could change my lifestyle and send it into remission how easy would that be for me and the errors in my life by diabetic nurses will shock you given double dose of metformin 4000mg a day when I should of been taken 2000mg for years this went on loads more to tell you take care
 
Inka said:
If you’re 17 before bed then 3.5 in the morning, your insulin needs adjusting. What insulin do you take @Dogfish ?
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Yes I know but you tell my diabetic nurse I done a 4 day study and it was all over the place when she see my 3.5 in the morning told me it was a one off that’s my life they are talking about I’ve given up with them why do you think I’m on here all I wanted was to ask for my pancreas to be checked to see if it is producing any insulin my high and low levels tells me these tablets are not working only insulin please don’t tell me to change doctors they are all a joke now this website is brilliant why don’t the nhs do something like this to put our point across take care
 
Dogfish said:
Yes I know but you tell my diabetic nurse
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Why would we need to tell your diabetes nurse? It’s your diabetes and your insulin, your job to manage it. If you’re regularly going low when you wake up then it’s irresponsible of you to continue taking the same long acting dose without adjusting it
 
Dogfish said:
all I wanted was to ask for my pancreas to be checked to see if it is producing any insulin
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What tablets and what insulin do you take? If you’re type 2 you probably do produce insulin. Have you read about how the tablets and insulin works? Not all tablets encourage your pancreas to make more insulin, some like metformin just make you more sensitive to insulin
 
I’m not going low all the time just once in the 4 day test this was asked by them to see why my levels are up as you know this condition is uncontrollable for 30 years I’ve been like this and I think we are coming the forgotten people in the nhs
 
Dogfish said:
I’m not going low all the time just once in the 4 day test this was asked by them to see why my levels are up as you know this condition is uncontrollable for 30 years I’ve been like this and I think we are coming the forgotten people in the nhs
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It’s not uncontrollable. Have you done a basal test? What tablets and insulins do you take?
 
Lucyr said:
It’s not uncontrollable.
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I believe diabetes is as controllable as a class of 4 year olds. Like that class of kids, it can be managed with the right treatment but there will be times when it does it's own thing for either no obvious reason or for a reason that only becomes obvious in hindsight. Just like a misbehaving 4 year old.
To manage diabetes, you need the right tools (insulin and medication) and a lot of knowledge. Without this, you may as well be a 4 year old trying to control a class of 4 year olds.
 
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Dogfish said:
Yes I know but you tell my diabetic nurse I done a 4 day study and it was all over the place when she see my 3.5 in the morning told me it was a one off that’s my life they are talking about I’ve given up with them why do you think I’m on here all I wanted was to ask for my pancreas to be checked to see if it is producing any insulin my high and low levels tells me these tablets are not working only insulin please don’t tell me to change doctors they are all a joke now this website is brilliant why don’t the nhs do something like this to put our point across take care
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Ok, so what insulins do you take?
 
Inka said:
Ok, so what insulins do you take?
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I already asked that twice but not answered, so maybe someone that just wants to let off steam rather than to help improve things themself
 
Sorry to hear how fed up you are feeling @Dogfish

And diabetes can be frustrating to live with for sure. Plus the fact that occasionally it just does go off on one some days, so trying to spot the general patterns rather than the one-off diabetes weirdness can be difficult.

Have you been offered a course to help you adjust your own insulin doses. Do you take 2 different types of insulin? Do you count carbs in your meals to balance them with your doses?

It may be that doing an online course (even if one of the ones designed for T1s) might help you understand better how your insulin works, and how to get it to work better?
 
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