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Endo Question

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
L

lizabetic

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Hey Everyone,

I am just curious as to how I would go about getting a new endocrinologist?

I spoke about this with my mum a while ago when we was discussing MODY and she was a bit blasay about it. My thinking is that no matter what diabetes I have it isn't ordinarily treatable and I would benefit from a specialist who HAS seen similar cases to me before! Clearly my current one hasn't as otherwise he'd not think me to be quite so interesting...

I feel like a guinea pig most of the time ! Always getting tested for something or other but nothing come back to me thats at all explainable.

I like to compare it with doctors telling you that you have a broken leg but they can't actually tell you what bits broken so neither can they 'fix' that part!!!!! :D

Thanks 🙂
 
I think you should be able to go to your GP and ask what consultant-led clinics he/she can refer you to. I know of a few people here who have had 'out of the ordinary' cases where they have had to seek help from different consultants in order to track down the problems, so it could be worth doing. 🙂
 
I ended up with a whole school of 'ologists' circling me while they discussed how to treat all my various ailments and while I'm used to being a 'fascinating case' by now, it's been over 50 years after all, I still hate it. Having said that, the fact that your endocrinologist is actually interested in you could be seen as a good thing, at least he's paying attention. You could ask, however, for a second opinion. Or simply talk to your doctor about how you feel and see what the options are. Perhaps a chance to sit down with someone who can actually explain, in English, what all the tests are for and what the results really mean would be all you need.
 
Hi, As unpleasant as it is being treated as an "interesting case", from personal experience, it pays to stick with them as they are interested in you and will try new ways of helping you. I personally don't mind this because they are trying to help and do something, whereas consultants who treat you like everyone else can be a bit stuck in their ways and not be willing to accept that something isn't working. It sounds like you need to make sure that they do pass on the information to you though, I would try to be forceful with them and don't leave the room until you have made progress! I would speak to your GP as well, as consultants usually send their findings to the GP.
 
Thanks for your replies.

Well my endo is and isn't interested.
Whilst he does send me for tests for this that and the other he hasn't ever explained anything and because my HbA1c is okay he just sends me away and says i'm fine each and every time.

I pressume also that he is used to dealing with Type 2 (by the looks of the waiting room whenever I go!).
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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