Hi 🙂
DS 7 was diagnosed with T1 diabetes last Friday.
He'd not been himself for a while, and hindsight is an awfully wonderful thing. He literally had every single symptom. I knew nothing about diabetes, and it was only after Dr Google flagged up diabetes and DH took DS to my in-laws house, and used DFIL's BG testing kit (DFIL has type 2), and it read 24 - and then 26 (because a reading of 24 HAD to be a mistake by not washing hands properly...) - we took DS to see the GP on an emergency appointment. 90 minutes later, we were being told by the GP that DS had T1 and we were to take him immediately to the children's ward.
Friday night is a bit of a blur. DS was ok in himself, just tired, and not as chatty as he had been for a couple of weeks.
I think his BG was 28+ when he was admitted and his ketones 6.8. He was in DKA.
Luckily, at the time, I didn't have a clue what that meant.
He was on IV insulin and saline/glucose through the night. At one point early morning his BG dropped to 2.8 (which is when the IV glucose came out). Again, at the time I didn't have a clue what 2.8 meant.
So, slowly, since then, we've all had to start getting our heads round what this all meant.
His DSN wasn't working until Monday, so it was the staff nurses on the children's ward teaching us. They were really lovely.
We met with DS's DSN on Monday, and she's lovely too, and at 7.00pm on Monday he was discharged.
Up until today I've been calling DS's DSN before every dose of insulin. Today, she's left the ball in my court and given me rough guidelines.
To be honest though, it's because of books, leaflets, and forums like these that I am now perhaps resembling something close to human. I'm trying to take in as much information as possible. We haven't specifically been told anything about carb counting, carb to insulin ratios or anything like that - but are slowly figuring it out.
DS, through all of this, has been amazing. He hasn't complained nor moaned or cried once. He's taking it all in his stride. It's his strength that's keeping us all, including his brother (12) and sister (9) sane.
We've been fighting high levels since Friday (16-28) but yesterday was mostly 8-14, and today we experienced his first hypo. He went out to get some milk with DH and his BG was 11. He came home an hour later just in time for lunch and he told us his legs felt shaky. He was 3.7. Of course, it was really scary seeing the numbers that low after them being so high up until now, but out came the lucozade, and he was fine an hour later after having his lunch and novorapid to go with it.
He's currently on 3/3/3 and 6 of lantus at night. His DSN has mentioned 1 unit to every 10g of carbs, but I'm already seeing a pattern that he needs more earlier in the day.
I think I'm probably still running on adrenaline at the moment. It's all so much to take in - but DS's strength through it all is really, really helping. I'll take off as much time as is needed to be with him (his school are dragging their heels as to what route they want to take to get him back). Time off isn't a problem, but it being unpaid might be - but never mind, we'll deal with it.
I've written a huge post here, so sorry for rambling.
I've enjoyed using forums for many years and find them a really useful source of support, so hopefully you'll welcome a new face, who's terribly nervous about this new chapter in our life.
DS 7 was diagnosed with T1 diabetes last Friday.
He'd not been himself for a while, and hindsight is an awfully wonderful thing. He literally had every single symptom. I knew nothing about diabetes, and it was only after Dr Google flagged up diabetes and DH took DS to my in-laws house, and used DFIL's BG testing kit (DFIL has type 2), and it read 24 - and then 26 (because a reading of 24 HAD to be a mistake by not washing hands properly...) - we took DS to see the GP on an emergency appointment. 90 minutes later, we were being told by the GP that DS had T1 and we were to take him immediately to the children's ward.
Friday night is a bit of a blur. DS was ok in himself, just tired, and not as chatty as he had been for a couple of weeks.
I think his BG was 28+ when he was admitted and his ketones 6.8. He was in DKA.
Luckily, at the time, I didn't have a clue what that meant.
He was on IV insulin and saline/glucose through the night. At one point early morning his BG dropped to 2.8 (which is when the IV glucose came out). Again, at the time I didn't have a clue what 2.8 meant.
So, slowly, since then, we've all had to start getting our heads round what this all meant.
His DSN wasn't working until Monday, so it was the staff nurses on the children's ward teaching us. They were really lovely.
We met with DS's DSN on Monday, and she's lovely too, and at 7.00pm on Monday he was discharged.
Up until today I've been calling DS's DSN before every dose of insulin. Today, she's left the ball in my court and given me rough guidelines.
To be honest though, it's because of books, leaflets, and forums like these that I am now perhaps resembling something close to human. I'm trying to take in as much information as possible. We haven't specifically been told anything about carb counting, carb to insulin ratios or anything like that - but are slowly figuring it out.
DS, through all of this, has been amazing. He hasn't complained nor moaned or cried once. He's taking it all in his stride. It's his strength that's keeping us all, including his brother (12) and sister (9) sane.
We've been fighting high levels since Friday (16-28) but yesterday was mostly 8-14, and today we experienced his first hypo. He went out to get some milk with DH and his BG was 11. He came home an hour later just in time for lunch and he told us his legs felt shaky. He was 3.7. Of course, it was really scary seeing the numbers that low after them being so high up until now, but out came the lucozade, and he was fine an hour later after having his lunch and novorapid to go with it.
He's currently on 3/3/3 and 6 of lantus at night. His DSN has mentioned 1 unit to every 10g of carbs, but I'm already seeing a pattern that he needs more earlier in the day.
I think I'm probably still running on adrenaline at the moment. It's all so much to take in - but DS's strength through it all is really, really helping. I'll take off as much time as is needed to be with him (his school are dragging their heels as to what route they want to take to get him back). Time off isn't a problem, but it being unpaid might be - but never mind, we'll deal with it.
I've written a huge post here, so sorry for rambling.
I've enjoyed using forums for many years and find them a really useful source of support, so hopefully you'll welcome a new face, who's terribly nervous about this new chapter in our life.
I recognise it well and it brings it all back. 
