Hi, newly diagnosed T1D (2 months ago) after having DKA. Suffering with nerve pain in feet. Please can anyone advise if they had this after DKA/ diagnosis of T1D and whether this is likely a permanent thing/ permanent damage or just the body recovering after high bloods for so long and will go away/ reduce with time? Also how to relieve some of the pain.
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DKA Recovery
- Thread starter JB135135
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Hi, sorry to hear of this.
I also found out I was T1D after hospitalisation for DKA.
What was your ketone level? I had some odd body complaints but was mainly blurred vision, cramps but I don’t remember nerve pain I’m afraid.
Do you know how long you might have been T1D before diagnosis where you blood glucose was rising, for me I think for 1 to 1.5 months.
As soon as I started controlling my BG to a decent level things improved after a couple of months. Depending on your severity and your average BG levels now it might take longer.
I would certainly stay well hydrated and ensure electrolytics are where they should be but I don’t know about nerve pain I’m afraid.
I also found out I was T1D after hospitalisation for DKA.
What was your ketone level? I had some odd body complaints but was mainly blurred vision, cramps but I don’t remember nerve pain I’m afraid.
Do you know how long you might have been T1D before diagnosis where you blood glucose was rising, for me I think for 1 to 1.5 months.
As soon as I started controlling my BG to a decent level things improved after a couple of months. Depending on your severity and your average BG levels now it might take longer.
I would certainly stay well hydrated and ensure electrolytics are where they should be but I don’t know about nerve pain I’m afraid.
Inka
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Welcome @JB135135 and sorry to hear about the DKA. I hope you’re feeling a bit better apart from the nerve pain. I didn’t have that but I know I’ve read of others here who did soon after diagnosis. Hopefully it should gradually ease over the next few weeks.
There is medication for nerve pain. Perhaps you could speak to your GP for advice? There are also natural supplements that might help. I’ll look for the info and paste in another post below.
There is medication for nerve pain. Perhaps you could speak to your GP for advice? There are also natural supplements that might help. I’ll look for the info and paste in another post below.
Inka
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It’s obviously very important you check any supplements are compatible with any meds you take, but there are some supplements that might help your nerve pain. However, please do check they’re compatible before trying them.
One is Alpha Lipoic Acid. You have to take a largish dose and it’s not cheap, but it’s actually prescribed for neuropathy (nerve pain) in Germany. Also, benfotiamine (a special form of vitamin B1) and other B vitamins can help. For the Alpha Lipoic Acid, it’s best to build it up slowly - ie one 200mg tablet a day for a week or so, then two tablets, then 3. You’ll see they’re expensive but they do help.
One is Alpha Lipoic Acid. You have to take a largish dose and it’s not cheap, but it’s actually prescribed for neuropathy (nerve pain) in Germany. Also, benfotiamine (a special form of vitamin B1) and other B vitamins can help. For the Alpha Lipoic Acid, it’s best to build it up slowly - ie one 200mg tablet a day for a week or so, then two tablets, then 3. You’ll see they’re expensive but they do help.
trophywench
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The most annoying thing about nerves is this - not only do they hurt when they are injured, they also do exactly the same when recovering!!! So if nerve damage was caused by blood glucose being high for long but the person never noticed that cos it was so gradual once they start keeping their blood glucose at a more natural lower level than their body got used to - those nerves certainly do complain, the buggers.
I can however state that gradually again, your body including your nerves as well as everything else, absolutely does get used to the lower blood glucose and stops being so painful.
I can however state that gradually again, your body including your nerves as well as everything else, absolutely does get used to the lower blood glucose and stops being so painful.
I am taking both supplements for a few months and it's really helped me
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Glad you’ve made it through the DKA @JB135135
Sorry to hear about your nerve pain. There is a condition that used to be called ‘insulin neuritis’, (now called treatment initiated neuropathy, I think) where a rapid drop to ‘normal’ BG levels after a period of high BGs can temporarily trigger nerve pain.
It should clear in time if that’s what you are experiencing?
Sorry to hear about your nerve pain. There is a condition that used to be called ‘insulin neuritis’, (now called treatment initiated neuropathy, I think) where a rapid drop to ‘normal’ BG levels after a period of high BGs can temporarily trigger nerve pain.
It should clear in time if that’s what you are experiencing?
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