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Diatribe

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

AlisonM

Much missed Moderator
Relationship to Diabetes
Type 1.5 LADA
Actually, now I think about that title would be a good name for us. Come join the Diatribe! But on with the rant:

Since my diagnosis, there have been times when I was accused of trying to control things too tightly (not in here, I hasten to add), not without some justification, but what would they have me do? The meds weren't working, so the only tools I had were a fairly strict diet and exercise. I'm convinced that the only reason I've made it this far without serious additional problems like neuropathy or retinopathy, aside from my constant nagging at the surgery and clinic, is that 'military' discipline I applied to this nightmare process. I've been so jealous of those of you here, whatever type you are, who seem to keep those pesky numbers in the zone with disheartening ease. Disheartening for me that is. I do realise it's not that easy for any of us and that we all have hard times but one gets so self-centred in the battle for life. I've had a sort of tunnel vision with everything being filtered through the "I'm an uncontrolled diabetic" lenses. Having to fight the medical profession every step of the way hasn't helped me feel at all positive either.

It's incredible how my attitude to life and diabetes has changed in these last three short weeks. Even the little dose of insulin I'm on (14 units at night) is making a HUGE difference. I can see now that it is possible, even for me, to get control and have a decent life. I'd never have gone on that sailing holiday if it had been offered me 2 years ago, I'd have been too worried about something going wrong. Now none of you have actually met me yet so you wouldn't know that is not like me at all. This is the woman who went haring off too South Korea on two days notice to work when the boss called for help. This is the girl who did VSO (Voluntary Service Overseas) in Kenya and Bangladesh at 17. The one who has climbed all but one of the Munros. The nutcase who almost got brained by a seal hunter trying keep a baby seal from becoming a coat. I'm not listing these things to boast, but to highlight how narrow my view of life had become. Since the day I was diagnosed there has only been room in my head for one thing, my health.

The point of all this is to say I've got the old me back. I've rediscovered my old sense of adventure and my desire to live life to the full and not let anything hold me back. What I want to say to everyone else who's struggling like me is: keep fighting, keep nagging and don't let diabetes rule you.

Oh, and once again, my heartfelt thanks to the denizens of this place for your unstinting support and encouragement. Finding the forum may well have been the luckiest day of my life.
 
Morning Alison

I can empathize with everything you say, so much of it I see as my problems as well, like the battle with the medical people and being accused of trying to gain to tight a control. I wont take over your post with details, I just wanted to congratulate you on you achievements, this is a fantasic post and very inspiring for us all, thanks.
By the way I came in this morning full of pride for achieving a morning BG of 5.9 the lowest morning one in 5 years, I'm normally between 7 and 9 Is'nt it funny the things that excite us diabetics :D

John.
 
I'm so glad you've got the old you back, that's not as easy to do as it sounds. Well done you.

Now that you're firing on all cylinders, I don't feel too bad when I tell you that I'm afraid your Diatribe idea has already been taken - if it helps with the disappointment, it is a very good US based newsletter all about diabetes research and product news http://www.diatribe.us/home.php 🙂
 
Hello Alison, what a lovely post to read and to be able to say well done for your perseverance and determination, it is incredibly disheartening when life revolves around the diabetes and still things don't go right. I've had a fair bit of this myself. And the relief when the numbers start to improve is so huge! It's wonderful to hear you sounding so positive and I hope the future is kind to you.

the diatribe idea is great - shame it's already been taken. x
 
but why oh why weren't you on insulin as soon as you were dxed with Type 1 ????
 
Actually, now I think about that title would be a good name for us. Come join the Diatribe! But on with the rant:

Since my diagnosis, there have been times when I was accused of trying to control things too tightly (not in here, I hasten to add), not without some justification, but what would they have me do? The meds weren't working, so the only tools I had were a fairly strict diet and exercise. I'm convinced that the only reason I've made it this far without serious additional problems like neuropathy or retinopathy, aside from my constant nagging at the surgery and clinic, is that 'military' discipline I applied to this nightmare process. I've been so jealous of those of you here, whatever type you are, who seem to keep those pesky numbers in the zone with disheartening ease. Disheartening for me that is. I do realise it's not that easy for any of us and that we all have hard times but one gets so self-centred in the battle for life. I've had a sort of tunnel vision with everything being filtered through the "I'm an uncontrolled diabetic" lenses. Having to fight the medical profession every step of the way hasn't helped me feel at all positive either.

It's incredible how my attitude to life and diabetes has changed in these last three short weeks. Even the little dose of insulin I'm on (14 units at night) is making a HUGE difference. I can see now that it is possible, even for me, to get control and have a decent life. I'd never have gone on that sailing holiday if it had been offered me 2 years ago, I'd have been too worried about something going wrong. Now none of you have actually met me yet so you wouldn't know that is not like me at all. This is the woman who went haring off too South Korea on two days notice to work when the boss called for help. This is the girl who did VSO (Voluntary Service Overseas) in Kenya and Bangladesh at 17. The one who has climbed all but one of the Munros. The nutcase who almost got brained by a seal hunter trying keep a baby seal from becoming a coat. I'm not listing these things to boast, but to highlight how narrow my view of life had become. Since the day I was diagnosed there has only been room in my head for one thing, my health.

The point of all this is to say I've got the old me back. I've rediscovered my old sense of adventure and my desire to live life to the full and not let anything hold me back. What I want to say to everyone else who's struggling like me is: keep fighting, keep nagging and don't let diabetes rule you.

Oh, and once again, my heartfelt thanks to the denizens of this place for your unstinting support and encouragement. Finding the forum may well have been the luckiest day of my life.

Brilliant, brilliant, brilliant. Good for you, that's wonderful news :D Sheena
 
Great to hear you sounding so much more positive, Alison, when you have had SO much to contend with - sometimes without much help from your diabetic "Care Team" ("Care" being a misnomer in your case if ever I heard one !) - that it's amazing you've come through it sane at all. Good on you, girl, and the best of luck for your more energised future.:D
 
Fantastic post, great to hear that things are looking up for you now, best wishes for a healthy and happy future! 🙂
 
but why oh why weren't you on insulin as soon as you were dxed with Type 1 ????

Why? Cos this is the Highlands and we've only just been dragged kicking and screaming into the 20th century. As far as the medico's up here are concerned,1.5 is a myth, they might accept it's existence in, oh, another century, maybe.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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