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Diagnosed at six months old.

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R

Ricky-dj

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Relationship to Diabetes
Type 1
🙂🙂
Hi there to you all,
My name is Rick and have just found this great site. I am 55 yrs old and was diagnosed type 1 when i was 6 mths old.
It was this time last year when things started going wrong. Blood sugar readings were all over and with all my knowledge of diabetes i could not get things right.
I went to the hospital to get help, i had lots of tests done and many changes were made but with no results. Then it was decided that i should go on an insulin pump. First i had to go on the d.a.f.n.e. course, which i thought may be boring but was very good then went on a couple of pump courses.
I went on the pump last september and all changed for the better. it was the following month that i became very ill and was taken into hospital and spent five weeks there under going tests. While in hospital, i lost all my hypoglycaemia awareness. I am back on insulin pens and following DAFNE principles, but despite this i am still having recurrent hypoglycaemic episodes.
So now the pump is going to be reintroduced and i am going to Newcastle in may this year to be considered for islet cell transplant.
It has been a bumpy ride just recently but there you go, they never said it would be easy. Take care, Rick.
 
Hi Rick, welcome to the forum 🙂 Sorry to hear about the problems you have been having recently, I hope that things are better with the pump second time around -and even better if you can get the islet transplant, good luck! Please let us know how things go, I am sure there are lots of people who will be very interested to hear how you get on 🙂
 
Ricky-dj said:
🙂🙂
Hi there to you all,
My name is Rick and have just found this great site. I am 55 yrs old and was diagnosed type 1 when i was 6 mths old.
It was this time last year when things started going wrong. Blood sugar readings were all over and with all my knowledge of diabetes i could not get things right.
I went to the hospital to get help, i had lots of tests done and many changes were made but with no results. Then it was decided that i should go on an insulin pump. First i had to go on the d.a.f.n.e. course, which i thought may be boring but was very good then went on a couple of pump courses.
I went on the pump last september and all changed for the better. it was the following month that i became very ill and was taken into hospital and spent five weeks there under going tests. While in hospital, i lost all my hypoglycaemia awareness. I am back on insulin pens and following DAFNE principles, but despite this i am still having recurrent hypoglycaemic episodes.
So now the pump is going to be reintroduced and i am going to Newcastle in may this year to be considered for islet cell transplant.
It has been a bumpy ride just recently but there you go, they never said it would be easy. Take care, Rick.
Click to expand...


Hi Rick and welcome to the forum 🙂
When you say you became very ill, what do you mean by that?
If you are having hypo problems and are following what you were taught, then go back to very simple basics. IE, as you were taught from a very young child. Same amount of carbs at a set time each day.
Have you done some basal testing, that's the very first port of call?
Have you considered a change of insulin to see if that will help?
Many people who have had type 1 for decades find the synthetic insulin's just do not work for them, so go back to using animal insulin.
Have you been tested for Addison's disease as well?
 
Welcome to the forum Rick 🙂
 
Welcome to the forum rick!

Hope the pump works second time around & the hypos go away!

Wow an islet transplant? That will be exciting for you 🙂
 
Welcome to the forum Rick!

So you'd be another who remembers the dreaded autolet then?! 😱😉

Sorry to hear things have been difficult for you - I really hope the pump helps this time round. I love mine, I have one or two miniscule niggles (& as someone else said the odd 'dump the pump' day hehe) but it's been a brilliant thing overall. Best of luck! 🙂
 
Hello there, many thanks for my welcome message, i have sent pumper-sue a longish reply as she asked quite alot of things , if you wish to read it you are very welcome along with anyone else. take care. Rick.
 
Hello 🙂 sorry things have been so rough for you recently, hope the pump works this time and you recieve less hypo's! 🙂

What is an islet cell transplant? Good luck and hope it works anyway 🙂
 
Hi Ricky a warm welcome to the forum from me
 
Sorry to hear that you are having such a bad time. Good luck with the pump this time and all the best with the islet transplant. As Twitchy says its good to have someone else who remembers the auto let, glass syringes etc etc🙂
 
Hi, yes islet cells are from a panreas and can be transplanted to the liver which then produce beta cells to produce insulin, i think that is what i was told. i will find alot more out in may.
 
Hi there AJ glass syringes, they were the thing, metal needles thy were the days ha ha
 
Ricky-dj said:
Hello there, many thanks for my welcome message, i have sent pumper-sue a longish reply as she asked quite alot of things , if you wish to read it you are very welcome along with anyone else. take care. Rick.
Click to expand...

It must have been a long reply as I haven't received it. :D
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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