diabetic neuropathy

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kittle one

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hi i have been recently diagnosed with diabetic periferil neuropathy and i would like to no if anyone else out there has had experience with it. i am only 18 i would like to no more information from people who either have it or no about it
much appreciated
frankie
xxxx
 
Hi Frankie, welcome to the forum🙂 I'm very sorry to hear about the peripheral neuropathy. How long have you been diagnosed? 🙂What has your control been like? I know that, in a lot of people the neuropathy is 'transient' - not permanent, but does cause short-term problems. Have you been given any medication to take? I am sure that other members with more experience than me will be able to give you advice.
 
Hi Frankie, welcome to the forum. I can only echo what Norhterner has said. Hopefully you will get more responses soon that will be of help.
 
hi frankie i remembered a post by another member a while back and found it I sure they wouldnt mind me reposting it for you as it would be quite difficult find...its very interesting

...."Neuropathy isn't usually in the limb or part of the body where the pain or numbness is felt. It has taken me a long time and a lot of pain and discomfort to learn that neuropathic pain is usually from the spinal cord.

The pain and subsequent distress from neuropathic pain isn't to be dismissed, people when you describe phantom pain or numbness may think you're making it up, especially as it can be in your elbow for a few hours, then move to your shoulder for no reason, then go.

Pain or numbness caused by a burn or other injury could well be actual nerve damage on it's own or in conjunction with neuropathy.

Seeing your GP should enable them to test your neurological system out and if need be refer you to see a specialist for further tests.

Good control is a major part of controlling neuropathy, but it's not the only solution to it, drug treatment can work quite well, very well or not at all. Accupuncture on the otherhand can deliver great pain relief, especially to one problem area (recurring) for anything from a few days to a few weeks. For me it's about one week.

The best pain control device I've found is my TENS machine, it works by sending a corrupted signal to the brain to cancel the pain signal that would otherwise be sent by the neuropathy. It might be worth asking your GP if they have or know of a scheme where you can try one before you buy it. Usually pain clinics have a trial scheme and also run courses on how to get the best from them.

Hope things ease soon...."

hope this helps a bit frankie x
 
Hi Frankie, welcome to the forum.
 
welcome frankie, I have been diagnosed with painful neuropathy for just over a year now, I am 25. I take medication for it which means it's most under control and bearable.
I hope that things improve for you soon. for me as well as the pain the psychological factors were something I had to work through.
 
Hi Frankie
Sorry to hear about your diagnosis. I have neuropathy at it can be a real pain! Don't be afraid of taking medication but it will take a time to work and will probably make you very dopy at first. I am so pleased with the results from the pain clinic using pregabalin and tramadol. My neuropathy has been particularly bad affecting my balance and walking but I am now improving and have very little pain. Try to see a neurologist and a pain clinic and don't be fobbed off.
Joan
 
hey guys the drugs that i am on at the moment is currently pregbalin 600mg a day so max dose, citalopram 10mg, gabapentin 300mg. and taking all that meds is not releiving me of pain, i also have a cream called capsicin 0.075% cream. it is a pepper based cream that when rubbed into my feet numbs the nerves i think not sure but all i do know is i swear by it. the stuff is amazing.
i have also gotten worse. the pain is now affecting my lower legs and hands. the hands are not too bad. but the legs are so bad that i cannot walk so i have ended up in a wheelchair. this isnt good and i wish it would all just go away. xxxx
 
am64 said:
hi frankie i remembered a post by another member a while back and found it I sure they wouldnt mind me reposting it for you as it would be quite difficult find...its very interesting

...."Neuropathy isn't usually in the limb or part of the body where the pain or numbness is felt. It has taken me a long time and a lot of pain and discomfort to learn that neuropathic pain is usually from the spinal cord.

The pain and subsequent distress from neuropathic pain isn't to be dismissed, people when you describe phantom pain or numbness may think you're making it up, especially as it can be in your elbow for a few hours, then move to your shoulder for no reason, then go.

Pain or numbness caused by a burn or other injury could well be actual nerve damage on it's own or in conjunction with neuropathy.

Seeing your GP should enable them to test your neurological system out and if need be refer you to see a specialist for further tests.

Good control is a major part of controlling neuropathy, but it's not the only solution to it, drug treatment can work quite well, very well or not at all. Accupuncture on the otherhand can deliver great pain relief, especially to one problem area (recurring) for anything from a few days to a few weeks. For me it's about one week.

The best pain control device I've found is my TENS machine, it works by sending a corrupted signal to the brain to cancel the pain signal that would otherwise be sent by the neuropathy. It might be worth asking your GP if they have or know of a scheme where you can try one before you buy it. Usually pain clinics have a trial scheme and also run courses on how to get the best from them.

Hope things ease soon...."

hope this helps a bit frankie x
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Thank you for this am it has really helped me out
 
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