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I currently feel like I’m the only one and nobody gets how I feel and I was wondering if anyone else feels like this. I could really do with some support and advice
Welome to the forum @Gemma_lfc2001 . I am very pleased that you have found us.
The very short answer Gemma is YES. It is very common for people to reach this point.
Managing T1 is hard work and there are no holidays. I found the support of others on here really helped me to pull through burnout, as well as being honest with my consultant about how I was feeling and asking for help.
Are you able to to identify any specific issues that are triggering how you feel?
I found it tempting to hide away over the last couple of months. After 9 years of Diabetes I finally hit a wall as HbA1c reached the mid 40s and so no longer improved, spinal stenosis gave me numb feet over night, an MRI showing lesions on the brain and I watched my Mum die of Dementia...
forum.diabetes.org.uk
You are not alone but there is plenty of help available on here.
Keep in touch. Have a rant (to people who most definitely ‘get it’).
You’re not the only one @Gemma_lfc2001 I had (and still have traces of) burnout. It’s a horrible thing. For me it was outside events and trying to deal with that prolonged stress on top of the stupid Type 1. People without diabetes don’t understand the relentlessness of it.
There was a very recent thread about burnout to which I and others replied:
Yes it’s very common. My daughter goes through phases of struggling and that’s with lots of support with the day to day management. You don’t get time off and much of what you’re dealing with is invisible to other people. Talk to your support network. Work out if there are ways they can help (maybe taking over some meal prep or cooking, doing carb counts for you, getting your repeat prescriptions, anything that takes some of the mental weight from you). And keep your DSN in the loop. There may not be much they can offer but it’s good to be honest about burnout.
Burnout is unfortunately very common when managing diabetes. We've been fed so many confusing bits of info re food and diet so it can be a challenge to get your head around ourselves let alone for those around us.
Is there anything specifically that we can help with?
That's the beauty of a forum like this, we really are here to support you and will be right by your side along this journey.
Ask as many questions as you like, share your frustrations and wins and we'll do our best to assist wherever we can.
Sorry to hear you are dealing with diabetes distress and burnout @Gemma_lfc2001
You are absolutely not alone, people here understand and have been through, or are going through their own experiences of it.
What sort of a relationship do you have with your diabetes clinic? Do they formally assess your diabetes distress score using one of the validated questionnaires? Is there psychological support?
If not via your hospital clinic - have you mentioned your struggles to your GP? You may be able to get a referral for some additional support or counselling?
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.