Despaired Still

[Gonzo]

Hello. After two weeks when I stopped taking my insulin and feeling fine and well with meter readings averaging 18 I have been back on insulin keeping a diary.
Result is that my readings are averaging only 16 past 17 days, so with all my effort very little carbs and insulin. So balancing this feeling of being tired ,headaches and generally feeling yuck against average of 18 feeling great ,not tired no symptoms I think ignoring treatment is good as nurse and doctor give no explanation.

I am awaiting two final blood tests as it is possible that other than the high pain levels I have other issues may cause high bs readings.
High cortisol or low testosterone being two.
I really really try but rather need to feel well rather than down and sluggish.
Really reaching out if anyone else may have had this?
All the best
Gonzo

 

[SB2015]

Hi @Gonzo

I am sorry that you are not feeling that you have found a successful way of managing your levels and feeling well. Getting things sorted to match your needs does take time and can be very frustrating. it is good to hear that you have returned to using insulin as with T1.5 your own insulin production will be reduced and eventually vanish.

I have just checked back through some of your posts and I am pleased that you now have access to 4mm needles. They make such a difference and reduce the number of bruises when on injections.

It would be worth you talking to your team about adjusting your doses of insulin. If your levels remain in the high teens your body will be suffering, even if you are feeling fine, so it is worth finding a solution to get the levels down. You are already taking insulin so it sounds like your ratios for your meal doses need adjusting, and perhaps your back ground insulin too.

There are many factors that impact our glucose levels, and changes to medications, as well as changes in the weather. It would be worth asking your team for a course such as DAFNE if you have not yet been offered this. On this they will teach you how to make your own adjustments in order to achieve your target levels. The access to these courses is often only available through the specialist teams as they gather enough people to make up a course. My apologies if you have told us this before, but are you working with a specialist team or under your GP Practice.

 

[Inka]

I’d also add that if your body has been used to high levels, then dropping to normal levels can make you feel strange at first. You get what are false hypos - you might feel weak, shaky or weird. These will pass as your body gets used to being at the right glucose level.