DAFNE Day 1

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Munjeeta

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Relationship to Diabetes
Type 1
Hello guys. I won't go into too much detail to bore you all to tears but I thought I'd share with you all my experiences of DAFNE this week. I'm feeling very hopeful 🙂 Remember, this is all from my own point of view, and although I will share as much info as I can remember it can't be taken as gospel, just my own persoanl ramblings!

Ok. So yesterday was the first day. Initially I was surprised to find out that there were only 6 people registered on it, I thought there would have been more. It's impressive, between the 6 (or 5 as someone didn't turn up) of us we have a DSN, a dietician and a diabetes specialist at our disposal for the whole week.

So first session was pretty general, back to basics, learning about what diabetes actually is, discussing our own experiences (between the 5 of us there is over 80 years' worth of experience 😱). No matter how many times I get told the science, I never seem to retain it (in spite of the fact I studied biology at degree level 😛) but this time, with it being referred to a put into practise I'm hoping it's here to stay! We talked about symptoms of untreated diabetes, and I found out that if your bg is over 10 sugar starts being lost in urine, I didn't realise this.

Then the dietician came in to do a session on carbs and nutrients. We began discussing the reasons we eat (a surprisingly large list!) and then discussed the impact diabetes had on these reasons (largely negative) - the aim for the week was conveyed then as enabling us to get back to enjoying food, not just seeing it as a necessary evil. We were tehn told about the main sources of energy in our diet and had to sort lots of appealing plastic food into categories of these: protein; fat; carbohydrate and alcohol with a '?' category for anything that didn't fit. Not as straight forward as it sounds! The most interesting bit for me was discussing the GI index. I vaguely knew about it (glucose high GI, foods that take longer to be digested, e.g.pulses, low GI), but found out that certain low GI foods (e.g. nuts, lentils) lower the overall GI value of a meal. So, although lentils do contain carbs, those carbs do not need to be covered by insulin because they are negated by the GI value. Mashing potatoes increases their GI value because you have done half the work of your digestive system already - fascinating! The last tip she gave us was that, as a rule when working out the carb content of certain foods using their total weight:
half the total weight of bread is carbs (so 60g of bread will have roughly 30g of CHO)
a third of the total weight of rice is CHO
a quarter of the total weight of pasta is CHO
a tenth of the total weight of fruit is CHO

Lunchtime was good! They provided food and we all had to try and work out the carb value of what we ate. Tricky as buffet style. But useful with the staff on hand to help and discuss. We all took 1 unit of insulin to every 10g of CHO.

After lunch was talking about targets and some useful questions to ask yourself before making any adjustments to insulin. The main points being to work out when the problem occurs, work out if there is any reason for this other than insulin doses, wait at least 2 days to ensure it wasn't just a one off and then try and work out which insulin is causing the problem and adjust accordingly. Obviously talked about in a lot more detail and was quite a useful flow diagram to remind us (me especially - over reacting and over correcting are definitely problems I have) to take a step back and consider things carefully.

The only other really interesting thing for me was finding out definitively the difference between blood glucose and HbA1c. I have been told recently about waht HbA1c is (a mesaure of how much glucose is attached to haemoglobin blood cells at the time they were made, averaged out over 120 days) but I always thought that my bg meter measured the same thing, just as a snapshot. But it doesn't. It measures the amount of glucose floating around in the blood plasma at the time of testing. So the 2 are actually completely different. I didn't realise they were SO different. 😱

And that, really is that. DAFNE day one in a nutshell. I realisd I've rambled on a little so if you've got this far well done!! (I'm not even sure if there is some clause somewhere that says you can't regurgetate DAFNE, so please if there is northerner, feel free to delete!) Bring on day 2...
 
Great thanks.

Never been on a DAFNE course so please do keep me up to date.

Gill
 
sounds good munjeeta hope all the week goes so well x
 
That's excellent Munjeeta, thank you for taking the time to post it! It's very interesting to me because I went on my own PCT's education course shortly after diagnosis so am unlikely to ever be offered DAFNE, and it's good to se that what was covered in my course was very similar.

Hope the rest of the week goes as well! I sense another DAFNE evangelist in the making!:D
 
wow, exactly what i was looking for! thanks munjeeta! im going on my DAFNE course in 3 weeks time. im really looking forward to it!
 
Thanks Munjeeta, interesting stuff about the difference between the HbA1c and BSs, and the effects of going over 10. Think I wil push to go on a course to. Keep it coming!
 
thank you for posting, very interesting.
Like you I do tend to forget the basic A&P, maybe because I'm more interested in the management.
I am on the waiting list so should be able to go next year, I'm still working on getting work to give me the time, I don't want to take annual leave for it
 
Thanks for the write-up :D did you remember all that or take notes?? :D

Really hope all this is giving you some confidence.
 
That's excellent Munjeeta, thank you for taking the time to post it! It's very interesting to me because I went on my own PCT's education course shortly after diagnosis so am unlikely to ever be offered DAFNE, and it's good to se that what was covered in my course was very similar.

Hope the rest of the week goes as well! I sense another DAFNE evangelist in the making!

Was that the BERTIE, Northerner?! We nearly got that instead of DAFNE, and I know our nurses etc were trained in Bournemouth. Is that where you are..?

thanks for posting! i did DAFNE about 18 months ago and loved it. really nice to read a catch-up of it! *must dig out info pack from DAFNE*

Yeah - SO much onfo!! But all useful, so far anyway.

wow, exactly what i was looking for! thanks munjeeta! im going on my DAFNE course in 3 weeks time. im really looking forward to it!

Enjoy. It's so lovely to spend the time on it.

thank you for posting, very interesting.
Like you I do tend to forget the basic A&P, maybe because I'm more interested in the management.
I am on the waiting list so should be able to go next year, I'm still working on getting work to give me the time, I don't want to take annual leave for it

Definitely, go go go. Unfortunately I had to take a week unpaid for it. But for me, it was worth it because I kept getting in such a mess. I'm sure I still will, but every little helps...

Thanks for the write-up did you remember all that or take notes??

Really hope all this is giving you some confidence.

Notes, Katie 😛 My memory is so full that any little bit of info pushes something else out!

Thanks all, DAFNE day 2 coming up...
 
Thanks for the information, I did dafne a few years ago and loved it, great too have the reminders of how great it is!
 
Nice work Munjeeta, and wow what a memory!

Thanks for sharing, I look forward to the next installment!

Are you going to the hospital for this I presume??
 
Nice work Munjeeta, and wow what a memory!

Thanks for sharing, I look forward to the next installment!

Are you going to the hospital for this I presume??

Indeed I am. Day trips back and forth!
 
Ok. So yesterday was the first day. Initially I was surprised to find out that there were only 6 people registered on it, I thought there would have been more. It's impressive, between the 6 (or 5 as someone didn't turn up) of us we have a DSN, a dietician and a diabetes specialist at our disposal for the whole week.

That's the whole idea of DAFNE - J.P.Asal, the WHO scientist based at Geneva in the 1970s, researched how chronically ill patients ( asthma, diabetes etc) could best be educated to manage their conditions. He discovered adults learn best in groups of 6-8 with a structured course over an intensive period ( e.g. 5 days on the trot).
Prof. Berger in Dusseldorf took up Asal's ideas and set up the German forerunner of Dafne in the early 1990s.
News of the German course and its success reached Britain and Diabetes UK ( then the BDA) brought it into Britain with the DAFNE trial of 2001. And then paid for the roll out of the first DAFNE courses and centres ( drum roll for Diabetes UK !).
So the one of the key ideas is a small group of 6-8. Big enough for a class, small enough to prevent individuals being lost.
 
That's the whole idea of DAFNE - J.P.Asal, the WHO scientist based at Geneva in the 1970s, researched how chronically ill patients ( asthma, diabetes etc) could best be educated to manage their conditions. He discovered adults learn best in groups of 6-8 with a structured course over an intensive period ( e.g. 5 days on the trot).
Prof. Berger in Dusseldorf took up Asal's ideas and set up the German forerunner of Dafne in the early 1990s.
News of the German course and its success reached Britain and Diabetes UK ( then the BDA) brought it into Britain with the DAFNE trial of 2001. And then paid for the roll out of the first DAFNE courses and centres ( drum roll for Diabetes UK !).
So the one of the key ideas is a small group of 6-8. Big enough for a class, small enough to prevent individuals being lost.

Thanks for that background info Peter, very interesting. The (non-DAFNE) course I did also had 5-6 people on it - now I know why!🙂
 
Just one thought Munjeeta - does everyone start on 1 unit insulin for 1cp of carbs. Reason I ask is, because I've worked out I only need 1 unit for each 2cps? However, still trying to work out basal/bolus ratio and have recently split dose.
 
Woohoo! Go DAFNE! I remember the plastic food 🙂

Do your hospital have follow up sessions? When i see my consultant we have an hours group session before hand to recap things and have an open discussion on dafne principals and any questions/experiences anyone has etc. Do other hopsitals do this?

Is not the same group of people each time but we are all DAFNE graduates 🙂
 
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