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Consultant Appointment

Tom1982

Tom1982

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
Had our 3 monthly appointment today. All very positive and Josie’s HbA1c was down to 6.5%. But I’m still not sure what that means in real terms. Are most on here below 6.5%?
 
Tom1982 said:
Had our 3 monthly appointment today. All very positive and Josie’s HbA1c was down to 6.5%. But I’m still not sure what that means in real terms. Are most on here below 6.5%?
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You have been told the result in % which is the old units rather than mmol/mol. The 6.5% converts to 48mmol/mol. That is the level that people would be given a diabetes diagnosis so yes many here will be more than that however would work hard to get below that threshold if Type 2.
Maybe a diferent kettle of fish if Type 1 when the criteria may well be different.
 
Is Josie type 1? If so, that would be considered very good. I'm higher than that and would love to have those kinds of results. Well done to you and Josie!
 
48mmols/mol (6.5%) is excellent for a Type 1, particularly for a child I think. The lowest I have ever got mine down to was 43 but I was having too many hypos so not sustainable. Mostly I average 45-49. Some people on pumps are able to get it a bit lower, but anything below 56 I think, is really good. Generally they are more interested in Time in Range (TIR) as that is more telling than HbA1c because you could have an HbA1c of 48 that consisted of lots of highs and hypos which averaged out at the same result as someone who had nice steady readings in the 4-10 range with very little above or below, which is obviously better for the body.
Do you know yourt daughter's TIR?

Really surprising that your consultant would use the old % result instead of the current mmols/mol units! The whole reason for changing units was to make it less confusing as it was too easy to compare it with finger prick results which should not be compared, so it seems pointless to hang on to that old system when most professionals have adopted the new units and particularly with newly diagnosed children whose parents have never used the old system. I have been diagnosed 6 years and it has been entirely mmols/mol in that time for me. If anyone quotes % I have to find a conversion chart, so thanks to @Leadinglights for looking it up for me.
 
Natalie123 said:
Is Josie type 1? If so, that would be considered very good. I'm higher than that and would love to have those kinds of results. Well done to you and Josie!
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Yeah she’s type 1, shes only 7 (diagnosed when she was 4) so I guess the lower we keep it the better? Oh and thank you. I’ll take the wins when they come because it’s bloody hard work most of the time :rofl:
 
rebrascora said:
48mmols/mol (6.5%) is excellent for a Type 1, particularly for a child I think. The lowest I have ever got mine down to was 43 but I was having too many hypos so not sustainable. Mostly I average 45-49. Some people on pumps are able to get it a bit lower, but anything below 56 I think, is really good. Generally they are more interested in Time in Range (TIR) as that is more telling than HbA1c because you could have an HbA1c of 48 that consisted of lots of highs and hypos which averaged out at the same result as someone who had nice steady readings in the 4-10 range with very little above or below, which is obviously better for the body.
Do you know yourt daughter's TIR?

Really surprising that your consultant would use the old % result instead of the current mmols/mol units! The whole reason for changing units was to make it less confusing as it was too easy to compare it with finger prick results which should not be compared, so it seems pointless to hang on to that old system when most professionals have adopted the new units and particularly with newly diagnosed children whose parents have never used the old system. I have been diagnosed 6 years and it has been entirely mmols/mol in that time for me. If anyone quotes % I have to find a conversion chart, so thanks to @Leadinglights for looking it up for me.
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That’s really good to know. I’m used to getting moaned at in them meetings. I’m sure they think we feed her pizzas at 2 in the morning or something! Her time in range is brilliant for the first day of the pump but by day 2 it gets more and more difficult. Like up all night to keep her in range difficult! The pattern normally goes 80/90% in range on day one, 70ish on day two and by day 3 she goes high and the pump gets changed. Does everyone still have consultant meetings every few months or is that a child thing?
 
48 is brilliant especially for a child - well done to you and Josie - top work @Tom1982 🙂
 
Leadinglights said:
You have been told the result in % which is the old units rather than mmol/mol. The 6.5% converts to 48mmol/mol. That is the level that people would be given a diabetes diagnosis so yes many here will be more than that however would work hard to get below that threshold if Type 2.
Maybe a diferent kettle of fish if Type 1 when the criteria may well be different.
Click to expand...
Nice one, just looked up the paperwork from today and in brackets it does have 48 mmols. Will look at that one in future.
 
mashedupmatt said:
48 is brilliant especially for a child - well done to you and Josie - top work @Tom1982 🙂
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Cheers Matt. Genuinely didn’t realise that was a decent score but it’s nice to hear. I’ll not tell her too much though…… she’ll be after some nonsense like a chocolate covered pizza or something equally carby as a reward :rofl:
 
48 is like the magical target that’s always quoted as the ultimate goal but that I never get to! So well done that’s amazing.

The units hba1c are measured in only changed 15 years ago (June 2009 apparently) so maybe your team haven’t quite caught up yet :rofl: :rofl: :rofl:
 
as so many others have already commented @Tom1982 congratulations are indeed due :star: :party:
 
Tom1982 said:
Cheers Matt. Genuinely didn’t realise that was a decent score but it’s nice to hear. I’ll not tell her too much though…… she’ll be after some nonsense like a chocolate covered pizza or something equally carby as a reward :rofl:
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Nothing wrong with the occasional carby meal.
As has often been mentioned on the forum, the treatment for Type 1 is insulin, not diet.
Although I am not sure about chocolate covered pizza, I eat both chocolate and pizza as often as someone without diabetes.

I am not sure what things are like now but when I was growing up, my parents followed a similar approach to the French with regards to wine. I drank a little (watered down) so I didn’t feel I was missing out and need to rebel.
I think it is important to treat food in the same way to avoid unhealthy relationships with food developing later.
 
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