Hi everyone. Hope all OK...but with diabetes, nothing is straightforward is it! I'm a T1. Well, I thought I was,..am! I inject humalog mix25. Previously Humulin M3...I think! But my issue (amongst others) is What am I?? T1 T2, somewhere between?! Consultant told me I'm SECONDARY Diabetic. Because of how I got diabetes. IE. Gallstones got stuck in pancreatic duct and blocked pancreas from releasing digestive enzymes out. Resulting in acute pancreatitis, then chronic, then freys procedure. What fun!!!! I ask because it effects what I qualify/meet criteria for in getting new equipment or new treatments! Any ideas much appreciated.
-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Confused diabetic
- Thread starter Newfy
- Start date
- Status
Pumper_Sue
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome to the forum 🙂
You would be classified as type 3c thus treated as type1 🙂 Hope that helps
You would be classified as type 3c thus treated as type1 🙂 Hope that helps
rebrascora
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- She/Her
As Sue has said, you are Type 3c because your diabetes is related to damage to your pancreas. I will tag some of our other Type 3cs who may be able to offer you more appropriate advice and support on how to get the support and tech that you need.... @Proud to be erratic @soupdragon @eggyg can some of you give some input.
I think most would suggest that you push for a more flexible insulin regime (ie a basal/bolus system) rather than a mixed insulin, but a few people find mixed insulin works for them. It rather depends on your lifestyle and how comfortable you are with a regimented meal plan.
Being on a mixed insulin, I think you might not be eligible for Libre sensors on prescription, so that might be another reason to push for MDI (Multiple Daily Injections.... ie a Basal/Bolus insulin system).
Do you also take Creon to replace digestive enzymes that the pancreas would normally produce?
I think most would suggest that you push for a more flexible insulin regime (ie a basal/bolus system) rather than a mixed insulin, but a few people find mixed insulin works for them. It rather depends on your lifestyle and how comfortable you are with a regimented meal plan.
Being on a mixed insulin, I think you might not be eligible for Libre sensors on prescription, so that might be another reason to push for MDI (Multiple Daily Injections.... ie a Basal/Bolus insulin system).
Do you also take Creon to replace digestive enzymes that the pancreas would normally produce?
soupdragon
Well-Known Member
- Relationship to Diabetes
- Type 3c
Welcome @Newfy from another Type 3c. One episode of acute necrotising pancreatitis caused my diabetes.
My type 3c is treated the same way as Type 1 so I qualify for Libre 2, which I find brilliant.
However, as you were already classified as Type 1 you should have already qualified. Although, as @rebrascora mentioned, you may need to be on MDI (separate long and short acting insulins) to qualify. New guidelines have just come out about availability of Libre but I haven't looked at them in detail.
Pancreatic damage generally leads to a lack of pancreatic enzymes to digest fats, protein and carbohydrates. Most Type 3cs have to take pancreatic enzymes (Creon) to help digest our food. Is that an issue for you?
Do let us know if you have any other questions.
My type 3c is treated the same way as Type 1 so I qualify for Libre 2, which I find brilliant.
However, as you were already classified as Type 1 you should have already qualified. Although, as @rebrascora mentioned, you may need to be on MDI (separate long and short acting insulins) to qualify. New guidelines have just come out about availability of Libre but I haven't looked at them in detail.
Pancreatic damage generally leads to a lack of pancreatic enzymes to digest fats, protein and carbohydrates. Most Type 3cs have to take pancreatic enzymes (Creon) to help digest our food. Is that an issue for you?
Do let us know if you have any other questions.
Proud to be erratic
Well-Known Member
- Relationship to Diabetes
- Type 3c
- Pronouns
- He/Him
Hello @Newfy,
I'm T3c following a total pancreatectomy for panc'y cancer - so my route into DM was abrupt and (perhaps) a little different. I'm treated as if T1; in principle that's OK, but being T3c without any panc'y is a challenge sometimes and my experience is that often medically qualified people don't have a clue about the medical significance of that.
T3s, in general are people with damage to their panc'y from a range of circumstances and there are various 'flavours' of T3, from a-k; some of those flavours are particularly obscure! T3c covers quite a wide range in itself and can include people who don't need insulin. So it is not a 'given' that T3c means you need insulin. All a bit confusing!
Creon is a must for me, without that artificial help for digestion my food intake would mainly pass through messily and unpleasantly.
Not sure I can help you very much more; as a pre-existing T1 you should already qualify for whatever else you might need in respect of your DM. I have Libre and find that invaluable; my BG is extremely brittle, ie erratic and can change very quickly - for reasons that aren't always clear. I know relatively little about Pancreatitis. You might find you need additional Specialist support for your DM, your Pancreatitis and possibly Gastro problems. I found getting these different Specialists to become 'joined up' has been challenging and while I thought my GP would be the overall co-ordinator (with the medical wit to know who does exactly what), alas not so; I co-ordinate, or it doesn't happen, including getting appropriate blood tests done and data shared.
Ask this forum any thing that arises and you can't grapple with. No question is stupid. There is a wealth of experience within the forum and someone invariably pops up to answer the most obscure question.
Good luck.
I'm T3c following a total pancreatectomy for panc'y cancer - so my route into DM was abrupt and (perhaps) a little different. I'm treated as if T1; in principle that's OK, but being T3c without any panc'y is a challenge sometimes and my experience is that often medically qualified people don't have a clue about the medical significance of that.
T3s, in general are people with damage to their panc'y from a range of circumstances and there are various 'flavours' of T3, from a-k; some of those flavours are particularly obscure! T3c covers quite a wide range in itself and can include people who don't need insulin. So it is not a 'given' that T3c means you need insulin. All a bit confusing!
Creon is a must for me, without that artificial help for digestion my food intake would mainly pass through messily and unpleasantly.
Not sure I can help you very much more; as a pre-existing T1 you should already qualify for whatever else you might need in respect of your DM. I have Libre and find that invaluable; my BG is extremely brittle, ie erratic and can change very quickly - for reasons that aren't always clear. I know relatively little about Pancreatitis. You might find you need additional Specialist support for your DM, your Pancreatitis and possibly Gastro problems. I found getting these different Specialists to become 'joined up' has been challenging and while I thought my GP would be the overall co-ordinator (with the medical wit to know who does exactly what), alas not so; I co-ordinate, or it doesn't happen, including getting appropriate blood tests done and data shared.
Ask this forum any thing that arises and you can't grapple with. No question is stupid. There is a wealth of experience within the forum and someone invariably pops up to answer the most obscure question.
Good luck.
Leadinglights
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
I remain astounded that my other half's mother had severe pancreatitis and had surgery, the family were told she may not survive and yet has needed no subsequent treatment, no diabetes, no requirement for Creon or anything. This was in Zimbabwe (then Rhodesia) where it was a new surgery about 50 years ago, she is now 97 years old.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
I do take creon. With virtually everything I eat!The amount of creon varies depending on the meal. The amount of insulin is fixed. 9ml breakfast. 7ml evening meal. Starting to experience more hypos than usual. Previously 2-5 a week. Now, 1 a day. Minimum. Have other issues aswell as diabetes. Update. Now been informed I'm Type 2.!!! I just want some freedom from pricking fingers to check before I do anything!! Hence the freestyle libre wish. Would love this Omnipod system or similar to really get some of my life back! The constant admin and constant thoughts of can I do this go there, do that , worry where my sugars are!! And the way they're behaving lately isn't helping. Out of the usual/norm. Am probably sounding selfish...wanting more freedom , sugars being monitored 24/7. Hard to do that unless prick fingers every 15mins or so!! Am rambling. Apologies.
Thank you. Mind is a bit scrambled. Got a few things going on which are getting on top of me a bit. (Family, and other heath concerns). I was put on metaforulin, or something like that at the start. Following my operation. Didn't get on with it I recall vaguely! Then diet control for 5 or 6 years. Then out of the blue, put on humbling m3 insulin pen. That triggered countless hypos Daily!! But once used to it, made changes it was OK. Albeit reduced number hypo Daily. Now on humulog mix25. Agree totally, specialist's don't seem to communicate to each other. Diabetes , gastroenterology, dietitian, rheumatology, GP. I feel like a ping-pong ball between them, having to inform what 1 said to another specialist. Feel like I'm going nuts trying to manage all my health issues !!!!
- Status