CGM for Type 2 Diabetes

Status
Not open for further replies.

CathyFP

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Pronouns
She/Her
Hi,
I was diagnosed with Type 2 Diabetes a year ago. As my weight, diet and exercise levels are all very good but I could not get my HBA1C results down, I was prescribed 500mg Metformin twice a day. I have discussed self funding a CGM with my GP who thinks it is a good idea but can’t give me any information about how to do this or what CGM to purchase. I want to use a CGM to better understand whether my diet is right. Can anyone in a similar situation advise on how to purchase a CGM, how easy they are to use and how different manufacturers compare?
Thanks

14.08.23 HbA1c 57
12.05.23 HbA1c 60
30.12.22 HbA1c 53
08.10.22. HbA1c 59
30.09.22 HbA1c 59
14.09.22. HbA1c 56
28.03.22 HbA1c 46
06.12.21 HbA1c 45
15.08.20. HbA1c 40
 
I’ve bought a few direct from Abbot (Libre 2)

They also offer a free trial.

It’s a good idea, you get a complete picture of what is going on when you eat, sleep and exercise.

 
The best CGM is very personal.
Libre is the most common. This is mostly because, of the cheaper options, it has been around for the longest. As a result you will see more distractors but remember there are many people who have been happily using it for years

Given they do a free trial, I would recommend trying it out and seeing if it suits you but remember the limitations of all CGMs before getting frustrated by inaccuracies.
 
Last edited:
Hello @CathyFP. I've bought the odd Libre in a chemist a couple of times. With an official T2 diagnosis you can claim VAT exemption.

An alternative manufacturer is Dexcom and I think you can only purchase direct from them. Currently they sell the Dexcom One which matches Libre 2 in price and the more expensive G6 or G7.

Libre 2 seems the most frequently used in UK and it lasts 14 days. You could use it periodically - ie wear one for a fortnight to see how your body responds 24 hrs a day to daily living and how it responds to specific foods. Then take a financial break and see how the next two or more weeks go and then have a second fortnight with Libre 2. And so on. Abott have been offering a free 14 day trial and I would apply for that straightaway while it still exists - even if you don't wear it immediately while you work out your strategy. The Libre 2 phone app allows you to record lots of notes but you should check your phone is compatible. Otherwise you need a Libre Reader which costs a further c.£50 and has a very limited basic note taking process. Recently Libre 2 when used with a phone app has been upgraded to provide a real time continuous display of readings, whereas the Reader needs you to scan to get an actual reading. So with a Reader it's not quite a true Continuous Glucose Monitor.

Dexcom One is a 2 part system. There is a Sensor which lasts only 10 days and a Transmitter that is clipped on top of the sensor which lasts 90 days. So the sensor is disposed of and the transmitter clipped onto a series of replaced sensors. Once the transmitter is activated its clock is ticking. So if you were to have 10 days with a sensor then 10 days without, followed by another 10 days with a new sensor (and so on) then the transmitter will be wasting away while there is no sensor. This is doable but makes it a bit wasteful across the 90 days. Dexcom One works to an app on a mobile phone, but it seems there are less phones that are compatible. Compatibility is easily checked - the app won't download and install if your phone is not compatible. Dexcom One also can work to a Receiver (equivalent to a Libre Reader) - which also costs £50 and I know nothing about. The Dex One phone app does not provide any note recording functions and does NOT allow you to take daily screen shots [just how unhelpful can a Manufacturer be? ! ]

I'm not going to talk about the more expensive Dexcom G6 or G7 at this moment.

Personally I would suggest starting with Libre 2 and see how that works for you as a simpler and more flexible start point. Both Libre and Dexcom provide a backup process for all your accumulated data into a web based site - which is really helpful.

All CGMs have limitations and you can find an explanation of those from the link below. All CGMs need you to still do some finger pricking - to establish the relative accuracy and to independently check when CGM readings are very low or high.


ALL THAT SAID - I would suggest you challenge your less than helpful GP to do his/her bit. With an HbA1c starting at 40 in 2020 some 3 yrs ago and then steadily rising to 53 today that GP, in my opinion, has a medical responsibility to help you find out what is going on - rather than sitting unhelpfully on their hands. You could apply for and start a Libre 2 trial (having done some preparation in deciding what you can find out and how) then your GP could assist by prescribing a Libre 2 at least once, to allow you to have 14 days with, then 14 days without and a further 14 days with. Armed with 6 weeks knowledge the Surgery could then provide some brain power to assist with some detective work! I despair at our NHS strategy - it is well aware that T2 is a blight, yet do far too little to help and guide those diagnosed with T2. You are clearly concerned and want to do your bit to improve your health, challenge your GP to add aome value! Rant ended.

Members of this forum can point you towards a strategy for how to get useful data from a CGM.
 
Agree with @helli

When I used Libres I found the results different quite radically from finger pricks - especially when it was changing quickly like when eating or doing exercise. Once settled, they seemed very accurate, but also the readings seemed to change after they'd been in for around a week - explained by soiling of the filament in the skin. Higher readers were far less accurate.
 
The best CGM is very personal.
Libre is the most common. This is mostly because, of the cheaper options, it has been around for the longest. As a result you will see more distractors but remember there are many people who have been happily using it for years

Given they do a free trial, I would recommend trying it out and seeing if it suits you but remember the limitations of all CGMs before getting frustrated by inaccuracies.
Thanks for the information
Hello @CathyFP. I've bought the odd Libre in a chemist a couple of times. With an official T2 diagnosis you can claim VAT exemption.

An alternative manufacturer is Dexcom and I think you can only purchase direct from them. Currently they sell the Dexcom One which matches Libre 2 in price and the more expensive G6 or G7.

Libre 2 seems the most frequently used in UK and it lasts 14 days. You could use it periodically - ie wear one for a fortnight to see how your body responds 24 hrs a day to daily living and how it responds to specific foods. Then take a financial break and see how the next two or more weeks go and then have a second fortnight with Libre 2. And so on. Abott have been offering a free 14 day trial and I would apply for that straightaway while it still exists - even if you don't wear it immediately while you work out your strategy. The Libre 2 phone app allows you to record lots of notes but you should check your phone is compatible. Otherwise you need a Libre Reader which costs a further c.£50 and has a very limited basic note taking process. Recently Libre 2 when used with a phone app has been upgraded to provide a real time continuous display of readings, whereas the Reader needs you to scan to get an actual reading. So with a Reader it's not quite a true Continuous Glucose Monitor.

Dexcom One is a 2 part system. There is a Sensor which lasts only 10 days and a Transmitter that is clipped on top of the sensor which lasts 90 days. So the sensor is disposed of and the transmitter clipped onto a series of replaced sensors. Once the transmitter is activated its clock is ticking. So if you were to have 10 days with a sensor then 10 days without, followed by another 10 days with a new sensor (and so on) then the transmitter will be wasting away while there is no sensor. This is doable but makes it a bit wasteful across the 90 days. Dexcom One works to an app on a mobile phone, but it seems there are less phones that are compatible. Compatibility is easily checked - the app won't download and install if your phone is not compatible. Dexcom One also can work to a Receiver (equivalent to a Libre Reader) - which also costs £50 and I know nothing about. The Dex One phone app does not provide any note recording functions and does NOT allow you to take daily screen shots [just how unhelpful can a Manufacturer be? ! ]

I'm not going to talk about the more expensive Dexcom G6 or G7 at this moment.

Personally I would suggest starting with Libre 2 and see how that works for you as a simpler and more flexible start point. Both Libre and Dexcom provide a backup process for all your accumulated data into a web based site - which is really helpful.

All CGMs have limitations and you can find an explanation of those from the link below. All CGMs need you to still do some finger pricking - to establish the relative accuracy and to independently check when CGM readings are very low or high.


ALL THAT SAID - I would suggest you challenge your less than helpful GP to do his/her bit. With an HbA1c starting at 40 in 2020 some 3 yrs ago and then steadily rising to 53 today that GP, in my opinion, has a medical responsibility to help you find out what is going on - rather than sitting unhelpfully on their hands. You could apply for and start a Libre 2 trial (having done some preparation in deciding what you can find out and how) then your GP could assist by prescribing a Libre 2 at least once, to allow you to have 14 days with, then 14 days without and a further 14 days with. Armed with 6 weeks knowledge the Surgery could then provide some brain power to assist with some detective work! I despair at our NHS strategy - it is well aware that T2 is a blight, yet do far too little to help and guide those diagnosed with T2. You are clearly concerned and want to do your bit to improve your health, challenge your GP to add aome value! Rant ended.

Members of this forum can point you towards a strategy for how to get useful data from a CGM.
thanks for all this very helpful information
 
Thanks for the information

thanks for all this very helpful information
Simplest is Libre. Dexcom One needs sensors (10 days each) but also transmitters (which last 3 months), so if you don't use it continuously you'll be wasting some of the time of each transmitter (they stupidly have non-rechargeable non-replaceable batteries).

Libre 2 just needs sensors (14 days each), and (maybe) a reader which has a rechargeable battery (which you'll need to charge every couple of days) so you can use one sensor a month or whatever.
 
I know you have asked about a CGM but is it worth trying a finger prick monitor first? It will work out a lot cheaper and will give you the same results you're after - determining what foods will spike your BG and what your body can tolerate.

Just a thought as the CGMs seem quite expensive to self-fund.
 
Libre works brilliantly for me and I have been using it for 3 years. Definitely worth getting the free trial as it is a no strings offer. The only criteria are that you are diabetic, have a suitable phone to read it and have not used/purchased the system before. Beware...you may find it somewhat addictive though!! It is available through the Freestyle Libre 2 website.

With CGMs in general, you have to be aware of their limitations and there is a post about it here...
 
I know you have asked about a CGM but is it worth trying a finger prick monitor first? It will work out a lot cheaper and will give you the same results you're after - determining what foods will spike your BG and what your body can tolerate.
Yes, certainly do that.
 
@CathyFP, having had a rant earlier this morning .... it seems to me that from your height and weight last November your BMI was a very respectable 23 and that alone should be enough to get your GP a bit more involved in your T2 diagnosis.

I deduce you have only now started on any oral meds. Have you previously made determined efforts to reduce your carb intake and ease the burden on your apparently overworked panc'y? Do you now have a BG testing meter and have you done some pre-prandial and 2 hrs later tests, to allow you to identify any particular meals that your metabolism doesn't handle well?

I should also have said that during 2022 there were changes made to the NICE Guidance Note (NG28) which the NHS and (closer to you) your regional Integrated Care Board (ICB) use to steer GPs in parameters for a diagnosis and method of treating that diagnosis. Previously GPs were extremely constrained in when they could provide CGMs for T2s and certainly needed a recommendation from an appropriate Consultant. But the 2022 amendments to NG28 provided GPs with more leeway to make appropriate unilateral prescribing of CGM. I think your GP could use his/her clinical judgement to be a little more helpful to you - without necessarily setting an overall precedent for all that Surgery's T2 patients. That judgement will depend to some extent on what changes you have actively adopted over the last 11 months - and yet got a steady increase with your HbA1c. But even with an HbA1c of 57 today, that is still not hugely into the diabetic zone. By using CGM to more actively monitor your daily BG graphs and see so clearly some causes and effects it would make sense to do that - rather than the classic resorting to a prescription pad and oral meds.

It’s a good idea, you get a complete picture of what is going on when you eat, sleep and exercise.
I strongly agree with @harbottle comment. Not only can you see daily graphs, with Libre 2 you can take daily photos of those graphs and do some easy comparisons without a great deal of memorising - even without using the extra LibreView Web site for even more analysis of data records, trends etc.

Anyway, something to consider.
 
Status
Not open for further replies.
Back
Top