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Can't believe I have more eye problems

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

AJLang

Well-Known Member
Relationship to Diabetes
Type 1
As some of you may remember I have number of eye retinal problems - mainly stemming from hemi retinal vein occlusion in my left eye that subsequently caused neovasculation leading to a significant amount of laser. Moorfields have previous said there no room for anymore lasering in that eye and damage to my macula from the vein occlusion means that I have no useful vision with my left macula.
I've also had glaucoma in both eyes for 20 years and the extremely early sign s of macula degeneration in my right eye and a retinal membrane but it is the eye that I've been relying on for the last 22 years for all of my crafting etc.
Anyhow sorry for the long background. Went to Moorfields retinal diagnostic hub at Hoxton last Tuesday where they do all the tests quickly so you don't get any results but wait for the consultant to review it online. Patients will only be asked to attend a subsequent hospital visit if the consultant sees something requiring urgent or personal attention.
So I'm now rather upset that I've just received an appointment letter in the post for early October - I just so hope that my relatively "good" eye is ok but I've have been noticing that it isn't as clear, comparatively speaking as it was.
I was particularly shocked by the letter because 18 months ago the Moorfields retinal consultant thought that me having anymore problems was very low and my local hospital said everything was ok (for me) three months ago. Hey ho Moorfields Gluacoma next Tuesday but they don't discuss the retinal stuff.
HBA1C is 6.6 (lowest consultant really wants it because of the risk of hypos with the gastorparesis), blood pressure good and cholesterol 4.7 with the breakdowns ok. I'm limited with my food choices because of the gastroparesis so not sure what else I can do.
Guess I just needed to let off steam.
 
Thank you Jenny x
 
Bugger. Hope your follow up in October goes well. Sensing you some extra hugs. X
 
Oh sorry to hear this. Hope it is your appointment goes well.
I remember when a friend of mine went to work at Moorfields about 40 years ago, I was suprised even then how many sub specialities they had.
 
Sorry you have this worry Amanda. It is very hard when something like this happens and you really don't know what is going on. Sending love and hugs.xx
 
Sending (((hugs))) too.
 
So sorry to hear this. Having to wait until October is difficult as it is.

I really hope that all goes well during your appointment, do keep us updated.
 
Thank you very much everyone. I’m hoping that I will get a letter soon from Moorfields explaining the test results. I’m not dealing very well with the news but will try to focus on my crafting and painting that I enjoy xx
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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