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Can you remember your first week?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Amberzak

Well-Known Member
Relationship to Diabetes
Type 1
Can any of you remember your first week on insulin? My husband asked me how I felt when I was first diagnosed about doing all the tests and injections, and whether they hurt more then. And to be honest i can't actually remember. I couldn't even tell you what year I got diagnosed.

Do any of you remember what it felt like?
 
I do, it was only six months ago 🙂. It didn't hurt more, but it was irritating when I was so ruddy hungry. For me it was a relief, I'd been ill for 12 months with a B12 deficiency, and then more ill for a few months prior. I was convinced I was going to drop dead at any point and honestly that would have been a mercy I felt that dreadful. They only just caught me in time so I was very lucky and very relieved they'd worked out what was wrong and it was "only" diabetes. At that point I'd have cheerfully injected hot pokers if they'd told me to, so my perception is probably very skewed 🙂
 
I was misdiagnosed at the beginning, age+weight=T2 and it took 6 months of constantly haunting the surgery to get the blood tests done that proved I'm actually T1.5. I was desperately ill on a BG rollercoaster and having terrible reactions to the meds as well. Things improved quickly once I got on insulin, though I still had a long road to travel to get the HbA into a reasonable place. Once I was off a whole heap of meds that did nothing for me, I felt a lot better. Never had any trouble injecting or finger pricking though I was nervous to start with and I do hate the BG testing cos it bleedin' hurts and I'm a wimp! I still do it though, because I know how vital it is.
 
I can remember my first week, it was 36 years ago. I didn't realise at first that I would need to inject everyday, I was shocked when the nurse turned up the following morning to inject me again. I was on 1 injection of pork insulin called Lente I think, the syringe was large and re usable and had to be stored in surgical spirit. The insulin wasn't u100 like today, I think it was u40 so not as concentrated, you had to use a syringe with the correct markings to match the strength of the insulin.

There was no blood glucose monitoring just urine testing in a small glass test tube with reagent tablets. The results of the test showed very little, it either went blue if you had no glucose in your urine or orange for a positive result. Goodness knows how anyone guessed the correct dose of insulin back then. I stayed in hospital for 2 weeks until I got a bit of strength back. Weird times thinking about it, very hit and miss control wise. Thank goodness for technology.
 
I do, it was only six months ago 🙂. It didn't hurt more, but it was irritating when I was so ruddy hungry.

Oh my goodness. I remember the hunger. Yes. It's flooding back now. 🙂

I was very ill. I do remember that.
 
I don't really remember much of my first week apart from I was in the Sick Kids Hospital in Edinburgh and I was quite bored!

Flower - that sounds mental! I've heard about the pre-BG testing but never thought about how it would affect insulin doses. I guess it was a one size fits all approach? Weight in KG x Height x Number of pets or something mad = insulin amount :D
 
I can remember my first week, it was 36 years ago. I didn't realise at first that I would need to inject everyday, I was shocked when the nurse turned up the following morning to inject me again. I was on 1 injection of pork insulin called Lente I think, the syringe was large and re usable and had to be stored in surgical spirit. The insulin wasn't u100 like today, I think it was u40 so not as concentrated, you had to use a syringe with the correct markings to match the strength of the insulin.

There was no blood glucose monitoring just urine testing in a small glass test tube with reagent tablets. The results of the test showed very little, it either went blue if you had no glucose in your urine or orange for a positive result. Goodness knows how anyone guessed the correct dose of insulin back then. I stayed in hospital for 2 weeks until I got a bit of strength back. Weird times thinking about it, very hit and miss control wise. Thank goodness for technology.

I'm very thankful I was diagnosed when things had moved on, me and syringes never worked well, I'd probably have punctured something 😱 I'm impressed with all those who managed with such basic equipment though 🙂
 
Oh my goodness. I remember the hunger. Yes. It's flooding back now. 🙂

I was very ill. I do remember that.

I think the hunger memories will stay with me forever. I have never, ever experienced anything like it. I was in a cardiac ward so the nursing staff didn't really understand and had no food to hand. My lovely mum brought me a multipack of crisps and carrs crackers (I really really wanted salt, assume that was the dehydration), and one of the diabetes consultants threatened to take them away, I told him if he took them I would have to hurt him. He thought I was joking but I'm pretty sure I'd have given him a pretty good nip if he hadn't put them down 😱
 
I did just remember something else from those early days. The day I was diagnosed, I rushed to tesco and bought a pack of jam donuts and ate the lot. I don't even like jam donuts, but the thought of never being able to eat them ( as I thought was the case) made me want them
 
I remember crying a lot. And reading the leaflets the hospital gave me about diabetes and kept thinking "that doesn't apply to me"then the realisation "Oh yes, I'm one of those people the leaflet is about now". Also the first few injections and finger pricks I had to psyche myself up to do... then it just became routine and it made me feel better so it wasn't that big a deal. Telling other people was the worst part, actually. My parents, sister and boyfriend were great, but other people were well meaning but less helpful. Like my Grandma who kept saying "I'm sorry, it's going to affect your life isnt it? You can't have this, can't do that, can you still drive, with your health problems? I can't sleep, worrying about you...."
 
Just remembered, then the really bizarre thing was that as I had a week off work and tried to get back on track with normal life, I got asked out on dates by 3 random blokes! I'd never been asked out by a stranger before in my life, and was happily in a relationship, but I got asked out by Bloke 1 while gardening, Bloke 2 in the GP waiting room (going to get my prescriptions set up) and Bloke 3 (this was the creepiest!) while in the communal shower at the swimming pool! Made me wonder if my insulin was full of pheromones or something. Happy to say this has never happened since. Made it a strange week!
 
My son was 4 when he was diagnosed (13 now), but has some very clear memories of that traumatic time - not memories planted by me, because I didn't remember this one: he clearly remembers how frightened he was in his hospital bed waking up in the night to find this dark shadow looming over him, and knowing it was the nurse come to hurt his finger again! We didn't have an age-appropriate fingerpricker yet, and despite it being a paed ward, the pricker they used was an evil thing that butchered his poor little fingers. A horrid horrid time :(
 
I can remember my first week, it was 36 years ago. I didn't realise at first that I would need to inject everyday, I was shocked when the nurse turned up the following morning to inject me again. I was on 1 injection of pork insulin called Lente I think, the syringe was large and re usable and had to be stored in surgical spirit. The insulin wasn't u100 like today, I think it was u40 so not as concentrated, you had to use a syringe with the correct markings to match the strength of the insulin.

There was no blood glucose monitoring just urine testing in a small glass test tube with reagent tablets. The results of the test showed very little, it either went blue if you had no glucose in your urine or orange for a positive result. Goodness knows how anyone guessed the correct dose of insulin back then. I stayed in hospital for 2 weeks until I got a bit of strength back. Weird times thinking about it, very hit and miss control wise. Thank goodness for technology.
:D
Those were the days. I can't remember my first week of diagnosis because I was only two and this was 43 years ago
 
I can remember it was only about 10 years ago and all I was worried about was if I'd be able to go on the holiday we had booked to Tenerife. Mon-wed night hospital, Thursday hospital and diabetic clinic where doctor said yes I could fly on Friday. Relief as so tired and weary. Also had lost so much weight clothes were too big. Had hoped I would stay skinny but now pleased I am back to normal.
 
Well for me I was on oral meds then was put onto insulin 1 year later, and this was my post after being told I was being put on insulin...and for me this was like being diagnosed for the first time! 🙄

Where do I start, feel like I have been diagnosed with diabetes all over again, spent an hour with my dn, and will be put on insulin on Tuesday on my next appointment, so much to take in, got given a folder 1 inch thick to read through about taking insulin, and given a pen which I will use to inject to get used to, I feel sorter numb as I did not expect this, I thought more tabs not this so quick, she said I would be taking it for life
so there you go....my head is all over the place right now.
 
I'm with Flower LOL !

Porcine UltraLente, made by the Wellcome Foundation, 80u per ml. (They also did 40u/ml)

They worked out your dose by what you ate and your lifestyle, as an adult. And told you when you had to eat each lot of carbs, to match the action of the insulin. There were formulae for calculating things like that - the Houseman actually turned up by my bed, with literally a used envelope, covered in calculations to tell me mine!

Then they kept you in hospital whilst they tried it out on you - in case it wasn't right - before they let you go home. To boil up your own syringes and boil up your own pee !

You didn't adjust your own dose - you couldn't.

WE couldn't have disposable syringes on scrip for some years. But as soon as you could buy them - I did. £1.25 for a pack of 10 - 42 years later they are still the same price! And when meters were invented, they said they would prescribe the strips - but you had to buy the meter yourself. Cost A WHOLE MONTHS salary.

Oh happy days LOL

Not.
 
I spent my first week in hospital as I was seriously ill with DKA when admitted. I actually felt fighting fit by the second day, once I had some insulin in me, and felt a bit of a fraud for being there, but they thought I had had a heart attack so kept me for an angiogram, which turned out to be fine. I couldn't see properly so had a hard time passing the time as I couldn't read anything. I seeme to remember spending most of the time feeling ravenous and waiting for the next meal, then eating, then waiting for the next meal! All the time I was there, getting tested and being given my injections, it never occurred to me that this was something I would have to manage myself for the rest of my life (or the next 10 years? 😉) - I got about 10 minutes with the hospital DSN who taught me about the needles and meter, and then it was home and on my own.

Fixed doses of novorapid and insulin and calling the DSN daily with my readings so she could give me dose adjustments, but I quickly came to realise when the dose was too high or low for the meal, so started adjusting on my own after the first week or so. I'd lost a lot of weight prior to diagnosis and for a while I ate like a horse at every opportunity. I remember giving my neighbour some jars of honey I had bought pre-diagnosis as I thought it was now a no-no. It took me a while to realise just how ill I had been. I've always been very lucky with my diabetes as my control has been good. My lifestyle helps with that, working from home, eating what I want, when I want, plus my pancreas has recovered some beta-cell function which probably smooths my upper levels a bit, and has meant that I now no longer take lantus since 4 years post-diagnosis.

Eee though! I do spare a thought for you 'old'timers' and what you had to deal with...:D

I won’t forget those wise old words my Daddy said to me
As he sat down in his chair one night and perched me on his knee.
He said, ‘Son, diabetes wasn’t always so much fun,
So let me tell you how it was in 1931!’

Twice a day we’d drive to town, down to the abattoir,
Pick out a bovine pancreas and stow it in the car,
And when we got home Mum and Dad would mash that organ up,
And strain it through a muslin bag into a paper cup…

Then Dad would get some chemicals and boil them in a pan,
Adding bits of this and that with flourish and élan!
And meanwhile I would drink and drink until I had to pee,
And Mum would take a jar away, as swiftly as could be!

She’d add it to the chemicals, and if it turned bright red
Then I would have no supper and be sent off straight to bed.
But if it just turned yellowish, I’d have something to eat
Like carrots mashed in gravy, with sweet pickles for a treat!

I didn’t like the needles though, at least six inches long!
So Mum would jig around the room, distracting me with song!
And when he’d scraped the rust off, Dad would stick it in my butt,
I’d bite down on a leather strap to keep my mouth tight shut!

So, should you whinge and moan about how finger pricking’s bad,
Then pause to contemplate about the progress we have had.
We’ve gone from times when prospects for our future might seem poor,
To looking forward to the day that they announce the cure! :D
 
Oh my goodness, your poem made me giggle Northerner, I used to dig my fingernails into my wrist when my Mum used to stick the great big needles into me, not quite biting on a leather strap but close!
 
Am only just completing my first month on insulin, so very fresh in my mind. As I had a diagnosis of type 2 since September and had been feeling worse and worse, with sugars rarely reaching below 13, I was very relieved to start insulin. I rang up the DSN on a Thursday to say I couldn't cope anymore trying gliclazide and expected an argument as I was only half way through my trial of this drug. She was fantastic and told me to come into hospital the next day to start insulin.
I was so relieved and although was a steep leaning curve, being given everything in an hour-long meeting and then let loose alone for the weekend, I was so pleased and relieved. I hadn't even injected so did that at home for the first time. Still in happy insulin bubble, although find variances in BS difficult.

I love my little pens and am happy to be alive and healthy! 🙂 🙂
 
LOL Steph - you is a T1 !

If you were LADA, that actually responds to T2 drugs at first. That lasts anything from months to years. You didn't.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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