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- Type 1
A group of MPs is calling for a ring-fenced fund to pay for drugs for rare conditions.
The Parliamentary Group for Muscular Dystrophy says it is concerned about funding for high-cost drugs.
It comes after the special budget for treating rare diseases in England was merged into the overall NHS budget. Scotland has a fund in place for the so called "orphan drugs" until April 2014.
A UK-wide strategy for rare diseases will be published this year.
http://www.bbc.co.uk/news/health-23930267
The Parliamentary Group for Muscular Dystrophy says it is concerned about funding for high-cost drugs.
It comes after the special budget for treating rare diseases in England was merged into the overall NHS budget. Scotland has a fund in place for the so called "orphan drugs" until April 2014.
A UK-wide strategy for rare diseases will be published this year.
http://www.bbc.co.uk/news/health-23930267