Battle with high/lows due to constant exercise....new user

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scott.kat131

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Relationship to Diabetes
Type 1
Hi there,

I don't normally post on any of these forums, much prefer to read rather than write for advise myself but just recently after 20 years of having type 1 diabetes I again find myself at quiet a low point. Feeling like the constant battle is really just to much. Don't worry I'm not about to go and do anything stupid! But I just wondered if any one gets like this. The diabetic clinic always tells me I'm well controlled. This baffles me as the constant struggle to regulate my blood sugars is a daily occurrence and it makes me wonder how other people get on. I myself have always been quiet attentive to my diabetes (perhaps during my teenage years not so much but hey we're all human right!) it seems as if there really is no science and even the diabetic specialist really have no idea due to the swaps and changes in the do's and don't's over the years.

I am a PSCO which means I walk constantly for 10 hour shifts. The impact this is having on my health feels quiet detrimental. I'm either low then high then back to low again or I deal with the lows and end up high a lot!!

I get it all worked out then something else comes into the mix and its back to the drawing board again. I am on Nova rapid and Lantus.

I have read some of the threads here on the forum and there is some really useful stuff.

I am and always have been an active person. I love going to the Gym and going for runs but I daren't do either at the moment until I get on top of these highs and lows I am getting simple by going to work everyday...The constant worrying about the damage being done to my body scares me everyday.

Not really sure any one can help me just wondering if anyone else experiences the same..Although the diabetic clinic say I am a well controlled diabetic I really do not think so and it is starting to impact on my mental health I am sure..Not that I would let anyone outside the Diabetic world know that, they do not understand.

If you have read this thanks for your patience I appreciated it is quite a long post!
 
Hi Scott, sorry to hear about the problems you are having :( It might be worth doing some basal testing if you haven't done so recently, to see if your lantus dose is set correctly. Have a look at the following:

http://www.diabetessupport.co.uk/boards/showthread.php?t=19060

Has anyone ever offered you a pump? This might help to give you finer control and cope with changing circumstances better.
 
Hey Northerner, Thanks for the link I will check it out..dropping my lantus is going to be my next trial..thing is its already only 22 units I worry about dropping it to low.

The funny thing is my NHS diabetic clinic have put me forward for the pump as apprently I'm in their top 5 controlled diabetics unfortunetly they just don't have the funding for it at the moment. Also I worry about how this would impact me job for instance I deal with Volitile aggressive members of the public what if it was torn of me ?!
 
Hey Northerner, Thanks for the link I will check it out..dropping my lantus is going to be my next trial..thing is its already only 22 units I worry about dropping it to low.

The funny thing is my NHS diabetic clinic have put me forward for the pump as apprently I'm in their top 5 controlled diabetics unfortunetly they just don't have the funding for it at the moment. Also I worry about how this would impact me job for instance I deal with Volitile aggressive members of the public what if it was torn of me ?!

I wouldn't worry about dropping the lantus - at one point I was on 2 units a day! As long as it is keeping you steady and in range when you are not eating then the dose is correct for you.

As I don't have a pump myself, I can't really comment on how secure they can be made, although I have heard people say how they didn't come loose even when caught (for example) on a door handle, or pulled vigorously by a child 😱
 
I wouldn't worry about dropping the lantus - at one point I was on 2 units a day! As long as it is keeping you steady and in range when you are not eating then the dose is correct for you.

As I don't have a pump myself, I can't really comment on how secure they can be made, although I have heard people say how they didn't come loose even when caught (for example) on a door handle, or pulled vigorously by a child 😱

Ok well that's reassuring to know on the Lantus front Ill definitely give reducing it a go...

I'm sill not convince about the pump though but ill keep an open mind..thanks very much for your help 🙂
 
hey Scott !

I agree with the pump suggestion. It does make it a lot easier, once you get used to it. Well D is never exactly easy, we all know that here, but management of it is so much more flexible - that basal insulin is right for a lot more of the time, because you can make such tiny adjustments and temporary adjustments, up or down - it just drips in, approx. every 3 minutes rather than injecting it just once or twice a day - you only use 'fast' acting insulin in a pump - eg Novorapid, Humalog, Apidra. No L's (Lantus or Levemir) etc

I don't think 'lack of funding' is a viable excuse these days ! I believe that the NHS are obliged to provide a pump to anyone who a consultant recommends will benefit from one.

I therefore strongly recommend you have a word with INPUT -

http://www.inputdiabetes.org.uk/

because their purpose in life is advocacy for pump users/potential pump users.

And lastly, or even firstly, there's another organisation that assists and advises diabetics in adjusting doses when taking exercise - Runsweet.

http://www.runsweet.com/

Website may have something useful, or email them if not !
 
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