Back on "normal" insulin levels

[AJLang]

Well my instinct was that the reason for all of the low BGs and the reduction to 70% basal was because of gluten. I started being gluten free last Friday - yesterday I was back to my 100% basal and BGs have stayed relatively stable. Feeling a bit headachey and lethargic but I'm assuming that may be symptoms of the gluten withdrawal. I've also found that I am losing the bloated feeling that I had around my gut. Also, the food that we've been eating has been lovely and has included (gluten free) pasta, bread, cake etc all of which have been delicious🙂

 

[Northerner]

That's great news Amanda! 🙂

 

[AlisonM]

I'm glad it's working out Amanda. Wonderful too that you're starting to feel better.

 

[Flutterby]

That's really interesting as well as being good news. What do you feel it was about eating or not eating gluten that made the difference to your blood sugar levels?

 

[Pumper_Sue]

Is it gluten or wheat though? It could just be a wheat allergy so worth checking that out. 🙂

 

[AJLang]

That's really interesting as well as being good news. What do you feel it was about eating or not eating gluten that made the difference to your blood sugar levels?

Thanks Karen. I read that being coeliac can cause low blood sugars - I'm not sure why - but I definitely don't need the reduced basal. As it's working I will keep at it🙂

 

[AJLang]

Thanks everyone🙂

 

[bev]

Hi Amanda,

I knew it!🙂You had all the symptoms of coeliac and the lows too. I really do think you need to ask your Consultant/GP for the biopsy now as you have shown your levels normalise once eating gluten-free. I think (?) the reason for the lows is that the food sits in your stomach as your body cant digest it and is busy being allergic whilst your insulin is working overtime looking for the food that hasnt yet hit your bloodstream - hence the lows. I think its important that you chat about your medications with your team too as they may need an overhaul given the latest changes you have made.🙂Bev

 

[Catwoman76]

Hi Amanda so pleased to see you are feeling much better now.
Have you been diagnosed with a Wheat intolerence or possibly coeliac disease.?
I have been diagnosed a year now .

Sheena x

 

[jalapino]

Glad things are looking up Amanda 🙂

 

[Catwoman76]

Hiwhen a doctor looks at the biopsy taken from the small intestine they will be looking at the villi which are finger like projections. The villi helps with the absorption of food. The Villi should be vertical but in a person with untreated Coeliac disease the Villi are flattened and can't absorb the food.

 

[Hanmillmum]

Hi Amanda so pleased to see you are feeling much better now.
Have you been diagnosed with a Wheat intolerence or possibly coeliac disease.?
I have been diagnosed a year now .

Sheena x

Hi Sheena, my daughter was dx with coeliac in July. It's took several weeks, probably for all the repair work to take place with the villi, but I can say she is so full of beans now it's exhausting! (quite a contrast and well worth the changes)
Hope you are well with your GF regime 🙂

 

[Hanmillmum]

Well my instinct was that the reason for all of the low BGs and the reduction to 70% basal was because of gluten. I started being gluten free last Friday - yesterday I was back to my 100% basal and BGs have stayed relatively stable. Feeling a bit headachey and lethargic but I'm assuming that may be symptoms of the gluten withdrawal. I've also found that I am losing the bloated feeling that I had around my gut. Also, the food that we've been eating has been lovely and has included (gluten free) pasta, bread, cake etc all of which have been delicious🙂

Pleased to hear things are better so quickly 🙂

 

[Catwoman76]

Hi Sheena, my daughter was dx with coeliac in July. It's took several weeks, probably for all the repair work to take place with the villi, but I can say she is so full of beans now it's exhausting! (quite a contrast and well worth the changes)
Hope you are well with your GF regime 🙂

Hi It's a year now since dx with Coeliac and you do get used to it, it was hard at first but then it's just fits in with the diabetes. It took me a quite a few months to get better, did your daughter have lots of symptoms as some people have no symptoms at all? but it must of been very worrying for you, it's awful when a child is unwell and you know something is wrong. My dx was greater than 100 and a few months ago it was 5 🙂 so much better now thank you, but I do steer clear of the pasta, any home baking etc as it is so high in carbs. I do miss the smell and taste of toast or a crusty wheat roll, but I eat crackers and they are nice🙂

Sheena

 

[Pumper_Sue]

Hi It's a year now since dx with Coeliac and you do get used to it, it was hard at first but then it's just fits in with the diabetes. It took me a quite a few months to get better, did your daughter have lots of symptoms as some people have no symptoms at all? but it must of been very worrying for you, it's awful when a child is unwell and you know something is wrong. My dx was greater than 100 and a few months ago it was 5 🙂 so much better now thank you, but I do steer clear of the pasta, any home baking etc as it is so high in carbs. I do miss the smell and taste of toast or a crusty wheat roll, but I eat crackers and they are nice🙂

Sheena

Hi Sheena it's lovely to see you posting again 🙂
Have you tried the GF bread that's on prescription? I've been using the GF and wheat free rolls from glutafin. Like you I avoid pasta as well, home baking.... there's ways and means of getting around that by using ground almonds for cake making 🙂

 

[Hanmillmum]

Hi It's a year now since dx with Coeliac and you do get used to it, it was hard at first but then it's just fits in with the diabetes. It took me a quite a few months to get better, did your daughter have lots of symptoms as some people have no symptoms at all? but it must of been very worrying for you, it's awful when a child is unwell and you know something is wrong. My dx was greater than 100 and a few months ago it was 5 🙂 so much better now thank you, but I do steer clear of the pasta, any home baking etc as it is so high in carbs. I do miss the smell and taste of toast or a crusty wheat roll, but I eat crackers and they are nice🙂

Sheena

She didn't have bowel symptoms other than a little constipation here and there, and then she began to complain of tummy aches which increased in frequency on a night, these only began between the blood test being positive and then the biopsy so 5- ish weeks. (Her bloods were 300 ) With hindsight the main thing was energy levels and these diminished so gradually we didn't really consider/see it a problem until we have now witnessed the turnaround. She had been a very active toddler and perhaps we thought she was settling down with growing or the effects of the D? She had no growth stunts in fact she is and always has been on 60th centile for height and weight. She does still get odd tummy aches now but they are definitely on the wane.
We use all the GF alternatives like pasta and bread and they are fine. Noticed the flour is high in carbs for baking but we still do a fair bit together.
Pleased to hear you feel much better now 🙂

 

[Catwoman76]

Hi Sheena it's lovely to see you posting again 🙂
Have you tried the GF bread that's on prescription? I've been using the GF and wheat free rolls from glutafin. Like you I avoid pasta as well, home baking.... there's ways and means of getting around that by using ground almonds for cake making 🙂

Hi Sue 🙂 tbh I'm not too keen on the rolls and bread, but I do get food free on prescription, Barkat crackers are great. Thanks for the info on using ground almonds, do you have any good recipes that you could post? Thank you

Sheena