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Appointment today

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Oliver1992

Well-Known Member
Relationship to Diabetes
Type 1
Got appointment today at hospital for check ups with nurse , wondering what to say when she say how's it going . Cause I know what Gunna happen there guna give me set doset and tell me report back In 6 months , I don't want this to happen been happening all time , how can I tell them it's not controlling it
 
Hi Oliver,

I was feeling a bit like this with my diabetic team (who I felt didn't understand how their suggestions weren't working either). Coming on this forum it really hit home that it's me who manages my diabetes, as it's me that lives with it and sees my life day in day out.

Are you on MDIs or a pump?
 
Hi dory I'm on mdi , yeah I know just seem like same old c**p like how are you oh your annual blood really high then ask what dosage you take and say well up it and do this and that an we see you in 6 months , but getting point now iff my diabetes don't get under control I'm gunna start getting serious complication I'm only 20
 
If I could go back to my 20 year old self, the first thing I would say to me - and say over and over again, is 'your doctors dont' control your diabetes, you do' - and it was only when i realised that, and accepted it, that I started doing my own testing and changing things.

Do you check your blood sugars throughout the day - and if so when? That will help identify where things aren't going as they should.

I'm on a pump myself so can't really give you too much advice as I was very naughty throughout my life on MDIs and didn't really experiment myself to take control - but I'm sure there are lots of people on here who are on MDIs that will give some tips.

Do you take your daily test results to your clinic appts? Taking them to your clinic appt and showing them where things aren't working may help?
 
The best way of making your case to nurses and doctors is data.

They only usually can judge your control on one reading, your A1C. Now, if that's high or low, they might start recommending changes. But what they can't see is if there are certain times of day or foods or whatever that cause you problems.

What you really need is glucose logs and diaries - you need to be proactive about this stuff because if you don't do it, no-one else will do it for you. My clinic dread me coming in because I always bring in several pages of results complete with graphs and average trend lines which show when I'm having trouble and by how much.

From my last set of graphs, my clinic could clearly see that a)Christmas was a bit tricky, b)I need to work harder on hangover days to get my BGs back in order and c)mornings need me to bolus even if I'm not eating.

It might be worth asking about DAFNE courses - say to them that simply upping your dose isn't good advice. Say to them: "I need help in working out what my insulin to carb ratios are throughout the day if I am to have good control. I cannot do this on my own. I will need your help and support to do so. What are you going to do to help and support me on this other than vague advice about increasing my insulin?"
 
I've ask to do the course and sed no spaces til 2014 and yes I will take my blood meter to the appointment and I know annual blood will be same or higher , I wanna talk to them about pumps , if not i may fund my self as it feel like diabetes is controlling me
 
first things first, take your meter readings to your appointment. as Deus says, they can only go off one reading, your A1C. If they can't see what's going on on a daily basis then they can advise.

depending on which PCT you fall under, they may not consider you for a pump until they are satisfied that all other attempts to control your daibetes have been exhausted. From the sounds of things, they have not seen your meter readings yet (?) so be prepared for the suggestion that they monitor these with you over the next few months to see if they can create control with existing measures before considering a pump.

Annoying, and personally I think the UK are a bit reticent concerning pumps (given Australia and US are mucg freer in administering these) - but first of all see what you can learn. Like Deus says, don't rely on them to manage your diabetes - you've got to step up and become responsible for it yourself. Unfortunately having diabetes - and wanting good control - means you have to become a very responsible person woh is willing to accept a lot of hard work, frustration and acceptance that things won't ever be perfect - just better - but there are lots of people on this site to help you through that.
 
Thanks trothy 🙂 appointment pretty well with the advice they gave , as course I wanted to do was full like sed few week back , I'm been referred to specialist. Clinic for help with carbs and nutrition 🙂 , talk about pump which he sed would benefit from it , have to go to clinic and do carbs and nutrition and show willing and take bloods lot more and pump maybe considered which is start , little peed off with my hb1a as gone more to 115 ! Which over double , but he sed not to worry and sed but he not expecting get down to like 60 he sed would like see it drop , just brough my scales as he my ratio for start be 1 unit to every 9g so everything went well
 
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