Apparently I'm not type 1!!

[ypauly]

Had an appointment friday at my new GP's surgery with the practice nurse, all new patients have to do this. But whilst in there I was told I couldn't possibly be type 1 as being 37 years old when diagnosed means i'm type 2

It was an interesting first meeting I pointed out that a diabetic specialist nusre sitting with a consultant definitly told me I was type 1 but she didn't believe it lol.

Anyway I have still got to see the doctor in order to get my prescriptions, but first impression isn't good.

Isn't the NHS wonderful🙄

 

[Steff]

How weird, how long have you been diagnosed again Paul?

 

[bex123]

that is bizzare! dont get me started on the nhs lol 🙄
like steffie said how long have u been diagnosed? personally i would phone you dsn and explain the situation , as if you are type 1 and they start messing about at your gp surgary it can make life seriously difficult😱 , ask your dsn to phone the practice nurse at you dr's and talk to her ,

 

[Andy HB]

I'm beginning to think that I'm less and less interested in Type 1/Type 1.5/Type 2/Type Whatever classifications!

I think that it just boils down to how much insulin the pancreas produces and what the insulin resistance levels are. It's that which fundamentally defines the treatment required, not some arbitrary naming convention.

Andy 🙂

 

[ypauly]

I was diagnosed type1 last october, My GP, DSN and a consultant all sat with me going through blood test results and all said type 1.

But some nurse at the new practice I have gone to knows a lot more



It will be fun, I have an appointment with the consultant on the 6th december and top of the list I will be telling him he WAS WRONG lol

 

[ypauly]

I'm beginning to think that I'm less and less interested in Type 1/Type 1.5/Type 2/Type Whatever classifications!

I think that it just boils down to how much insulin the pancreas produces and what the insulin resistance levels are. It's that which fundamentally defines the treatment required, not some arbitrary naming convention.

Andy 🙂

I would normally agree, however the NHS uses arbitrary names to decide the level of support. For instance a type 2 will not get a testing kit/strips at most GP's

 

[Steff]

I was diagnosed type1 last october, My GP, DSN and a consultant all sat with me going through blood test results and all said type 1.

But some nurse at the new practice I have gone to knows a lot more



It will be fun, I have an appointment with the consultant on the 6th december and top of the list I will be telling him he WAS WRONG lol

So in theory you could of been taking the wrong meds for a year?
Very confusing for you paul one person telling you your t1 now your being told your t2, abit of a wait til december what is happening in the meantime?

 

[Andy HB]

I would normally agree, however the NHS uses arbitrary names to decide the level of support. For instance a type 2 will not get a testing kit/strips at most GP's

I see your point.

I wonder how many more Type 1's will be reclassified then?!! 🙄

Andy

 

[ypauly]

So in theory you could of been taking the wrong meds for a year?
Very confusing for you paul one person telling you your t1 now your being told your t2, abit of a wait til december what is happening in the meantime?

I'm doing something right as my sugar levels are excellent!

It was her statement that if diagnosed as an adult you must be type 2 that concerned me. She didn't have any records nor did she have blood test results, But she was adament she was right and that I shouldn't question her knowledge.
I thought it was funny that she didn't need to know if I was producing insulin and in what amounts also keytones and all the other associated factors were all irellevent, It's age that matter lol

 

[Andy HB]

So in theory you could of been taking the wrong meds for a year?
Very confusing for you paul one person telling you your t1 now your being told your t2, abit of a wait til december what is happening in the meantime?

I'd be gobsmacked if that was the case. Surely people are treated based on physical symptoms rather than naming conventions?

I stand back and wait to be smacked in the gob

Andy 🙂

 

[Steff]

I'm doing something right as my sugar levels are excellent!

It was her statement that if diagnosed as an adult you must be type 2 that concerned me. She didn't have any records nor did she have blood test results, But she was adament she was right and that I shouldn't question her knowledge.
I thought it was funny that she didn't need to know if I was producing insulin and in what amounts also keytones and all the other associated factors were all irellevent, It's age that matter lol

Surely she cant just change your whole entire diagnosis without referring to your notes etc etc..id be walking around like a headless chicken questioning everything thats happened in the last year if it was me lol.I mean you do suffer hypos and ketones dont you?

 

[Adrienne]

I'm doing something right as my sugar levels are excellent!

It was her statement that if diagnosed as an adult you must be type 2 that concerned me. She didn't have any records nor did she have blood test results, But she was adament she was right and that I shouldn't question her knowledge.
I thought it was funny that she didn't need to know if I was producing insulin and in what amounts also keytones and all the other associated factors were all irellevent, It's age that matter lol

Oh dear, she is very wrong though. Type 1 can happen to anyone under the age of 40 and tests needs doing sometimes to decide whether 1 or 2, think the c-peptide test but that is hard to determine to begin with as a type 1 could be in honeymoon and therefore producing.

However there are a few adults over the age of 40 who do also get type 1, but it is rare but does happen.

I think your nurse needs some retraining and if I were you I wouldn't be going anywhere near her for any diabetes care and stick with your consultant and DSN at the hospital.

We had a GP who tried to tell me he needed to change things (on our pump which he had never seen before mind you) as no diabetic should ever have hypos. I told him we were under the best hospital in the UK and he could stick it and I changed surgeries. Stupid, dangerous idiot !

🙂

 

[Robster65]

Really worrying. At least my DSN at the GPs admitted she didn't know everything and passed me on to the hospital.

They'll have a lot of other problems if her knowledge is limited to
type 1=young
type 2=old+overweight.

Good luck with it all. It may be an interesting ride ! 🙄

Rob

 

[ypauly]

Firstly she isn't I repeat ISN'T a DSN, she is a normal practice nurse, she was filling in a medical history survey on the doctors system (I don't know if this changes diagnosis) But I will check when I see the doctor.

My notes could take weeks to be transfered from my previous GP and until then I am told as long as I have a printout of what they prescribed it will be repeated.

I was just dumbstruck by her arrogance, to the point it was hilarious



It will be interesting.

 

[Northerner]

She is completely wrong. How do I know? Well, because I was diagnosed Type 1 (and I most DEFINITELY am!) at the age of 49. So what she states as being an absolute truth is absolute poppycock! 😱

The type of diabetes you have can have very different causes. Type 2 is generally caused by insulin resistance, which in turn may result in insulin insufficiency if the pancreas gets 'worn out' by trying to pump out gallons of insulin to try and overcome the resistance. In this latter case, you will still have the insulin resistance, so may need to inject large amounts of insulin until you have improved your sensitivity by the use of diet, exercise and possibly additional meds like metformin.

Type 1 is an autoimmune attack on the beta cells of your pancreas, which causes them to fail and stop producing insulin. Often, some insulin production remains for a while, particularly in adults, so the injected doses may be very small. A catastrophic event, like succumbing to a virus, can wipe out the beta cells completely, although it is possible that some may regenerate. This is what happened to me - slow decline with symptoms, but 'managing', then a stomach virus that landed me with DKA in hospital.

Trust what the consultant says Paul, not what this ill-informed nurse asserts!

 

[scootdevon]

Just goes to show they dont know everything ie consultants 'consults previous cases and books' and gp generally practice and nurses nurse so go figure thats just my opinion

 

[ypauly]

She also told me I was 8kg overweight!! I figured this was fairly normal till she started to give me a long lecture. So I asked if she wanted to race and said she could chose the distance.

 

[Northerner]

She also told me I was 8kg overweight!! I figured this was fairly normal till she started to give me a long lecture. So I asked if she wanted to race and said she could chose the distance.

Haha! Love it! 🙂 Seriously, this person should not be giving out advice to anyone! 😱

 

[katie]

This nurse is an idiot. You should tell one of the doctors what she said, I'm sure they'd have something to say about it

 

[Twitchy]

She also told me I was 8kg overweight!! I figured this was fairly normal till she started to give me a long lecture. So I asked if she wanted to race and said she could chose the distance.

Great!! Wish I'd been a fly on that wall, nice one! Sounds like the numpty nurse at my practice is moonlighting... isn't it scary how utterly ill informed some health care 'professionals' are?!! 😱