Apparently I don't look diabetic!

[Grogg1]

I like it when people say I don't look 50! I don't ask how old I do look in case they say 60!

 

[Northerner]

your HbA1c should be in the low to middle teens

😱 😱 😱 😱 Where on earth did he get that idea from? 🙄 I would have put him straight on that, in no uncertain terms!

 

[Ljc]

I had to have a 'work' medical the once. The twat thought I was being totally over obsessive at the levels I wanted my BG to be day to day. "If I were your GP, I'd be telling you it's completely UN healthy to want BGs in single figures and that your HbA1c should be in the low to middle teens. You mark my words - everyone will be agreeing with me in a few years' time!"

I was rendered speechless.

However the Thinks bubble read, "If you were my GP matey - I'd be doing every single possible thing I could, to get YOU struck off, asap !"

So being 13.0 + % or 119+ in new money is good, where on earth did he get this idea from .
Err did his ears survive

 

[Greyhound Gal]

I used to get a lot of ignorance about my psoriasis, which can be extremely hurtful as a child and teenager. I been told to sort my dandruff out and it even went round school that I had leprosy...Now if it's bad and anyone says anything nasty I just think...well, I'll leave you to imagine what I think🙄
Can still be pretty hurtful though.

 

[Northerner]

I used to get a lot of ignorance about my psoriasis, which can be extremely hurtful as a child and teenager. I been told to sort my dandruff out and it even went round school that I had leprosy...Now if it's bad and anyone says anything nasty I just think...well, I'll leave you to imagine what I think🙄
Can still be pretty hurtful though.

My Dad suffered from psoriasis for over 40 years I believe it's autoimmune, like Type 1, so that's possibly where the genetics comes in for me. Hope it is something you are able to treat well 🙂

 

[Greyhound Gal]

My Dad suffered from psoriasis for over 40 years I believe it's autoimmune, like Type 1, so that's possibly where the genetics comes in for me. Hope it is something you are able to treat well 🙂

Under control at the mo but on Ciclosporan for it (anti rejection drug), and have fortnightly blood tests to check kidney and liver functions. Ciclosporan is actually mentioned in the Ragnar Hanas T1book as a drug to help T1 as it suppresses my pesky immune system. If/when I come off it, be interesting to see what happens to my levels...😎

 

[trophywench]

So being 13.0 + % or 119+ in new money is good, where on earth did he get this idea from .
Err did his ears survive

F knows where he got it from. I was sent for this medical at NU Health in Birmingham when I was off sick with stress basically. Fantastic firm to work for eg a phased return to work after 3 months off, equals come in late on Monday and at 4pm tell me I can go home now. When I asked 'What time do you want me in tomorrow?' boss woman did a double take and then in an incredulous voice replied '9 o'clock of course!' and that was that.

So if I hazarded a guess, I reckon the bloke (Dr ???) in question probably got it from the same place That Cow obtained her People Management skills, don't you ?

 

[Ljc]

F knows where he got it from. I was sent for this medical at NU Health in Birmingham when I was off sick with stress basically. Fantastic firm to work for eg a phased return to work after 3 months off, equals come in late on Monday and at 4pm tell me I can go home now. When I asked 'What time do you want me in tomorrow?' boss woman did a double take and then in an incredulous voice replied '9 o'clock of course!' and that was that.

So if I hazarded a guess, I reckon the bloke (Dr ???) in question probably got it from the same place That Cow obtained her People Management skills, don't you ?

I've met a few like that in my time

 

[Cookiemonster2017]

Speaking of educating more people about diabetes, my local Diabetes Education Centre in the hospital where my nurses and dietician are is being moved...outside the hospital...to a portacabin  so frustrated the hospital didn't consider it important enough

 

[MikeTurin]

Speaking from a personal point of view as a Type 1 diabetic there can't be any other medical conditions in which you have no control in getting it through 'lifestyle' factors or anything else i.e. it's an autoimmune condition and you just get it, yet we have to put up with sh*t like this. I certainly think DUK could be doing more to educate and inform the population about the causes of the different types of diabetes. @Hannah DUK ?

I suppose that also the people in 10 downing street could be interested on informative and education campaigns about type 1.
The problem is also that Type 2 is difficult to control, because is clear that in type 2 there are a mix of genetic conditions, some in common with the Type 1.
I am diagnosed as Type 2 and i am 183 cm by 72 kg - reached 66 kg, then regained some weight.
I have reached the goal mainly because wen I was diagnosed I got scared, started to read books, and going on reputable websites, bought a BG meter and test strips and started to test.

T2 are a majoriy and neverthless my former GP said that having a BG fasting level of 99 mg/dl (5.35 mmpol/l) was normal and never gave me an HBa1C test.
Also when i got an out of the blue 125 mg/dl (6.94).

 

[TheClockworkDodo]

Speaking from a personal point of view as a Type 1 diabetic there can't be any other medical conditions in which you have no control in getting it through 'lifestyle' factors or anything else i.e. it's an autoimmune condition and you just get it, yet we have to put up with sh*t like this.

Sadly, yes there are other medical conditions which are similarly nothing to do with lifestyle but get a similar reaction from the general public, newspapers, and even medical professionals who should know better. ME has had awful press for years - people think if you have it you must be lazy or imagining things or "just depressed" (which of course is an insult to people with depression as well as to people with ME) - whereas actually it's an neuro-immune disease with - at its worst - a sickness impact profile on a par with terminal cancer and kidney disease. I know other people with other invisible disabilities - such as HMS/EDS - who face similar ignorance and discrimination too.

 

[robert@fm]

I have had depression in the past, and one idiot (who was actually employed as a mental health worker🙄) told me to "pull myself together" as if that's all there is to it. (He was incompetent generally, not just in his field of supposed "expertise".) Where do employers find these people?

 

[Diabetes UK]

I certainly think DUK could be doing more to educate and inform the population about the causes of the different types of diabetes. @Hannah DUK ?

Yes, we are very much aware of the misconceptions between diabetes types and prejudices around 'lifestyle' choices, which frustratingly does not always apply to type 2, let alone type 1 or other types, plus, sadly other factors which may lead to some lifestyle choices are not always recognized. We are very clear in distinguishing the differences between types when speaking with the media and even have a journalist guide which we send out, that outlines the differences and facts for the media to be aware of. We also raise concerns about incorrect media reports or portrayal with Editors and have requested apologies in the past. But essentially, as charity, we do not have outright control and our opinion is not always heard.

Its disappointing to hear that some HCP are ill-informed, but its absolutely in our interest to make sure that healthcare professionals are engaged and up to date with the latest medical advances - or even just the basics to start! There are lots of ways that this happens; bi-monthly journals, conferences, involvement networks, clinical champions, shared resources to name a few. I think with advances in technology it means that it is even easier for information to be shared quickly and I hope that more and more of the healthcare world will be able to keep updated.
But there is always room to do more and we can always do better. I pass on any feedback that you throw my way to the rest of Diabetes UK and its is reviewed weekly. So - thanks @Matt Cycle for highlighting the importance of continuing to raise awareness & understanding of diabetes types, and correcting myths and prejudices. And thank you @pottersusan - as you have mentioned that there is a need to increase awareness beyond Types 1 & 2.

 

[PhoebeC]

Someone asked my husband when he mentioned I have diabetes if I was fat when i got it? 'because she is slim now'!!! really!!!