Any help out there for my non-diabetic child

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Since1972

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Type 1
Hi Everyone.
I have been type 1 since 1972. My nine year old daughtter is not diabetic, but she gets very anxious and worried when I have a hypo - of which I have had a few lately. Is there any support available for her - perhaps some support group etc?
Thanks
 
Hi. My wife also could do with some support and info as I had my first un-self-controlled hypo one night and needed her help. I have only ever needed help 3 times in 31 years and I am thinking of giving her the url to this site. Perhaps a sanitised version/access for your daughter may be helpful.
 
Some of the content of this site is a bit grown up, but anyone is welcome to look at the site, it might provide some re assurance. If you have a youngster looking in be on hand to explain some of the terms, and Norhterners link is good.
 
What an interesting problem - there must be a solution, perhaps already in existence, and if not, there should be.
Since1972 (what a good name, by the way) - what would your daughter like - a written booklet / someone to speak to by phone / someone to meet? Not sure whether Diabetes UK has a booklet for children of parents with diabetes, but would be worth asking their helpline; otherwise, as Northerner suggests, organisations for young carers might be able to help, depending on whether she considers herself a carer - does she get help for you, or is she present while someone else cares for you?
 
Thanks to all for the helpful response. Just a few basics: my diabettes is under very good control, my last 4 HbA1c have been between 5.5 and 6.4. I excercise a lot - spinning 4x a week ( btw - a fantastic workout) and Bodypump x 3 a week. My daughter is not the main carer, my wife is also here, but the main carer is me!. Unfortunately, I have had a few hypos recently, and he cause oof each one has been down to my having to much insulin (Humalog). My daughter is knowledgable about what diabetes is, the rloe played by insulin etc. She always hears the "click" when I test my sugar and comes running to check and advise n what my nextt course of action should be! I am just worried that she is overly concerned, and at such a young age, and wish there was a kids forum where she could share her experiences, and understand how other children in her position cope. For my part I am taking extra exttra care to ensure that I do nott go into another hyp, whilst still keeping a tight conttrol of my blood sugar levels.
 
Hopefully she will remain interested, but not excessively so. Unfortunately, there are very few child forums around principally because of the problems of ensuring the safety of the participants. There is an act governing this, called 'COPPA', details here: http://www.coppa.org/coppa.htm .
 
Perhaps I should arrange an informal discussion between my doctor, my daughter and myself? I see your point about forums though. I will also call the BDA helpline for writtten info etc. Thanks
 
Or diabetes specialist nurse if you have one - they often have more time for discussions than doctors. BDA changed its name to Diabetes UK - sometime since 1972! see www.diabetes.org.uk
 
Since1972 said:
Hi Everyone.
I have been type 1 since 1972. My nine year old daughtter is not diabetic, but she gets very anxious and worried when I have a hypo - of which I have had a few lately. Is there any support available for her - perhaps some support group etc?
Thanks
Click to expand...

Hi welcome to the forum. I am in the same position, my 9yr old daughter is also anxious and worried, but the problem is it's just the two of us here. A few months ago I went through a few nasty hypo's and my daughter found me(bless her), I have asked my daughter if she would like to share experiences with your daughter and she said she would like to. It would let them know that they are not on their own and there are lots of children out there in the same position, as the old saying goes, a problem shared is a problem halved. It's better to talk about worries,(but I know it is difficult for children) maybe we could set up a support group for them(but not sure how to do that!). With very best wishes Sheena🙂
 
Thanks Sheena! Yes, I am sure my daughter would also like to talk about this matter to your daughter. How do we set it up? I use SKYPE - perhaps that would be good.
Also , my apologies for being so behind the times; must remember BDA=Diabetes UK!!
Last thing, the old days were not always the best - who remembers boiling needles and syringes before each very painful jab?!
 
Since1972 said:
Thanks Sheena! Yes, I am sure my daughter would also like to talk about this matter to your daughter. How do we set it up? I use SKYPE - perhaps that would be good.
Also , my apologies for being so behind the times; must remember BDA=Diabetes UK!!
Last thing, the old days were not always the best - who remembers boiling needles and syringes before each very painful jab?!
Click to expand...

Hello again, thanks for getting back. Unfortunately I do not have SKYPE( to be honest I,m not sure what it is)is it like a web cam? sheena:confused
 
sheena76 said:
Hello again, thanks for getting back. Unfortunately I do not have SKYPE( to be honest I,m not sure what it is)is it like a web cam? sheena:confused
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Hi wanted to welcome you to the forum since x


p.s Sheena here is a link to show you what skype is about , i dont use it but my sister uses it to keep in touch with her dad in England.
http://www.skype.com/intl/en-gb/home
 
Welcome in Since1972. 🙂

You're not alone in the dark memories of yesteryear 😱

Do you have particularly 'violent' hypos ?

Rob
 
Just to say the husband of a friend of mine was recently diagnosed with epilepsy and they were in a similar position re what information to give their 3 kids (aged 9, 6 and 4). My friend wrote to an epilepsy equivalent of Diabetes UK (sorry I don't know their proper title!) and has said they have sent a variety of books/leaflets specifically aimed at each child's age group to help explain things to them.

Definitely worth checking in with DUK to see if they do anything similar
 
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