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Anxiety !

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Kezza1970

New Member
Relationship to Diabetes
Type 1
Just wondered if it's normal to feel so down ? It's a hard enough blow to find out you are Type 1 and I am just hoping that it all settles down as right now I feel lost with it all if I am honest :-(
 
Anyone diagnosed with a life long condition will feel down, type 1 is no different.

After the shock has receded you will realise that life isn't to bad, in time you will see that you can live a long and happy life just the same as someone without the condition.
 
Think I need to hear more positive ... Thank you for reply ... It just seemed not only taking on the shock and surprise of it all but the amount of people telling me all the worst case scenarios which kinda got my anxiety going through the roof ... And I feel worse now I have been diagnosed than I did before ... That has upset me as I was told I would feel so much better now but in actual fact I feel c**p ... Just always usually find the best in everything and this has knocked me sideways ... Feel like I am letting family down as I have been a nightmare with mood swings and anxiety ....
 
Hi Kezza and welcome. I am not type 1 but can understand your anxiety, it is an awful lot to take in and can be very overwhelming thinking of all the changes you need to make. As nonthewiser says once you have had time to come to terms with things you will cope with it better. I hope you are getting support from your GP and diabetic nurse and also the hospital. If you look through the posts you will see how lots of people felt the same as you but through time and change they are managing to live a normal life, if there is such a thing. I wish you well and we are all here to help even if you just want to have a good whinge, believe me I’ve done it myself. Chin up and my thoughts are with you.
 
Welcome to the forum @Kezza1970 .

You may well feel physically better once diagnosed, but mentally it is a lot to take in at the start, and it is now wonder that you are feeling a bit frazzled, or even VERY frazzled. I was diagnosed with T1 at the age of 53 and it was a BIG shock, but it is manageable and it does not need to stop you diong what you want to, it just takes a bit of organising. It is however something that you will have to manage every day, but it will just become part of your new ‘normal’ life. Do you remember learning to drive? For me it seemed a lot to do: changin gear, looking in the mirror, checking your surrounds, steering, signalling, .... Now I don’t even think about that all, I just watch out foe the unusual things along the way and the bumps or blockages that come my way. So it is with my Diabetes. It DOES GET EASIER.

To start with practicalities, what insulin’s have you been put on? It helps us to give you appropriate help in response to any questions that you may have. There is a shed load of help available on here and I have learnt most of what I know from here. It comes from people wh are diong what we are doing every day and they have practical ideas. A book that I would recommend (and ignore the age reference, T1 is T1 whenever we get diagnosed) is Type1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas. It is well written, explains things clearly and seems to have everything in there. It is worth getting the most recent edition as it is regularly updated with the latest technology, in which there has been a lot of progress even in the last 11 years since my diagnosis. Well worth a read.

At the start your levels will be a bit up and down as it is likely that your pancreas may still have a few Beta cells left, which will decide to join in and chuck out a bit of insulin to go with what you haveinjected. So be patient it will take time to get things more sorted.

I shall stop as I have realised just how much I have rambled on.
Just know that no questions are considered silly on here.
Just ask, and help will come along.
 
Thank you all so much ... I am on Novomix 30 twice a day .. Am kinda getting hang of things and really appreciate your replies ... I thought I was cool with it all and out of nowhere I just got knocked outta the park with anxiety and depression but I guess I should just realise that I have had a massive life change and it will take time ... I am usually the first person to put a joke to everything in life so I kinda got quite angry that this has got me so badly ... But I am glad I found this place .... Kezza 🙂
 
Thank you all so much ... I am on Novomix 30 twice a day .. Am kinda getting hang of things and really appreciate your replies ... I thought I was cool with it all and out of nowhere I just got knocked outta the park with anxiety and depression but I guess I should just realise that I have had a massive life change and it will take time ... I am usually the first person to put a joke to everything in life so I kinda got quite angry that this has got me so badly ... But I am glad I found this place .... Kezza 🙂
Kezza, you are normal and peed off with something big that wasn’t on your radar, you are entitled to feel as you do. Things will get easier and I wish you the very best.
 
Hi Kezza and welcome to the forum. 🙂 Yes, T1 is a complete pain in the arse but it definitely becomes more manageable with time and you'll soon just be getting on with it. It's never stopped me doing anything. In time you may wish to ask your diabetes team about basal/bolus or MDI (multiple daily injections) - most T1's are on this regime. This would give you much more flexibility than the Novomix 30 you're on. In MDI you have one or two long acting (basal) insulin injections and also inject a fast acting insulin before each meal for the carbs you're having (bolus). This flexibility means you can skip/delay meals, adjust for exercise etc.
 
Hi and welcome. It's such a big adjustment, like someone throwing a grenade into your life! You might find the five stages of grief helpful to read. Take care, no question is too small or silly 🙂
 
Hi @Kezza1970 and welcome, glad you've found us 🙂

It is a huge shock to be handed the running of your insulin supply and all that entails. You have to hit the ground running with no gentle transition and it takes some readjusting to the new situation both mentally and physically but given time you will start to feel less anxious and start to feel safer in your own skin 🙂

Ignore people telling you the grisly stories they've heard 2nd/3rd hand, well controlled diabetes doesn't make the headlines. There is excellent technology around now to get good control and to get on with your life.

As Matt has said ask your diabetes team to get you on to MDI so you can start to get flexibility with eating etc.

It is a steep learning curve after diagnosis, who knew what your pancreas was busy doing until it's over to you to work it out! There's a wealth of experience and support on here so please let us know how things go. We all 'get' diabetes on here and are happy to help and support where we can. 🙂
 
Oh really ... I am seeing my Diabetic nurse tomorrow so I will most deffo ask ... Again thank you all for the lovely words and support ... It has really made me feel better ;-)
 
Oh really ... I am seeing my Diabetic nurse tomorrow so I will most deffo ask ... Again thank you all for the lovely words and support ... It has really made me feel better ;-)
It is very unusual to be put on Novomix these days. They may have chosen this whilst they get your levels down at the start.

Once they switch you to Multiple Daily Injections, with two different insulins: a slow release as the background, and a quick acting Bolus to deal with food that you eat, it will be a LOT EASIER to manage changes during the day. this is also known as Basal/Bolus regime. the Basal insulin will deal with the glucose that your liver releases all the time to keep you ticking over, then the Bolus is insulin that you inject to match the carbs that you eat. Definitely worth asking about this tomorrow at your appointment.

I look forward to hearing how you get on.
 
Talk honestly with your diabetes nurse. You should have access to a psychologist as well as medical support. Any chronic illness will have its ups and downs and it’s ok to grieve and be pissed off and generally acknowledge how unfair it is. You will get to grips with the day to day though (and MDI would help your moods too as you’ll be able to get more sensitive management) and there will be periods of time where you just get on with life quite happily and then other times when it’ll all get on top of you again.
 
Hi , spoke with Diabetic nurse at my GP's and I need to go down to see the team at the hospital but she thinks that they have started me on the Novomix as apparently usually the pancreas can still be producing some insulin still so I am going down to see the big guns as soon as possible to get some more answers with it all 🙂
 
Just a quick update .. The nurse from diabetic clinic at hospital rang and was quite abrupt when I asked about the change to MDI but said that I can be changed over to it ... Apparently I was offered it when I 1st saw them but funnily enough my head was full of allsorts and didn't quite know what was going on ... You'd think they would kinda understand that but Hey ho ... At least I am now on right track to getting it all switched over .. 🙂
 
Yes your head will have been all over the place! Glad you’re getting somewhere with it at least. It does take a while to get your head around everything’s and we found it very overwhelming when my daughter was diagnosed. You’ll get on top of it.
 
Just a quick update .. The nurse from diabetic clinic at hospital rang and was quite abrupt when I asked about the change to MDI but said that I can be changed over to it ... Apparently I was offered it when I 1st saw them but funnily enough my head was full of allsorts and didn't quite know what was going on ... You'd think they would kinda understand that but Hey ho ... At least I am now on right track to getting it all switched over .. 🙂
That sounds good, and as you say they should have understood that you would have neen muddled. However now on the right track to get MDI so worth making a new start with the DSNs.
 
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