Another quick update

[Tina63]

Just to let you all know that at the moment the twice daily M3 seems to be working with my son. When I say working, I mean he is conforming. That is definitely a step in the right direction in my mind.

He is due back at clinic again next week and we dropped his blood test off at the GPs today so he will get his HbA1c again next week. No doubt I will have to wait for the follow up letter to find out the exact figure, but I really do hope we see a positive improvement. It will only reflect 3 weeks on the new regime though.

The letter following his last appointment did acknowledge his doses are probably too low at the moment, but they were mindful of just getting him used to injecting twice a day before tweaking it. He isn't testing of course, so we have no figures to work on, but I am going to drop into conversation this afternoon that perhaps he should do a few tests before seeing his consultant again next week.

He does inject twice daily almost every day, he just seems to skip occasionally when due out on a drinking session. He alarms me just how much he can put away on an average night out with his mates, I have now witnessed it first hand. He has run out of money this month already though, so hopefully will have a much quieter social life for the next few weeks!

Still, as I have said before, it's little steps. I feel more positive about it now, and just hope the HbA1c reflects that. It can't get much worse anyway, it was 12.6 last month. Fingers crossed.

Tina

 

[Cleo]

hello tina,
thank you for sharing your son's update with us. I'm pleased to hear that you feel that things are moving in the right direction - that's the most important thing I think. Like some forum members have previously said "Rome wasnt built in a day", I know from my own experience that you need to patient with the D!. I hope the HbA1c result is good but if it isn't, just remember sometimes it takes longer for the results to show 🙂
Good luck !
Cleo xx

 

[everydayupsanddowns]

Really pleased to hear the mix is working out better for your son Tina.

Here's hoping he gets to see an improvement in his A1c that encourages further engagement with his D.

 

[Lauras87]

That's good to hear Tina.

Hopefully baby steps will get him to want to be involved in his diabetes

 

[Hanmillmum]

It is certainly a step in the right direction, I hope it continues and if this regime suits him and he is complying then great. Keep us updated 🙂

 

[LeeLee]

Hi Tina, so glad to hear things are improving. You'll never stop worrying, but maybe the stress will be a bit less now (who am I kidding, you're a Mum for goodness sake!). I hope things continue on an even keel.

 

[Tina63]

Thanks everyone for your kind words. I did mention testing yesterday, but he just walked out on me! No surprise there then! I will mention it again today. I go weeks now without saying a word about it, but maybe a bit of intense nagging is called for this week!

I did also start a conversation later about talking about his feelings. He said he just simply can't talk. Said it's the way he is. Can't open up about things. He did say he is talking to someone (his psychologist) weekly, (must be by phone as he only sees him face to face every 4-8 weeks) so I just said "that's good, and any time you do feel you want to talk to me, you know I am always here and ready to listen." I did ask if he thought it was making a difference, his reply was that he didn't know. He was more friendly last night than he has been in ages, so maybe we are chipping away at his hard exterior!

His psychologist phoned home last week to speak to him, and had a brief word with me. Said of course with confidentiality couldn't discuss anything with me, but was trying to encourage him to invite me into a session so we could talk together. He said my son isn't ready for that yet, but he is working on it. Hopefully he will carry on seeing him until we al least get to that stage. I have found an email address for him too, so may well email him with updates from time to time. Surely it's helpful for him too to know what I see as going on from this end?

I have written to his consultant again in confidence, being encouraged that she obviously took on board what I said in my last letter, and the twice daily M3 mix was my suggestion anyway, so it's obvious she listened to what I had to say. I thought it only right to keep her informed of what is actually going on now, and it was great to be able to say he is doing it. As he was obviously telling her what she wanted to hear in the past rather than the actual truth, how could she possibly make a sound judgement on the way forward with him? By my 'interference' at least now I feel we are making some positive steps forward. I know it will take time to really make a difference, but it had to be worth a try. Maybe in time he will feel ready to go back onto Lantus and Novorapid (which did work so well for him when he was conforming) but for now, it's just finding something that he can deal with and works better than things have been for the past year or more. I don't imagine the HbA1c will have budged much yet if at all, but I do so hope for a bit of a positive shift to encourage him and give me a buzz.

I really can see this as being the most vulnerable age of dealing with diabetes, especially when diagnosed as a teenager like him. On the whole my lad wants to be the 'big man' but at times is so vulnerable. It is so hard knowing how to react when I know he wants to be just like everyone else, and to be fair, he does on the outside appear just like all his mates. He does what he wants, when he wants, goes out socialising, drinking (grrr!), but inside he is screaming out for it all to go away. If only I had that magic wand........