another newbie!

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samantha green

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hi my daughter was diagnosed at the begining of june with type 1 after being admitted to hospital with kda.i have had countless books and leaflets chucked at me from the hospital and bags of machines needles and insulin ,ketostix etc sent home after being diagnosed two days.also had to carb count.cried all the way home in case i got it wrong and was petrefied.now four weeks on we are doing good have managed a week away and day trips with schools.so we are getting to grips with it!!!!!never thought that would happen.was recommended this website by a friend as she knew i was struggling as no one in the family has diabetes.so kept looking at threads to get read advice.but now brave enough to join so here we are!!!
 
Hi Samantha welcome to the forum! There are plenty of parents on here, and if you haven't already, I recommend you get in touch with the Children With Diabetes emailing list - the link is:

http://www.childrenwithdiabetes.com/uk/

I'm also on Novorapid and Lantus 🙂 although I've had this stupid disease for 19 years now!
 
thank you.just looking now.
 
hi samatha welcome to the forum xx🙂
 
welcome to the forum Samantha 🙂
 
Hi Samantha

Sorry you've had to join, but hope you'll find good support and information here.

I think too little emphasis is placed on supporting parents and partners of diabetics. I was diagnosed quite late (at 21) but I know my Mum had a very hard time coming to terms with it, harder than me in many ways as I just had to get on with it day to day. She blamed herself I think. Wanted to know exactly what the root cause was. Spent sleepless nights wondering what she might have done that could have prevented it. Worried about the future.

I know it's glib to say, but please try to realise that nothing about this is your fault. You are not to blame and nothing you did, or didn't do would have made any difference. Although Diabetes is wretched and impossible some days, it IS something with which you can live a normal, long, healthy, active life.

Compared to the treatment options just a few decades ago management of the condition is now easier than ever. More and more diabetics are able to keep their sugars near enough to the 'normal' range to avoid diabetic complications. I've 'met' T1 diabetics online who have been living with this for 60-odd years and are complication-free despite years of less-than-perfect equipment to manage the condition.

My wife has written about her experiences of living with a diabetic here, if it's of any interest.

So stick around - rant, moan, rage and ask lots of questions, none will be considered silly, and someone may just be able to share their own experience of the same thing.

M
 
Hi Samantha,

Welcome to the forum - it is a fantastic place and you will get lots of help and advice or even if you just need a shoulder to cry on. The parents on here are all great and have / will encounter the same things you are doing with Caitlin.

I'm always here for you as well - call me if you need owt you have my number.

PS it's me Diane your old school mate ....lol...xxxx
 
Hi Samantha

Welcome to the forum 🙂 xx
 
Hi Samantha, welcome to the forum.
 
Hi Samantha,

Sorry to hear that you are obliged to join this motley crew. I myself was diagnosed at the age of five. That was way back in what I suspect is now hallowed antiquity (1996!) I'm more than happy to answer anything about being a child with diabetes. My memories of it might be a bit off given decay over time and much alcohol consumed since arriving at university! Just send me a PM if you want my e-mail or facebook.

Tom
 
Hello Samantha,

Welcome to the forum. I'm sure that you'll find lots of support here.

Andy 🙂
 
Hi samantha - I'm a mum too

hey adding my welcome.

JP also had high DKA and still really struggles with ketones. Tomorrow it will be 3months since his diagnosis and i'm been all over the place from coping fine to needing to scream to wanting to throttle the chemist who can never ever get his order right!!!!!!!!!!!!!!!!!!!!!!

anyway enough about me this thread is about you and i hope another parent of a child about same age is able to offer thier support to you.

like others have said use this place to ask any question, let off steam, and in turn support others as you can - its a great place to learn together.

good luck
rachel
 
Hi Samantha

I am a mum too even though my son is older (20) ...still worry aobut them though however old they are!

This forum has been wonderful reassuring me in those first 2 weeks when the shock was terrible and I couldn't think straight at all. I am still asking questions and will have many more I suspect!

Take care x
 
Doesn't change anything (much!)

Hi Samantha, just to let you know that once your daughter is stable, she'll be able to do just about anything she wants. I was diagnosed at the age of 8 (almost 40 years ago now!) and my mum was determined that I should be as active as any other child - my older brother was also diabetic, and he was also very active. We went camping, caving, hiking, played sports of all kinds etc etc. I strongly recommend the summer camps for diabetic kids - I went on two, and they were a great help. The only piece of advice I have: make sure your daughter isn't shy about telling teachers/supervisors she is diabetic, and what to do if she does go hypo. It's a reassurance to them and to you.🙄
 
hi and welcome to the forum samantha 🙂
 
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